I know one of the possible side-effects of Promacta is muscle pain. Has any of you Promacta users suffered from this? If so, where and how long? I've developed pains in my upper arms--below my shoulders--that don't seem to be connected to my swimming or other activities.
Karen, I have upper arm pain too. But it started long before I was diagnosed with ITP. I've never mentioned it to a doctor because the pain is inconsistent, comes and goes, and not that bad. I finally spent some time trying to figure out what it might be. The best I could come up with was 'Polymyositis'. Here is the Wiki article on it.
For me, this is the part most relevant.
... Sometimes the weakness presents itself as ... an inability to raise one's arms above one's head.
Does that describe what you are experiencing?
Thanks, Hal, for responding. I can move my arms fine--most of the pain, ironically, comes when I try to sleep on my side--either side. Sometimes during the day I have serious pain there too--and then it disappears. I'm swimming a little less now as my arms do start to bother me after I do so many laps. I've not noticed, on this forum, that anyone has complained of Promacta-caused muscle pain.
Yes. Sleeping on my side seems to make it worse. LOL, that was the tip I was going to follow up post back to you. But then, sleeping on ones back can be a problem in terms of 'sleep apnea'. Also, stretching seems to help.
I think, in that quote, what they were trying to say is raising one's arms causes pain - which is very odd in an anatomical sense.
On a side note. Since I've started taking Danazol all arm muscle pain has gone away. I suspect if I stop taking it, the pain will eventually come back. On Wiki it talks about how steroids are a first line treatment for Polymyositis.
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