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TOPIC: In hospital :(

In hospital :( 5 years 7 months ago #36386

  • amberyard
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7k this morning 8k after Rituxan and 1k after platelets. So I am in the hospital until my counts get to save zone. Got another round of platelets and IVIG's soon then CBC. Head a nose bleed for 17 hours, bruising everywhere and red spots all over my feet (so far).
diagnosed 4/12

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In hospital :( 5 years 7 months ago #36390

  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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Sorry to hear this Amber. You had dex too, right? So hopefully your counts will go up right away. Thinking of you.

Dru

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In hospital :( 5 years 7 months ago #36393

  • amberyard
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This is my 3rd day on dex..
diagnosed 4/12

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In hospital :( 5 years 7 months ago #36405

  • amberyard
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Finally getting my 3rd bag of platelets!
diagnosed 4/12

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In hospital :( 5 years 7 months ago #36410

  • Jacchab
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So sorry to hear this Amber. Sending you all my best wishes. Hopefully platelets will start to rise.
:kiss:

Jac
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In hospital :( 5 years 7 months ago #36416

  • amberyard
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Just started my 3rd IVIG's will get re count in am. Doc said if numbers are close to 20k should be able to go home. Finger and toes crossed...
diagnosed 4/12

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In hospital :( 5 years 7 months ago #36423

  • amberyard
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Got a double dose of platelets today they checked it three times 29,29,30 so I am going home. Just waiting on discharge papers so I can go home good thing my car is here....
diagnosed 4/12

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In hospital :( 5 years 7 months ago #36455

  • Slammed
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Amber,

I'm sorry to hear this. Glad to hear that you're able to go home. It just seem that you can't get a break from ITP. I hope that rituxan will work again for you. You really need a breather from all of this.

Please keep up your spirits.

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In hospital :( 5 years 7 months ago #36487

  • amberyard
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Counts at 7k today had more platelets and steriods I have an appointment with doctor at 8:30am. Rituxan is set for Wednesday the second round but I don't know what to think.husdand says I look really white.
diagnosed 4/12

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In hospital :( 5 years 7 months ago #36500

  • amberyard
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Counts at 8k this morning. Had a nice long talk with the doctor. Since I am not responding to any of the treatments. Taking my spleen out wouldn't help I would be in the same boat after the surgery. As of the Platelets and Steroids (given 3 days in a row) is the standard to get things jumped started. I am staying on the Rituxan for the 4 rounds (3 more to go) and may add other Chemos on top of it. He said I'm the small % that a lot of treatments do not work, and if I got the spleen out it would be days or months then I would be doing the treatment that we are going with now. So no point in getting it out, also getting vaccinations today just in case of an emergency (bleeding out) and have no choice but to get it out. Also we have given the treatments time to work, like the promacta I was on it almost 3 months and only suppose to be on 2 weeks to see if it will work. N-Plate the side effect were horrible on me and my family.
diagnosed 4/12

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In hospital :( 5 years 7 months ago #36503

  • belydncrck01
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I am so sorry honey. I am keeping you in my prayers. I know it is scary, but remember we are all here to love and support you. Please keep us posted! lighting a candle for yeah B)
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In hospital :( 5 years 7 months ago #36504

  • dru
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Sorry to hear this Amber. Hopefully the rituxan will work. Thinking of you, keep us posted.

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In hospital :( 5 years 7 months ago #36516

  • MommaBee
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I would be cautious Amber of allowing them to give you IM injections for your vaccinations if your platelets are 8. I know you are under the care of physicians so they can better advise but I would be aware to ask before they give you the needles.

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In hospital :( 5 years 7 months ago #36518

  • amberyard
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Yep asked all the vaccines questions this morning since I work in the animal field and know a lot about vaccinations. They are all killed vaccinations.
diagnosed 4/12

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In hospital :( 5 years 7 months ago #36522

  • MommaBee
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I was more meaning because of the injection itself and possibility of it causing bleeding/ excessive bruising. But the non live vaccine definitely also important.

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In hospital :( 5 years 7 months ago #36523

  • amberyard
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They are IM (in muscle) so no real risk.
diagnosed 4/12

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In hospital :( 5 years 7 months ago #36548

  • amberyard
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Monday 7k, yesterday 8k and today 7k. Dex 4mg once daily until I see him again and I don't know when that is next yet.
diagnosed 4/12

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In hospital :( 5 years 7 months ago #36560

  • Ann
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With low platelets they should do injections subcutaneously rather than into the muscle. If you have bleeding in the muscle you can end up with compartment syndrome with a risk of losing the limb. (I didn't learn that from Google, but from nurse training.)
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In hospital :( 5 years 7 months ago #36571

  • amberyard
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Arms are fine from the injections and they don't hurt not running a temp. So far everything is looking good, just trying to get the platelets up. GO PLATELETS!!
diagnosed 4/12

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In hospital :( 5 years 6 months ago #36612

  • amberyard
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YESTERDAY 7K TODAY 15K.... GO PLATELETS!!!! Re check at 8:15am then to work.....Feeling good!!!
diagnosed 4/12

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In hospital :( 5 years 6 months ago #36614

  • DeeDee Marie
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Amber,

I'm praying that you will feel better soon. You have really had a rough time of it. Please take care of yourself.
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In hospital :( 5 years 6 months ago #36617

  • dru
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That's good Amber, things looking up!
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In hospital :( 5 years 6 months ago #36623

  • karenr
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Amber, what did the hospital folks do about that 17-hour nosebleed?

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In hospital :( 5 years 6 months ago #36625

  • jeffrey71
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Take care Amber! I would share half of mine if I could!

Jeffrey
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In hospital :( 5 years 6 months ago #36627

  • amberyard
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Once I started getting platelets the nose bleed slowed down. That was the only thing that helped
diagnosed 4/12

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In hospital :( 5 years 6 months ago #36634

  • amberyard
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Counts today 7K yesterday 15k..
diagnosed 4/12

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In hospital :( 5 years 6 months ago #36636

  • Melinda
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Just curious - in another thread, can't find it, you said your doctor said you were in the group where spleen removal would do no good [hope I remembered that correctly] - how was that determined?

Hope that count rebounds.

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In hospital :( 5 years 6 months ago #36640

  • amberyard
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He said that I am not responding to the medications (that works with taking spleen out) like I should. So if I take the spleen out I would be in the same boat that I am now. Having to try other medications (adding chemo on). Spleen removal would only last a couple of months if that. So taking the spleen out would only hurt me in the long run, since I am already having to try other medications (Vincristine). I got it this past Wednesday with Rituxan and will get again next Wednesday.
diagnosed 4/12

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In hospital :( 5 years 6 months ago #36641

  • Melinda
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so what he is saying since treatments you are taking now aren't working, if you had your spleen out and counts dropped those treatments wouldn't work? thanks for explaining.

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In hospital :( 5 years 6 months ago #36649

  • amberyard
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Yes so there is no point in having surgery, we are already trying everything. Plus how can they do surgery when counts are so low? I would think they would have to get them up so high so it would be safe??

and counts 7k again today and will be see the infusion center for cbc's until Thursday ( they had to change my treatment days due to the fact my doctor is off that day)
diagnosed 4/12
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