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Blood blister in mouth

  • dru
  • Topic Author
  • Offline
  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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12 years 7 months ago #30781 by dru
Blood blister in mouth was created by dru
I am in the hospital with ct of 6k. I have some very large blood blisters in my mouth and they are making it hard to eat. Is there anything that can help these go down? Do they get reabsorbed as the platelets go up? I have no experience with these.


Dru
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12 years 7 months ago #30794 by plustig
Replied by plustig on topic Blood blister in mouth
Dru,

I don't know if you are newly diagnosed or not. I have had ITP since 12/28 and my platelets have not gone above 12. I get lots of mouth blisters and they seem to last about 4 days and then go away. I use Anbasol when they are painful. I understand from others that they get them when their platelets are low. I am taking a natural path working with a Homeopath. Hope you feel better soon.

Patti
  • dru
  • Topic Author
  • Offline
  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
More
12 years 7 months ago #30806 by dru
Replied by dru on topic Blood blister in mouth
Thanks Patti, I've had itp since 2005. But this is my lowest count and the first time I've had these blisters. I will try the anbasol. I had some hot soup for lunch yesterday and that made them shrink down a bit, a big relief.
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12 years 7 months ago #30885 by kdmiller22
Replied by kdmiller22 on topic Blood blister in mouth
I almost always get blood blisters in my mouth when my counts drop. If they are really bad (painful, bleeding, not able to eat) my doctor has prescribed Amicar to help. Not sure if that specifically helps as it is always also with an IVIg treatment but might be worth asking! (only problem is that it is pretty expensive even with what I feel is my pretty good insurance)
  • dru
  • Topic Author
  • Offline
  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
More
12 years 7 months ago #30886 by dru
Replied by dru on topic Blood blister in mouth
Thanks, they have gotten better as my counts have gone up. Good to know about amicar in case it happens again.
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12 years 7 months ago #30930 by Vdeutsch85
Replied by Vdeutsch85 on topic Blood blister in mouth
I had the same issue and they went away very quickly as my counts went up
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