My name is Heather. I am 27 years old, and was diagnosed with ITP in January 2012.
I want to share my success story with anyone who may need encouragement for seeking alternative treatment for ITP.
To start off, let me give you a brief summary of my life leading up to my condition. I've been told that stress is related to ITP or can worsen it. In 2011, I had the most stressful year of my entire life, that I can ever remember! We relocated from IN to TX for my husband's work, bringing our 2 small children with us. There was stress from the move, selling our old house, looking at new houses, depression from the move, etc. It had proven to be a stress-packed year for us.
In January 2012, I noticed one day that I had developed a blood blister in my mouth. During the next few days it began to spread across my cheeks and eventually my face, lips and stomach as well. I went to the dentist (haha) not sure what to do. He immediately sent me packin to the doctor for blood work. While waiting on blood work results, the doctor sent me home! (Can you believe this guy?!) I started to feel very uneasy as I was talking to other people about the symptoms. My sister-in-law prodded me to the ER. They found my platelets were at 2.
At the hospital (11 days), I went through all the common things that doctors make you go through with ITP (platelet transfusions, IVig, bone marrow biopsy, steroids, etc). This was my first visit to the hospital (other than childbirth) and I was terrified! The doctor pushed Xanax on me- probably for her benefit! Ok, so I officially have ITP at this point... Steroids were not successful, IVig was very effective temporarily.
After leaving the hospital with the understanding of: "You have an auto-immune disease; We don't know how you got it, and we don't know how to fix it".. I could not swallow this! I just knew that it was caused by something I was doing commonly everyday without realizing it. My husband and I spent every day for the next few months researching the internet, talking to people, seeking alternative treatments, experimenting with vitamins, different diets, stool sample testings, homeopathic doctors, naturopathic doctors, allergy doctors, etc. We were like machines at work on this! There was no way I wanted to live my life without answers- or without my God-given spleen.
So, after much prayer, the Lord put a lady in my path while shopping at an organic food store in Beaumont, Tx. I told her about my diagnosis and she made mention of a Naturopathic doctor in Houston, Tx who helped her cure breast cancer. I was determined to find alternative treatments rather than what the hematologist had planned. I was also desperate to keep my spleen!
At this point, I had already received another IVig (outpatient) which brought my platelets up to 200+. However, it was a temporary fix, just like before. My platelets were dropping at a rate of 10,000 per day. My next infusion was scheduled for 3 weeks.
So I called the Naturopathic doctor and requested a hair analysis packet. She uses a forensic hair analysis to determine imbalances and overexposures. After running the lab, she was very excited having read my results- she couldn't wait to see me. This lady was very confident and assuring about helping my condition. So off to Houston..
After arriving at her office, we found that she has treated some of our Olympic athletes; including one who won the gold metal after receiving treatment from her (He gave her one of his gold metals for appreciation!) She was very impressive, to say the least. I was handed a book that detailed every part of my cellular structure and the levels of 21 minerals and toxic metals that were screened in my hair sample.
1. Presence of aluminum (deodorant, bakeware, etc)
2. Calcium, magnesium, sodium, potassium, iron, etc. deficiency
3. Overloaded with Manganese, heavy metal. (which we found in our well water afterwards)
4. Candida overgrowth
After a 4 hour discussion of my results, the doctor gave me practical and very simple guidelines to follow to stabilize my body. Her approach to health is this: All disease is derived from an imbalance in the body. Fix the imbalance and your body will fix itself. More importantly, she believes that Jesus Christ is the true source of healing.
I was put on a high-protein, low sugar, lower carb, high vegetable, all organic diet. This was the most difficult for me!(My regular diet included sweets, peanut butter, bread, whole milk, sweet yogurt, fruits, etc.) I was put on 10 different vitamin supplements to balance my deficiencies. ( Including high potency vitamin c, multi-vitamins, adrenal boosts, etc.) She wanted me to start probiotics to fight the candida overgrowth and to continue taking MagO7, which is a natural laxative. She also wanted me to filter my well water, rest periodically throughout the day
and most importantly: Stop stressing!
I went home from that visit and immediately started the vitamins and diet. After one week, I went to my hematologist who was expecting my platelets to be bottomed-0ut. Much to her surprise, my platelets were at 192 and the Win Rho returned to sender! At this point, I didn't say anything about my new diet or supplements. She scheduled me again for 4 weeks. At the next appointment 4 weeks later, treatment was not necessary again, as my platelets were 178. My hematologist was speechless. Almost 5 months later, continuing the vitamin supplements and diet plan, my platelets are still on the rise @ 231,000.
Before I give all the credit to the blessed Naturopathic doctor, I want to say that with Christ, anything is possible! I have cried out in prayer to Him and have been put on prayer chains at churches in 4 different states! I give Him the credit, the praise and the thanks, first and foremost.
If anyone else has a story kinda like mine, and would like to check out this doctor in Houston, I can email you the number. (She is unlisted) A hair sample must be mailed in and she can do appointments over the phone. She is not cheap, but worth every penny. Also, don't pay any mind if your doctor laughs at you while seeking alternatives; prescription drugs are all they are taught in medical school. God Bless you and thanks for reading!
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Heather - sounds great. I hope it continues to work for you and this is the answer to your ITP. I have taken my son to a homeopath to find that balance. He did go into remission but I can't say it was from that. I did change his diet and tried to eat better and we did do some treatments with him. Maybe it was all the above or just his time. I also believe in the imbalance and to balance the body. I think though sometimes the road there is not always clear. I am glad that yours is working and I hope that I can also find the correct road for my son. It is hard because my husband is a saboteur and won't stick to any diet for my son and I have since went back to work and depend on him. Of course, my son is 16 now and we have talked about him taking charge of his own diet. Ought to be fun. I pray for your continued health. Peg
Your success is great to hear. Some of the issues you faced sound familiar. I have had ITP since the late 80s. I think heavy metal exposure in industrial settings was an environmental factor that likely caused the ITP initially. I had my spleen removed in '94 and that was a success. But last year I had a serious relapse and I could not get off prednisone. Like you, I did some research and went head long into a very strict diet regime with supplements and probiotics. It turns out that I had a gluten intolerance that I was unaware of. I also had a Candida problem which I still to this day have to manage with probiotics and a low sugar diet.
In my case I used Reiki for the healing part and to restore the balance within my body. I got the idea to try it from Joan Young's book.
Today I continue with the diet and Reiki monthly. I have never been healthier and my bloods are very stable. My energy levels are very good. I have posted my experience in this Natural Treatment Methods forum.
One final comment. You mentioned stress and how this was brought on by your move last year. We have moved internationally three times and on each occasion I developed ITP symptoms. Moving to a foreign country, where everything is very new, brings about a lot of stress. I realized years ago that stress is definitely a trigger. You don't learn this through books or your family doctor. You figure it out after having ITP for so long. I wrote a not so brief ITP history here:
Sticking to a strict diet is very difficult, even for a mature adult! I believe that diet has a lot to do with all health conditions, including ITP. Hopefully you can find something that works for him and he can stick with it on his own
Your story is more like a life journey through this battle! Wow.. I should have been asking you all the questions! And I now realize how fortunate I am to have found something that works for me so quickly.
I definitely agree with you about stress relating factors. It causes the immune system to be weakened. And if you are suffering from(ex candida overgrowth) this would allow for it to "take charge" in your weakened state. (that's just my theory)
I am very interested in Reiki.. Will be looking into that soon. I've heard of other people having great results from it too. I'm glad you reminded me of that.
I hope your health continues on the up and up! There are a lot of good success stories out there that can give ideas and more information to consider. My favorites of course are the ones that don't involve drugs and medical intervention (much less frightening)
One more thing- I completely agree about the gluten intolerance being linked to many auto immune diseases. I forgot to mention that my diet also restricts gluten. I haven't officially been tested for gluten intolerance though. However, since I've been on the diet for some time now, if I try and squeeze in a little gluten it does NOT settle well with my body. Giving up gluten is a small price to pay to have your health! Wouldn't you agree?!
Also, I've only been eating organic meats, and if I try to eat something that isn't organic (ex grilled chicken from chick-fil-a) it causes a migraine headache. That may not be a cause for ITP, but definitely makes you think!
I am TOTALLY convinced that my ITP was caused by Candida yeast overgrowth! (accompanied with poor diet, high sugar levels and stress). I am still taking the most potent probiotics (Garden of Life) @ 6 per day. My platelets are on the rise since March and now @ 223,000.
My naturopath says that Candida overgrowth mimics symptoms of 40+ diseases in America; including ITP.
I can't help but think there is someone else like me who needs this info. I just want to shout it from the rooftop
Awesome story Heather and to God be the glory!!!!!. I have been treating with homeopathy for a while now. I did try the gluten free diet temporarily for a while but it didn't do much for me and I felt so deprived. You have raised a light bulb in me about candida. I have suffered from candida overgrowth since I was a baby in the form of reccurent oral thrush. Doctors only treat Candida when it shows up but they never get to the root of the problem. That could be the culprit of this ITP that I've been dealing with for 2.5 years. How expensive is the naturpath you saw?
"With man this is impossible, but not with God; all things are possible with God." - Matthew 19:26
Glad to see things are so strong with you. I think we are on the same path and I continue to learn about my ITP and what works. I am still gluten free and your comments resonate with me 100%. My gut feels so much better since I went gluten free over a year ago now. And when I consume even a small amount of gluten, I immediately notice the discomfort. I have also learned of many food alternatives and strategies to make gluten free living palatable.
As for Candida overgrowth, I still battle with it using high potency probiotics (I currently take Super Bifido Plus Probiotic - Udo's Choice 61 billion per capsule) and a low sugar diet. I am able to keep the oral thrush at bay and when I don't do the above, I get into trouble within days.
My naturopath suggested that Candida could potentially impact ITP significantly. I don't think she could point to any research, but she believed that the presence of excessive yeast can promote the production of platelet antibodies.
The bottomline is I am a new person since last year and the steps I have taken have improved my health 100%.
I relate to your story that something has to be the cause of low platelets.
May I ask a few questions as follow up as I am going to see a naturopathic doctor shortly and I want to be prepared.
1. Did you have any other follow up testing methods besides the hair analysis for deficiencies and Candida Overgrowth?
2. I currently eat a high sugar/carb (fruits, breads, etc) low protein (no red meat) diet. (Not good I know.) You spoke of your high-protein, low sugar, lower carb, high vegetable, all organic diet. Could you tell me an example of what your meal plan looked like. Did you still ate a lot of fruits and what protein source did you use?
John, were you tested for gluten intolerance by a medical doctor or a naturopathic doctor?
I sent off for a stool analysis- sounds crazy I know- and it reported Candida overgrowth.. But I was looking for other possible causes that might be found in a sample. I don't necessarily recommend one.
Attachment protein list 001.jpg not found
The things in blue at the bottom are just my notes- things to remember I can have (bean wraps, chicken salad)
My diet is "every man's dream" in my opinion. It includes high proteins: beans, eggs, fish, natural peanut butters, nut butters, organic chicken, lean red meats, game meat. I can have: barley, buckwheat, oats, quinoa, brown rice, rye, millet, grits, wheat tortillas organic, sour dough bread WITH proteins, not alone. I can also have moderate amounts of fruit, 100% fruit juice, applesauce organic, 100% fruit jelly, maple syrup, low sugar protein drinks, very dark chocolate, molasses and honey in combination with proteins. Also, unsweet yogurt, swiss cheese, feta cheese and olive/coconut and butter, stevia.
OK, what I cannot have: cakes, candy, cool whip, glucose/sucrose/fructose/table sugar, white rice/bread, artificial sweetners, processed cheese, pork, shellfish, mushrooms, commercial peanutbutter, margarine, etc.
I no longer have any gut problems- no nausea, fatigue, constipation. I have lost weight, feel great and have my energy back. This diet was hard for me because I LOVE bread and sweets, but I think that there is a lot of potential in this list- I have a recipe for mock "cheesecake" using yogurt and stevia, and I get creative using the other items on the list. It does include a lot of fats, so this is a fairly temporary diet. I go next Tuesday, and she is going to adjust some things for my next few months.
The main thing is the diet (limiting sugars and bread), using the bathroom regularly (with MagO7 for me) and keeping the Candida at bay with high potency probiotics.
may I have the contact number for this Nauropathist? I've gone to see one here in Montreal, Canada but after one visit she hasn't replied for months. I have a brother in Houston, so I could easily travel there and visit the Nauropathist. Congrats on the results!
My name is Louis. I am 39 years old, and was diagnosed with ITP in January 2007 and have just joined this forum.
I want to share my story with anyone so far as I'm seeking alternative treatment for ITP.
I have been on every single drug out there including nplate, which almost destroyed my life. The drug caused me to loose my sense of smell, severe sinuses and block nose for months. I have been off the nplate drug since March 2013 this year and my block nose are much better, still suffering from block ears all the time and still can't smell. I'm GLAD some people seem to have good luck with this drug but certainly not for others!
I'm based in the UK and most doctors over here are pretty useless. All they care about is steroids and other bad drugs. They should rather focus on the route of the cause than giving people bad drugs. I wonder how many doctors who have kids suffering from all these kind of conditions would rather seeking help naturally then pumping them full of steroids or advises having their spleen remove. I won't be surprise as I have seen it on anther forum, quite interesting when it's their own families or kids.
I believe our bodies should be able to heal naturally with the help of God but also appreciate it needed a little help at times i.e. supplementation.
I'm on a healthy raw veg diet, which make such a big difference in my life, great energy improvement among other advantages probably up by 60% if not more. My platelets still vary between 4000 and 30000.
I had my second bone marrow biopsy 2 weeks ago and waiting for my results. It's really scary as they are now checking for cancer in my bone marrow and if the test is negative then they want to perform a lymph node biopsy to look for lymphoma.
I'm still keen to go down the natural route and is very interested in Heather's story on this forum. She got in contact with a Naturopathic doctor in Houston, Tx who helped her cure her ITP naturally. I was determined to find alternative treatments rather than what the hematologist had planned. I was also desperate to keep my spleen!
So I would be really grateful if anyone has come across this lady in Houston, tx to provide me with her contact details. Basically she uses a forensic hair analysis to determine imbalances and overexposures.
Heather words were her approach to health is this: All disease is derived from an imbalance in the body. Fix the imbalance and your body will fix itself. More importantly, she believes that Jesus Christ is the true source of healing.
I would really be grateful if anyone can provide me with her details and god bless everyone on this forum who still suffers from ITP so everyone including kids can be healed and if it's naturally then even better
Hi, is it possible for you to provide me with her information. My sister has ITP and she's been through almost all treatments with temporary results. We live in VA and wouldn't mind flying to Houston. Thanks in advance!!
Heather, encouraging story. I first was diagnosed with ITP in 2000, I believe, treated with various things in 2001 and 2002, but since then have been able to avoid treatment until last year, now trying to figure out what to do, currently taking low dose steroids to keep me above 10K. I believe in prayer, too. Amy
Hi Heather, I am from Singapore and my son eho is 19 months old is diagnosed with ITP in October.. he is not responding to any meds. Would like to try this naturopath.can you please help.me connect?my email id is firstname.lastname@example.org.
My phone no. Is +65 91699703.
I just read your story! I hope that this message finds you doing well and happy! My nephew is very ill and he has ITP. He is 16 yrs old and my brother and his wife are not getting much help from their doctors. They are very distraught and don't know what to do. I was wondering if you could please share your doctors name with me so that I may give it to them?
Thanks so much and I look forward to hearing from you!
Lisa did you notice that Heather has not been here in 3 years.
Why not post in the adult section under a different section besides this one and tell us about your nephew - you mention he is very ill, with what? Is he in California too? What is his platelet count? How long has he been diagnosed with ITP? Is he having symptoms? Are you saying he is very ill with ITP?
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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