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FLYING

  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
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12 years 11 months ago #28881 by Kelirae24
FLYING was created by Kelirae24
i have gotten so many mixed responses to this question, a nurse told me you can bleed to death dr at moffitt and mayo both said sure why not, my doctor said he doesnt know for sure but he doesnt see why not what is the real answer? can you fly with low counts?
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 11 months ago #28883 by Sandi
Replied by Sandi on topic FLYING
I wouldn't believe a nurse, that I know. One of the top ITP experts has said that it is okay to fly with low counts. I'd believe him.
12 years 11 months ago #28884 by
Replied by on topic FLYING
I would believe my daughter in law, a nurse.

You know - I moved to Tokyo a couple months after being diangosed and on 60mg of prednisone, not knowing when I would get a hematologist or who that hematologist would be. That's a long flight from here to Narita - then moved to Hong Kong, flew lots of places from there & spent many hours on a plane, you know what? I never even thought to ask anyone if it was ok.

So believe who you want to - it is your body and you need to do what is right for you.
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12 years 11 months ago #28886 by meredithjane
Replied by meredithjane on topic FLYING
Hi Kelirae,
I recently flew around the world from Australia with a count of 30. A small extra premium got me insurance, & I had no (ITP) issues. Hope that helps reassure you.
(See earlier posts for more detail)
mj
  • Kelirae24
  • Topic Author
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
More
12 years 11 months ago #28888 by Kelirae24
Replied by Kelirae24 on topic FLYING
I guess I'm more concerned like I leave at twenty or thirty but they drop if it will be ok at like five or under cause
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12 years 11 months ago #28890 by alisonp
Replied by alisonp on topic FLYING
We just flew the 3 hours from Spain to Manchester with my son's count around 5 - I checked with his haematologist and he wasn't concerned
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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12 years 11 months ago - 12 years 11 months ago #28891 by Sandi
Replied by Sandi on topic FLYING

Melinda wrote: I would believe my daughter in law, a nurse.


Nothing against nurses, honest. I have really had some bad/incorrect information from nurses over the years (like the above). They just misspeak sometimes without really knowing.

For the record, docs are not always right either, but you have to trust someone sometimes.
  • Kelirae24
  • Topic Author
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
More
12 years 11 months ago #28894 by Kelirae24
Replied by Kelirae24 on topic FLYING
Thanks guys I appreciate feel a little better now incase I ever wanna go somewhere and not always tied to Florida
  • karenr
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  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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12 years 11 months ago #28925 by karenr
Replied by karenr on topic FLYING
If you are prone to nosebleeds, you may want to fly with nose sprays to keep your nostrils moist in an air-conditioned cabin.
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12 years 10 months ago #29405 by kentot
Replied by kentot on topic FLYING
yes i think there is no harm in flying even with low platelet as long as you dont have any bleeding, i fly with platelet count of 12...
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12 years 10 months ago #29410 by eklein
Replied by eklein on topic FLYING
I remember reading here years ago that at very low counts you could have problems with small vessels in ear bleeding due to the pressure.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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