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Fostamatinib/Avatrombopag combination is now Avatrombopag only 5 months 2 weeks ago #73341

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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It was 30 Mel but I'm not worried. I have recently sustained a hamstring injury which has thrown me out of kilter completely. Spoke to a lovely registrar yesterday who said "30 is fine by me, you have no symptoms so let's not chase the count. Carry on as you are and retest in a week. Hopefully it is just the shock and stress of the injury causing it. If not then we will think about about gently tweeking your Avatrombopag dose." 

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Fostamatinib/Avatrombopag combination is now Avatrombopag only 5 months 2 weeks ago #73342

  • CindyL
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Oh, no, mrsb, I hope the injury isn't too severe!  And I also hope your count doesn't drop any more!
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Fostamatinib/Avatrombopag combination is now Avatrombopag only 5 months 2 weeks ago #73343

  • mrsb04
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Thank you Cindy it is frustrating. I am normally very active but am now restricted to pottering around the house with one 15 minute walk a day. Fortunately for the dog a lifelong friend and her hubby are happy to take him out for walks.
An exercise programme  to follow  and back at the therapist in another 9 days. 

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Fostamatinib/Avatrombopag combination is now Avatrombopag only 5 months 2 weeks ago #73344

  • MelA
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mrsb I am so sorry about your hamstring injury, that must be painful and miserable!  So glad you have good friends who are happy to get some exercise with your dog!    I sure do like what the registrar said to you yesterday about your 30k and that if need be you can "gently" tweak the dose!  Sending you good thoughts!!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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Fostamatinib/Avatrombopag combination is now Avatrombopag only 5 months 1 week ago #73351

  • mrsb04
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Count now 49, no changes to meds. Back to fortnightly bloods. 

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Fostamatinib/Avatrombopag combination is now Avatrombopag only 5 months 1 week ago #73352

  • CindyL
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That's not a bad number.  Slowly rising.  Good about the testing.
How's the hamstring injury?  That's part of the leg, right?
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Fostamatinib/Avatrombopag combination is now Avatrombopag only 5 months 1 week ago #73353

  • mrsb04
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Thank you Cindy. The injury is in lower buttock and is slowly improving. Back to see the therapist tomorrow. 

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Fostamatinib/Avatrombopag combination is now Avatrombopag only 5 months 6 days ago #73355

  • CindyL
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Boy, was I way off!
Glad it's getting better!  Even if it's slow going.
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Fostamatinib/Avatrombopag combination is now Avatrombopag only 5 months 4 days ago #73359

  • MelA
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Ok, that 49k is still a good count for you - I'd like you to be at 60k but will take the 49k (how do you like me saying what I'd like :) ) - I'm just thrilled for you it isn't any lower mrsb!!!

Oh my, I thought a hamstring was at the back of the thigh - that would affect the bum too though wouldn't it.   I hope you are doing lots better - how was your therapist visit?   I'm battling bursitis in right hip, no fun either.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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Fostamatinib/Avatrombopag combination is now Avatrombopag only 5 months 4 days ago #73360

  • mrsb04
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Therapist delighted with my progress. Has given me a programme to follow and only wants to see me again if I think it is necessary.

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Fostamatinib/Avatrombopag combination is now Avatrombopag only 5 months 3 days ago #73361

  • CindyL
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That is good to hear, mrsb!  I hope your recovery is speedy!
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Fostamatinib/Avatrombopag combination is now Avatrombopag only 5 months 6 hours ago #73362

  • MelA
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That is good news from the therapist!  Hope the home program goes well mrsb!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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Fostamatinib/Avatrombopag combination is now Avatrombopag only 4 months 1 week ago #73372

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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Hamstring has healed and platelet count is 58; promoted to 4 weekly bloods 

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Fostamatinib/Avatrombopag combination is now Avatrombopag only 4 months 1 week ago #73373

  • CindyL
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That is fantastic news, mrsb!  Happy for you!
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Fostamatinib/Avatrombopag combination is now Avatrombopag only 4 months 1 week ago #73374

  • MelA
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Way to go mrsb - great news!!!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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Fostamatinib/Avatrombopag combination is now Avatrombopag only 3 months 5 days ago #73393

  • CindyL
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How are your counts, mrsb?

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Fostamatinib/Avatrombopag combination is now Avatrombopag only 3 months 5 days ago #73394

  • mrsb04
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Hi Cindy,
Thank you for asking, 23 last week but asymptomatic and full of cold so no dose change at the moment. Back to clinic the week before Christmas.

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Fostamatinib/Avatrombopag combination is now Avatrombopag only 3 months 4 days ago #73395

  • CindyL
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Oh no, hope you get over the cold fast.  Good that you are asymptomatic.  Hope your next test is a good one!
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Fostamatinib/Avatrombopag combination is now Avatrombopag only 3 months 3 days ago #73396

  • MelA
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Sorry you have a cold mrsb - those are hard to get rid of sometimes.  23 isn't a bad count for you - hope it goes up though with your next count!!   Take care & hope you are better soon.  Have missed you.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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Fostamatinib/Avatrombopag combination is now Avatrombopag only 2 months 4 weeks ago #73399

  • ImPatient
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Good luck they will increase again Mrsb04
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Fostamatinib/Avatrombopag combination is now Avatrombopag only 6 days 16 hours ago #73485

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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Oh the IT roller coaster rolls on. Latest count was 15 last Thursday on 20mg Avatrombopag 2 days on 1day off. Yesterday increased  to 3 days on 1 day off, then 2 days on 1 day off and retest in 3 weeks. 

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Fostamatinib/Avatrombopag combination is now Avatrombopag only 5 days 20 hours ago #73486

  • CindyL
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Thanks for the update, mrsb!  I've been wondering how your counts were.
The 15 sucks!  Hopefully they are up in 3 weeks!
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Fostamatinib/Avatrombopag combination is now Avatrombopag only 4 days 4 hours ago #73487

  • MelA
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Darn it mrsb - I'm really sorry to hear you last count!  I don't like roller coasters, wish you could get off of yours and at a decent count!!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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