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steroid withdraw

  • phillipsonautumnl
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13 years 10 months ago #19641 by phillipsonautumnl
steroid withdraw was created by phillipsonautumnl
so i have gotten to the point ware i am able to get weened of my steroids im on Dexamethasone and I was taking high doses and then got it put down to 2 mg two times a day and then 2 mg one time day then 1 mg one time day but now im getting put on 1 mg everyother day and the withdraws are hard on me ...The headakes and the throwing up does anyone have any suggestions on how to make it threw the withdraws easyer or handel this stuff....help plz....
-autumn-:woohoo:
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13 years 10 months ago #19642 by eklein
Replied by eklein on topic steroid withdraw
I haven't heard of throwing up as a symptom before, I was on prednisone not dex - are you sure you aren't throwing up for another reason?
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 10 months ago #19644 by Sandi
Replied by Sandi on topic Re: steroid withdraw
Autumn - I've never heard of Dex being taken or tapered like that for ITP. I have only seen Dex given in pulses. Odd....

At any rate, I don't really know of any way to make withdrawal of any steroid any easier. Have you tried taking anything for your stomach? Is reflux causing the vomiting?
  • phillipsonautumnl
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13 years 10 months ago #19657 by phillipsonautumnl
Replied by phillipsonautumnl on topic Re: steroid withdraw
i checked with my oncologist and she said i could throw up with this withdraw and actually she said its going to be like i have the flu..the reason im on dex is because the other pregnosone. not working for me,..at the moment im taking adavan and tramadol for the withdraw but im still having the shakes headaches and vomiting...everyone keeps saying think positive and u'll be fine but it's getting to me i don't know how much more i can handle it.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 10 months ago #19667 by Sandi
Replied by Sandi on topic Re: steroid withdraw
How long have you been on Dex and at what dose? As I said, it's a very strange way to treat ITP. It's usually given at 40 mg's for 4 days and that's it. How are your counts?
13 years 10 months ago #19674 by
Replied by on topic Re: steroid withdraw
phillipsonautumnl what country are you in? Another thread you started said you had an open splenectomy - how are you doing after that?
  • phillipsonautumnl
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13 years 10 months ago #19681 by phillipsonautumnl
Replied by phillipsonautumnl on topic Re: steroid withdraw
i have been on Dex as of mid sept. when i got discharged from the hospital for less then 12 hrs and got put back in the hospital. and i started at more then 40 mg they had to give me a liquid form threw an iv at first then they droped it and im not on 1 mg every other day witch there trying to ween me off but i feel like i'm going crazy.

I had my spleen out in the beginning Oct. and im actually doing okay with that im still a bit heavy and sore at night when i try to sleep but if i stick a pillow uder my side i sleep ok.
T
he odd part was i had 2 spleens they had to take out apperently alot people have 2 ..the doc said if one your spleens dont work your body start to make a new one t try and help your body i thought that was interesting.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 10 months ago #19685 by Sandi
Replied by Sandi on topic Re: steroid withdraw
That is a really long time to be on Dex. I've never heard of anyone being on it that long. I'd imagine it would be quite hard to get off of.
  • phillipsonautumnl
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13 years 10 months ago #19699 by phillipsonautumnl
Replied by phillipsonautumnl on topic Re: steroid withdraw
it is a hard thing thats why there wheening me off as they are i just hate the withdraws wish i could handel it better
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 10 months ago #19702 by Sandi
Replied by Sandi on topic Re: steroid withdraw
Don't blame yourself. It's a wicked drug and nothing you can control. I think I'd look at other options next time if need be.
  • phillipsonautumnl
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13 years 10 months ago #19734 by phillipsonautumnl
Replied by phillipsonautumnl on topic Re: steroid withdraw
at that point and time i didn't have a choice togo on the dex it was the only thing that is and or was working ....and im hopping i dont have to do it again
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13 years 10 months ago #19751 by Ann
Replied by Ann on topic Re: steroid withdraw
I feel for you. I only did dex as one 4 day pulse and that at half dose.. 20mg a day.. and I felt awful for the following week. Felt drunk and couldn't walk straight. Refused to do it again.
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13 years 10 months ago #19801 by phillipsonautumnl
Replied by phillipsonautumnl on topic Re: steroid withdraw
i cant stand it im going crazy
13 years 10 months ago #19811 by
Replied by on topic Re: steroid withdraw
Phillip,
See my posting in the Natural treatments section, page 2
pdsa.org/forum/8-natural-treatment-methods/12854-how-to-attenuate-side-effects-to-medications.html

It may sound strange, but it can really help.
You can do it right now, just follow the step by step directions.
April
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