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Fostamatinib/Avatrombopag combination is now Avatrombopag only

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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11 months 3 weeks ago - 11 months 3 weeks ago #73341 by mrsb04
Replied by mrsb04 on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
It was 30 Mel but I'm not worried. I have recently sustained a hamstring injury which has thrown me out of kilter completely. Spoke to a lovely registrar yesterday who said "30 is fine by me, you have no symptoms so let's not chase the count. Carry on as you are and retest in a week. Hopefully it is just the shock and stress of the injury causing it. If not then we will think about about gently tweeking your Avatrombopag dose." 

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11 months 3 weeks ago #73342 by CindyL
Replied by CindyL on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
Oh, no, mrsb, I hope the injury isn't too severe!  And I also hope your count doesn't drop any more!
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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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11 months 3 weeks ago - 11 months 3 weeks ago #73343 by mrsb04
Replied by mrsb04 on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
Thank you Cindy it is frustrating. I am normally very active but am now restricted to pottering around the house with one 15 minute walk a day. Fortunately for the dog a lifelong friend and her hubby are happy to take him out for walks.
An exercise programme  to follow  and back at the therapist in another 9 days. 

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11 months 3 weeks ago #73344 by MelA
Replied by MelA on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
mrsb I am so sorry about your hamstring injury, that must be painful and miserable!  So glad you have good friends who are happy to get some exercise with your dog!    I sure do like what the registrar said to you yesterday about your 30k and that if need be you can "gently" tweak the dose!  Sending you good thoughts!!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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11 months 2 weeks ago #73351 by mrsb04
Replied by mrsb04 on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
Count now 49, no changes to meds. Back to fortnightly bloods. 

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11 months 2 weeks ago #73352 by CindyL
Replied by CindyL on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
That's not a bad number.  Slowly rising.  Good about the testing.
How's the hamstring injury?  That's part of the leg, right?
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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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11 months 2 weeks ago #73353 by mrsb04
Replied by mrsb04 on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
Thank you Cindy. The injury is in lower buttock and is slowly improving. Back to see the therapist tomorrow. 

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11 months 2 weeks ago #73355 by CindyL
Replied by CindyL on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
Boy, was I way off!
Glad it's getting better!  Even if it's slow going.
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11 months 2 weeks ago - 11 months 2 weeks ago #73359 by MelA
Replied by MelA on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
Ok, that 49k is still a good count for you - I'd like you to be at 60k but will take the 49k (how do you like me saying what I'd like :) ) - I'm just thrilled for you it isn't any lower mrsb!!!

Oh my, I thought a hamstring was at the back of the thigh - that would affect the bum too though wouldn't it.   I hope you are doing lots better - how was your therapist visit?   I'm battling bursitis in right hip, no fun either.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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11 months 2 weeks ago #73360 by mrsb04
Replied by mrsb04 on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
Therapist delighted with my progress. Has given me a programme to follow and only wants to see me again if I think it is necessary.

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11 months 2 weeks ago #73361 by CindyL
Replied by CindyL on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
That is good to hear, mrsb!  I hope your recovery is speedy!
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11 months 1 week ago #73362 by MelA
Replied by MelA on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
That is good news from the therapist!  Hope the home program goes well mrsb!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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10 months 3 weeks ago #73372 by mrsb04
Replied by mrsb04 on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
Hamstring has healed and platelet count is 58; promoted to 4 weekly bloods 

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10 months 3 weeks ago #73373 by CindyL
Replied by CindyL on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
That is fantastic news, mrsb!  Happy for you!
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10 months 2 weeks ago #73374 by MelA
Replied by MelA on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
Way to go mrsb - great news!!!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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9 months 2 weeks ago #73393 by CindyL
Replied by CindyL on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
How are your counts, mrsb?

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  • mrsb04
  • Topic Author
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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9 months 2 weeks ago #73394 by mrsb04
Replied by mrsb04 on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
Hi Cindy,
Thank you for asking, 23 last week but asymptomatic and full of cold so no dose change at the moment. Back to clinic the week before Christmas.

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9 months 2 weeks ago #73395 by CindyL
Replied by CindyL on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
Oh no, hope you get over the cold fast.  Good that you are asymptomatic.  Hope your next test is a good one!
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9 months 2 weeks ago #73396 by MelA
Replied by MelA on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
Sorry you have a cold mrsb - those are hard to get rid of sometimes.  23 isn't a bad count for you - hope it goes up though with your next count!!   Take care & hope you are better soon.  Have missed you.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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9 months 1 week ago - 9 months 1 week ago #73399 by ImPatient
Replied by ImPatient on topic Fostamatinib/Avatrombopag combination is now Avatrombopag only
Good luck they will increase again Mrsb04
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