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Going with the flow

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15 years 6 months ago #2097 by Julianna
Going with the flow was created by Julianna
Hi all. Sorry to those who I couldn't meet on chat last night. The computer was out of use! And I'm sorry too that I'm going to have to leave you for a bit... I've just got too much going on, and believe it or not, my health is the last thing I'm worried about.

It's been 4 weeks on Friday since my first Rituximab treatment and I see the Hematologist for a blood count. And if hasn't changed much we do Ritux again (probably next week). Down to 5mg of Pred. Last count was 28... so that's promising, I think.

Take care all, with everything that life brings your way! And I may return at a later time. At the moment............ I'll just go with the flow....

xx Jules ;)
  • server
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  • newcreationchangingdaily
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15 years 6 months ago #2098 by server
Replied by server on topic Re:Going with the flow
It's ok Jules. We'll still be here when you can make it back! Praying all is well and look forward to hearing from you soon.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 6 months ago #2100 by Sandi
Replied by Sandi on topic Re:Going with the flow
I understand how that can be. Come back when you can.
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15 years 6 months ago #2558 by Julianna
Replied by Julianna on topic Re:Going with the flow ~ new diagnosis
I've come back to say goodbye my friends... thanks so much for your support this far in my journey. I now have a new diagnosis of MDS - myelodysplasia. Still getting used to the idea, and learning more about it. See Bone-Marrow Transplant Doctor in a month to talk about the future.

Just so glad to have a final diagnosis. Seems to be cause my my treatment for Aplastic Anemia over 10 years ago. But like I said before... I've decided to just go with the flow. Take care all...

I wish you a platelet filled Easter!

Jules
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15 years 6 months ago #2563 by NatalieM
Replied by NatalieM on topic Re:Going with the flow
Julianna,

I am so so sorry to hear this news. I'm glad you found relief in finally knowing your diagnosis. Please keep us updated on your progress. I am praying for you and yours. Remain optimistic and take care. I wish you nothing but the absolute best.

Natalie
*Here's to high platelets!*
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 6 months ago #2565 by Sandi
Replied by Sandi on topic Re:Going with the flow
Julianna:

There is a lot of hope. I know someone that had MDS and after treatment, she is doing well. She is 80 years old.

Good luck to you and we'd still like to know how you're doing, ITP or not.
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  • newcreationchangingdaily
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15 years 6 months ago #2567 by server
Replied by server on topic Re:Going with the flow
Julianna, when all is said and done, it's gonna be alright. Please do let us know how your doing.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
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15 years 6 months ago #2579 by Lorie85
Replied by Lorie85 on topic Re:Going with the flow
Julianna, I'll definitely be praying for you.
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15 years 6 months ago #2589 by tortie
Replied by tortie on topic Re:Going with the flow
Julianna, you'll be in my thoughts, we're still here whenever you want to talk.
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