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High dose dexamethasone
- dru
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- I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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- Hillary3
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but I have a 3 month old so it’s hard to say if it it’s med related or new mom related haha. This is my first itp treatment my levels were at 20. Hope you have minimal side effects and meds help. I go back in Tuesday to see if dex dose is helping.
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- mrsb04
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- ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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Fatigue is a known problem with autoimmune conditions.
Insomnia and fatigue are both side effects of high dose steroids. You must be wiped with a 3 month old too.
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- dru
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- I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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I hope the dex is helping you, it did nothing for me. Then I had IVIG which made me pretty sick. Now on prednisone which usually works for me. The steroids can give you insomnia and fatigue. But having a 3 month old would definitely cause that!
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"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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- Lman
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- We cannot change the cards we are dealt, just how we play the hand.
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Sorry to hear you relapsed. Hope you get back to high levels soon!
Dex pulses are a sort of treatment to my knowledge. I have not got them as an outpatient and they were always used in case I were hospitalized for bleeding.
Problems for me were gas, insomnia, euphoria, and muscle cramps, especially behind my legs. I think Ativan may help manage high-dose steroid side effects (ask your doctor since it requires a prescription). Also walk regularly to help with the cramps. I never achieved remission on those but some people got good results with them.
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