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nplate and rituxan questions

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4 years 4 months ago #68061 by freckles
nplate and rituxan questions was created by freckles
after 18 years of never having treated, with counts between single digits and 20, i am probably ready to try rituxan.
so a couple of questions...
those of you on medicare, is it being covered?
if you look up the side effects, they're pretty horrible, what is the real worled experience with it?
if in my own mind if i am sure i have a fungal infection (i have severe ibs and symptoms seem to correspond to some sort of infection), should i be doing rituxan?

thanks
freckles

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4 years 4 months ago #68062 by CindyL
Replied by CindyL on topic nplate and rituxan questions
Freckles, one thing to remember is that we are all different. When I did my Rituxan, I had no issues before or after and nothing during the infusion. My counts started going up with the first dose. I figure I am a lucky one, considering what I read about others' experiences with it.
As for the infection, you should talk to your doctor(s) about doing the Rituxan

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  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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4 years 4 months ago - 4 years 4 months ago #68074 by Hal9000
Replied by Hal9000 on topic nplate and rituxan questions
freckles, perhaps this thread will help you.
"Considerations with starting Rituximab?"
pdsa.org/discussion-group/7-treatment-general/30397-considerations-with-starting-rituximab.html#67035

Do you know if you respond to steroids? If you don't, Rituxan is likely a waste of time. Since you are living with ITP with low counts and without bleeding symptoms, my guess is that you do not respond to steroids. But, my guess is only based on probability. So don't really know.
ITP Types and Treatments by HAL

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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