NORD’s 2019 Living Rare, Living Stronger Weekend

Group with Leadership AwardThe Living Rare, Living Stronger NORD Patient & Family Forum was held on June 21-23 in Houston. More than 500 people attended the weekend event, which was filled with educational opportunities, as well as plenty of sharing of stories, networking and bonding, and fun.

PDSA was highlighted at the event as the recipient of the 2019 NORD Abbey S. Meyers Leadership Award for the organization’s impact in the fight against rare diseases. “It is truly an honor to be recognized by NORD and the 280 rare disease organizations they represent,” said Caroline Kruse, President and CEO of PDSA. “We are grateful for our partnership with NORD, which has enabled us to advance our mission and make a difference in the lives of ITP patients through our ITP Natural History Study Registry and research program.”

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