Neha's Story

Hi, My name is Neha. I am 25 years old, live in a small town named Hamirpur in H.P. India, and I am an ITP patient. I am not sure whether it is by birth or not but I got a major attack in 2010 during my studies. That was a major setback in my life. There was so much blood around me, not even a single opening of my body was left without blood. I was hospitalized and was referred to a big hospital, PGI, best hospital in northern India. There I was diagnosed with ITP. The doctor gave me the option of IVIg injection but I rejected that option due to my exams coming soon. So they put me on various steroids. After 6 or 7 months, I was back to my normal life. I was so glad that now I was free from that disease.

In 2013 I got married. My life was so good, just like a fairytale. I was so happy. One day in October I got petechiae on my arm. I checked my whole body and there were small bruises all over my body. I was literally shocked and told my husband about that. He immediately took me to the hospital. My platelets were checked and were only 2,000. Everything seems to be stopped in front of me. Again I was referred, this time to AIIMS, India’s best government hospital. All were in tension, my parents, relatives, and in-laws. The doctors again told me about various treatments but I refused. Then I thought of taking Ayurvedic and homeopathy treatment, but all was in vain. Nothing goes well.

Again I started prednisolone 40 mg. I am still on it now, 5 mg daily. However, my platelet count never goes above 10,000. My platelet report of 10 March 2014 was only 3,000. I’ve learned to live with it. I don’t feel any kind of symptom like weakness or anything. I do each and every kind of household work including cooking. It’s just if you feel good, everything will be good. Daily I search on the Internet for new medicine or therapy. I used to read about various exercise, yoga and all necessary stuff. I don’t know what will happen when I stop taking steroids. Now it’s just be positive and hope for the best. For me it’s like a fever or cold, which comes and goes. Maybe my story will be helpful to another patient. -- Neha


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