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Very low counts and very light periods

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6 years 8 months ago - 6 years 8 months ago #59980 by Bflorovito
Very low counts and very light periods was created by Bflorovito
Hi everyone! I've had ITP for about 3 months now. My counts right now are at 8. I currently have my period and it is EXTEMELY light. It has been lighter than even before I got ITP. Each month seems to be lighter than the one before.

I thought that ITP was supposed to have heavy periods with low counts. It doesn't make sense to me. Would anyone know the reason behind this? Am I just lucky? Any thoughts would be greatly appreciated!!

EDIT: I am 100% NOT pregnant.

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  • binarychick12
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  • https://kirstensjourney.wordpress.com/
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6 years 8 months ago #60137 by binarychick12
Replied by binarychick12 on topic Very low counts and very light periods
I think you are just lucky. Take care of youself, 8 is very low. Are you the hospital? Are you getting treatment?
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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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6 years 8 months ago #60142 by Sandi
Replied by Sandi on topic Very low counts and very light periods
How old are you? Any chance of menopause?
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6 years 8 months ago #60160 by Bflorovito
Replied by Bflorovito on topic Very low counts and very light periods
I'm 23! So I really hope it's not menopause. However, I just started NPlate two weeks ago after a failed rituxan course. After my first shot, my counts went up to 21. After the second, they went down to 18. My doctor didn't seem too concerned though. I get my counts rechecked along with my third shot on Wednesday. We'll see how it goes!

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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6 years 8 months ago #60164 by Sandi
Replied by Sandi on topic Very low counts and very light periods
Nope, probably not menopause!

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  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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6 years 8 months ago - 6 years 8 months ago #60166 by Hal9000
Replied by Hal9000 on topic Very low counts and very light periods
Bflorovito, is your doc starting you out on the normal low Nplate starting dose level of a '1' ? That is, 1 micro-gram per kilo-gram of body weight.

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6 years 7 months ago #60299 by Bflorovito
Replied by Bflorovito on topic Very low counts and very light periods
Hi! She started me out at 2 mg/kg. However, the highest my counts went with that after 4 weeks was 21. So she increased it to 4 mg/kg. Hopefully this will get it to around 50!

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  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
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6 years 6 months ago #61050 by Kelirae24
Replied by Kelirae24 on topic Very low counts and very light periods
I've had my period as low as 3 and sometimes they're light other months if I have a cold and my platelets are low I won't stop bleeding it doesn't happen often but I usually get admitted until they calm the bleeding down with ivig and megesterol

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