Platelet Disorder Support Association
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Platelet Disorder Support Association

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  • Home
  • Patients & Caregivers
    • Disease Information
      • Newly Diagnosed
      • Understanding Your Diagnosis
      • ITP in Adults
      • ITP in Children & Teens
      • Pregnancy & ITP
      • ITP & Genetics
      • Living with ITP
      • Treating ITP
      • Diet & Lifestyle
      • Getting Quality Care
      • Clinical Trials
      • ITP Registry
      • COVID-19 & ITP
      • When It’s Not ITP
    • Support Resources
      • PDSA Support Groups
      • Discussion Group
      • ITP Conference
      • Personal Stories
      • Poke-R Club for Kids
      • Patient Bill of Rights
      • Assistance Programs
      • College Scholarship Program
      • Caregiver Support
      • Volunteer Spotlight
    • Education Resources
      • Free Booklets
      • ITP INSIGHTS Webinar Series
      • Journal Articles & Guidelines
      • Video Insights
      • Early Detection / Prevention
      • Important Outside Influences
      • ITP Conference
      • Surveys
    • ITP Awareness & Advocacy
      • ITP Awareness Month
      • Sport Purple for Platelets Day
      • Global ITP Awareness Week
      • EL-PFDD Voice of the Patient
    • PDSA Canada
  • HCP
    • Health Care Provider Resources
      • Patient Booklets
      • Intl. Consensus Report on ITP
      • Professional PDSA Membership
    • Research
    • ITP Natural History Study Registry
  • Newsroom
    • PDSA Newsroom
    • ITP in the News
    • PDSA e-News
    • The Platelet News
    • Video Insights
    • Podcast
  • Support Us
    • Become a Member
    • Other Ways to Give
    • Host a Fundraiser
    • Shop The Platelet Store
    • Pump It Up For Platelets!
  • Mission
    • Who We Are
    • What We Do
    • Why We Need Your Help
    • Our History

Hematologist Support

Hematologist Support


Hematologist Communication

hematologist_comm


Individual Treatment Philosophy

ind_treatment_phil


Platelet Counts

Platelet Counts


Symptoms

Symptoms


Gender

Gender


Age at Diagnosis

Age at Diagnosis


Result 2 - Cytoxan, Cyclosporine, IVIG, Danazol

 

Selected Treatment Results



CYTOXAN5.68% CYCLOSPORINE3.17% IVIG51.97% DANAZOL14.19%
 Platelets   Platelets   Platelets   Platelets 
  › Some59.62%   › Some62.07%   › Some84.66%   › Some54.62%
  › Sustained17.31%   › Sustained24.14%   › Sustained18.07%   › Sustained13.85%
 Bleeding   Bleeding   Bleeding   Bleeding 
  › Some61.54%   › Some65.52%   › Some72.89%   › Some53.85%
  › Normal25.00%   › Normal34.48%   › Normal37.18%   › Normal18.46%
 Side Effects   Side Effects   Side Effects   Side Effects 
  › Some73.08%   › Some62.07%   › Some57.35%   › Some76.15%
  › Severe11.54%   › Severe17.24%   › Severe11.55%   › Severe20.77%

 

 

Result 3 - Prosorba, Rituxan, Splenectomy, Vinca Alkaloids

 

Selected Treatment Results



PROSORBA*1.42% RITUXAN3.28% SPLENECTOMY35.63% VINCA ALKALOIDS9.40%
 Platelets   Platelets   Platelets   Platelets 
  › Some53.85%   › Some60.00%   › Some69.63%   › Some54.65%
  › Sustained30.77%   › Sustained13.33%   › Sustained40.80%   › Sustained10.47%
 Bleeding   Bleeding   Bleeding   Bleeding 
  › Some61.54%   › Some53.33%   › Some65.44%   › Some48.28%
  › Normal23.08%   › Normal10.00%   › Normal39.76%   › Normal16.09%
 Side Effects   Side Effects   Side Effects   Side Effects 
  › Some53.85%   › Some53.33%   › Some43.56%   › Some75.58%
  › Severe7.69%   › Severe3.33%   › Severe4.91%   › Severe26.74%
           


* NOTE: The Prosorba Column is no longer recommended for the treatment of ITP.

 

Result 4 - Acupressure, Acupuncture, Vitamin C, Vitamin K

 

Selected Treatment Results



ACUPRESSURE2.18% ACUPUNCTURE6.00% VITAMIN C47.93% VITAMIN K6.88%
 Platelets   Platelets   Platelets   Platelets 
  › Some30.00%   › Some30.91%   › Some34.85%   › Some26.98%
  › Sustained5.00%   › Sustained7.27%   › Sustained10.48%   › Sustained7.94%
 Bleeding   Bleeding   Bleeding   Bleeding 
  › Some35.00%   › Some27.27%   › Some32.35%   › Some31.75%
  › Normal10.00%   › Normal5.45%   › Normal11.16%   › Normal15.87%
 Side Effects   Side Effects   Side Effects   Side Effects 
  › Some0.00%   › Some12.73%   › Some7.52%   › Some1.59%
  › Severe0.00%   › Severe0.00%   › Severe1.82%   › Severe0.00%
           

 

Result 5 - Moducare, Collostrum, Chlorophyll, Reiki

 

Selected Treatment Results



MODUCARE2.62% COLOSTRUM2.29% CHLOROPHYLL5.46% REIKI4.70%
 Platelets   Platelets   Platelets   Platelets 
  › Some45.83%   › Some19.05%   › Some30.00%   › Some39.53%
  › Sustained16.67%   › Sustained4.76%   › Sustained12.00%   › Sustained9.30%
 Bleeding   Bleeding   Bleeding   Bleeding 
  › Some45.83%   › Some33.33%   › Some30.00%   › Some34.88%
  › Normal16.67%   › Normal19.05%   › Normal16.00%   › Normal18.60%
 Side Effects   Side Effects   Side Effects   Side Effects 
  › Some0.00%   › Some0.00%   › Some8.00%   › Some2.33%
  › Severe0.00%   › Severe0.00%   › Severe0.00%   › Severe0.00%
           

 

Result 6 - Magnets, Healing Touch, Blood Well/Restore Immune, Macrobiotic

 

Selected Treatment Results



MAGNETS2.51% HEALING TOUCH5.13% BLOOD WELL/ RESTORE IMMUNE3.38% MACROBIOTIC2.84%
 Platelets   Platelets   Platelets   Platelets 
  › Some13.04%   › Some21.28%   › Some61.29%   › Some42.31%
  › Sustained8.70%   › Sustained12.77%   › Sustained22.58%   › Sustained3.85%
 Bleeding   Bleeding   Bleeding   Bleeding 
  › Some13.04%   › Some36.17%   › Some61.29%   › Some42.31%
  › Normal0.00%   › Normal6.38%   › Normal35.48%   › Normal7.69%
 Side Effects   Side Effects   Side Effects   Side Effects 
  › Some4.35%   › Some0.00%   › Some0.00%   › Some15.38%
  › Severe0.00%   › Severe0.00%   › Severe0.00%   › Severe7.69%
           

 

Result 8 - Prayer, Meditation, Visualization, Psychotherapy, Positive Thinking

 

Selected Treatment Results



PRAYER40.92% MEDITATION11.27% VISUALIZATION9.86% PSYCHOTHERAPY6.36% POSITIVE THINKING37.91%
 Platelets   Platelets   Platelets   Platelets   Platelets 
  › Some48.66%   › Some43.69%   › Some42.22%   › Some24.14%   › Some41.45%
  › Sustained24.87%   › Sustained14.56%   › Sustained14.44%   › Sustained6.90%   › Sustained19.42%
 Bleeding   Bleeding   Bleeding   Bleeding   Bleeding 
  › Some49.20%   › Some43.69%   › Some38.46%   › Some24.14%   › Some43.77%
  › Normal24.33%   › Normal16.50%   › Normal12.09%   › Normal10.34%   › Normal18.84%
 Side Effects   Side Effects   Side Effects   Side Effects   Side Effects 
  › Some4.28%   › Some4.85%   › Some3.41%   › Some8.62%   › Some6.07%
  › Severe1.34%   › Severe0.00%   › Severe0.00%   › Severe0.00%   › Severe1.73%
              

 

Result 7 - Eat Right, Zone Diet, Atkin's Diet, Weight Watchers

 

Selected Treatment Results



EAT RIGHT FOR YOUR TYPE9.96% ZONE DIET1.09% ATKIN'S DIET4.81% WEIGHT WATCHERS0.76%
 Platelets   Platelets   Platelets   Platelets 
  › Some35.16%   › Some0.00%   › Some11.36%   › Some28.57%
  › Sustained12.09%   › Sustained0.00%   › Sustained2.27%   › Sustained14.29%
 Bleeding   Bleeding   Bleeding   Bleeding 
  › Some37.36%   › Some10.00%   › Some20.45%   › Some14.29%
  › Normal10.99%   › Normal0.00%   › Normal2.27%   › Normal0.00%
 Side Effects   Side Effects   Side Effects   Side Effects 
  › Some6.59%   › Some10.00%   › Some9.09%   › Some0.00%
  › Severe0.00%   › Severe0.00%   › Severe9.09%   › Severe0.00%
           

 

Result 1 - Win Rho, Imuran, Colchicine, Prednisone

 

Selected Treatment Results



WinRho27.07% IMURAN6.88% COLCHICINE*1.31% PREDNISONE75.66%
 Platelets   Platelets   Platelets   Platelets 
  › Some71.77%   › Some49.21%   › Some41.67%   › Some82.40%
  › Sustained8.47%   › Sustained15.87%   › Sustained0.00%   › Sustained19.34%
 Bleeding   Bleeding   Bleeding   Bleeding 
  › Some55.65%   › Some41.27%   › Some58.33%   › Some72.87%
  › Normal22.98%   › Normal19.05%   › Normal25.00%   › Normal33.19%
 Side Effects   Side Effects   Side Effects   Side Effects 
  › Some-51.61%   › Some52.38%   › Some33.33%   › Some92.21%
  › Severe-10.89%   › Severe9.52%   › Severe0.00%   › Severe37.66%


* NOTE: Colchicine is no longer recommended for the treatment of ITP.

 

Explanation of Treatment Result Categories

N - The number of people responding that answered "tried to use" or "currently using" for a particular treatment (Ns)

Platelets: some - The percent of Ns that answered "Moderate effect (had a moderate or short lived positive effect [on counts])" for a particular treatment or "Sustained effect (had a long term positive effect on counts) for a particular treatment

Platelets: sustained - The percent of Ns that answered "Sustained effect (had a long term positive effect on counts) for a particular treatment

Bleeding: some - The percent of Ns that answered "Some - Had some positive effect [on bleeding]" for a particular treatment or "Normal - Bleeding returned to normal" for a particular treatment

Bleeding: normal - The percent of Ns that answered "Normal - Bleeding returned to normal" for a particular treatment

Side Effects: some - The percent of Ns that answered " Mild - Minor and temporary side effects" or "Moderate - Difficult side effects" for a particular treatment or "Severe - Extreme side effects" for a particular treatment

Side Effects: severe - The percent of Ns that answered "Severe - Extreme side effects" for a particular treatment





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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
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