I have been stable on 25 mg of Promacta for about 5 years. However, I really want to have a baby. I am steroid resistant, rituxin resistant and IVIG stopped working after the 8th time. I found a great hematologist willing to work with me. He is having me go to promacta every other day for a month to see where my counts are. If my counts are ok he will try to take me off Promacta and see where my counts are. Has anyone else been able to go through a pregnancy being steroid and ivig resistant?
Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006.
Last Count - 344k - 6-9-18
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How are your counts on the 25 mg's of Promacta?
There have been women here who have had low counts with no response to any meds who have successfully had babies. They had a good, high-risk OB who worked with their Hemo and got them through it. I'd find the OB first and speak to him/her before getting pregnant. You may have to forego an epidural but having done it twice myself (by choice), it's not that bad.
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