Platelet E-News – August 9, 2002

Contents:

  • New Medical Search Options
  • T-Shirt Sale
  • NIH Budget Approved
  • Phthalate Warnings
  • Co-Sponsors Wanted for Orphan Disease Acts
  • How much time does your intravenous (IV) therapy take? (advertisement)

 

NEW MEDICAL SEARCH OPTIONS

The new HighWire Portal allows you free access to abstracts from the 336 HighWire Journals as well as the abstracts in Medline’s 4,500 journals. You can sign up for free alerts to new content. There is a fee for some of the full text of the articles.
See: http://highwire.stanford.edu.

Alltheweb, a new search engine based in Oslo, Norway, indexes more pages than any other site (2.1 billion). Unlike other search engines, Alltheweb tries to decipher the intent of the query by analyzing language patterns and identifying common phrases. Alltheweb also updates its pages more frequently than other search engines.
See: http://www.alltheweb.com

NIH BUDGET APPROVED

The Senate Appropriations Committee approved its fiscal year 2003 Departments of Labor, Health and Human Services and Education Appropriations bill Thursday, July 18. The funding recommendation included $27.3 billion for the NIH, a 15.7% increase above FY 2002 and the final installment of the five-year plan to double NIH’s budget between FY 1999 and FY 2003.

The recommendation includes $2.8 billion for the NIH’s National Heart Lung and Blood Institute (NHLBI), $43.6 million more than the budget request and $259.8 million more than the FY 2002 appropriation. This amount includes funds to be transferred from the Office of AIDS research.

The bill includes the following comment: “Blood disorders - The Committee commends the NHLBI for its actions to establish a Transfusion Medicine/Hemostasis Clinical Research Network…” This includes ITP research.

You can view the entire appropriation on-line at
http://thomas.loc.gov/cgi-bin/cpquery/R?cp107:FLD010:@1(sr216

From ASH NewsLink July 31, 2002 www.hematology.org

PHTHALATE WARNINGS

The Food and Drug Administration (FDA) issued a statement last month recommending health-care providers limit male fetuses and boys’ exposure to di-2-ethylhexyl-phthalate, a common softener in medical devices made of polyvinyl chloride.

Phthalates are used as solvents and to make plastics more flexible. They’re commonly found in food wrap, paint, medical supplies, pesticides and nail polish. Recent animal tests have shown that the chemicals can damage the male reproductive system.

Researchers at the Centers for Disease Control and Prevention in Atlanta have detected relatively high quantities of dibutyl phthalate in the urine of young women. In an independent study by three consumer lobbying groups, 52 of 72 cosmetic products tested contained a least one of the phthalates. The groups recommend that women of childbearing age avoid using these products.

From Science News Vol. 162, July 20, 2002

CO-SPONSORS WANTED FOR ORPHAN DISEASE ACTS

More co-sponsors are wanted for upcoming legislation. To date, 20 senators have become co-sponsors of the Rare Diseases Act of 2001 (S. 1379), a bill that would encourage the development of new and better rare-disease diagnostics and treatments. More than 50 members of the House of Representatives are co-sponsoring two companion bills, the Rare Diseases Act of 2002 (H.R. 4 013) and the Rare Diseases Orphan Product Development Act of 2002 (H.R. 4014).

For a complete list of co-sponsors see http://www.rarediseases.org/nord/washington/cosponsors/

If your congressmen have not signed on as co-sponsors, you can contact them directly to encourage their participation.

From National Organization for Rare Diseases www.rarediseases.org


For information on advertising in our e-news letter contact us at pdsa@pdsa.org.

This e-newsletter is published by the Platelet Disorder Support Association, P.O. Box 61533, Potomac, MD, 20859, phone/fax: 1-87-Platelet or (301) 294-5967, web: http://www.pdsa.org/, e-mail: pdsa@pdsa.org

back to top

BBB Cleveland logo GuideStar Seal NORD Member Badge 2018THSNA logo