Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

ITP & Herpes

More
13 years 11 months ago #3498 by SamIAm
ITP & Herpes was created by SamIAm
Am I the only one with both? In trying to find any possible underlying causes, my hematologist suggested that the HSV virus may be the culprit behind the thrombocytopenia. I don't know how I feel about that. In addition, the virus limits my options for treatment- steroids are out due to the possibility of causing a massive outbreak. And I can no longer take Valtrex because it causes thrombocytopenia. Arg!
The following user(s) said Thank You: joeywoey

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
13 years 11 months ago #3500 by Sandi
Replied by Sandi on topic Re: ITP & Herpes
Well, any virus can trigger ITP, that part is true. Sadly, there isn't anything you can do about it.

I don't know that I'd write Valtrex off. Just because it can cause thrombocytopenia does not mean that it will make things worse for you. Antibiotics can do that also, as can any drug.

Please Log in or Create an account to join the conversation.

More
12 years 7 months ago #17843 by Moonchild_8
Replied by Moonchild_8 on topic Re: ITP & Herpes
SamIAm, you are not alone- though i hope you've found that out by now! I was just diagnosed with HSV2, and my counts definitely reflect it. It's nice to see i'm not the only soul dealing with HSV and ITP together, and i hope you've had successfull treament of both! My Nurse Practitioner put me on Valacyclovir [Valtrex], i haven't seen a problem yet! Might as well treat the HSV so that your counts stay up, right? :)
at any rate, good luck, and i hope things are going better for you!!
you gotta take the good with the bad, smile with the sad
love what you've got and remember what you had.
always forgive, but never forget
learn from your mistakes but never regret.
people change, things go wrong, but just remember:
life goes on!

Please Log in or Create an account to join the conversation.

More
12 years 7 months ago #18151 by Mjhatters
Replied by Mjhatters on topic Re: ITP & Herpes
My partner has been diagnosed with itp in 2010 and the HSv2 this Monday. She is going to see her doctor tomorrow as she is very week. I hope she is gonna be alright.

Please Log in or Create an account to join the conversation.

More
4 years 2 months ago - 4 years 2 months ago #68412 by joeywoey
Replied by joeywoey on topic ITP & Herpes
You just answered a few questions for me. I wondered whether there was a link between HSV2 and ITP. I was vaccinated for Hep b the same year through work and thought that was the cause of my ITP. And every time I'm prescribed prednisone I have a problems. You're not alone. It's a lot to digest right now but i'l come back to this thread again.
Take care, x

Please Log in or Create an account to join the conversation.

More
3 years 1 month ago #70741 by barbk
Replied by barbk on topic ITP & Herpes
I'm not sure that the drug Valtrex is the problem, but rather the HSV virus itself. In my case, I had ITP for 7 years before I contacted HSV-1 and had an outbreak. I took Valtrex for 7 days (I think) to clear it up. My platelet count before HSV was stable at 50. After taking Valtrex it went up to 126!. Within 2 months, was back to 53. So in my situation, platelets did not drop from meds.

Please Log in or Create an account to join the conversation.

More
2 years 11 months ago #71190 by Jhart17
Replied by Jhart17 on topic ITP & Herpes
So do you think the HSV caused the ITP? I think that is what happened to my husband. His platelets improved after valacyclovir as well.

Please Log in or Create an account to join the conversation.

More
2 years 11 months ago #71191 by Jhart17
Replied by Jhart17 on topic Re: ITP & Herpes
I think my husband may have the same link with HSV and ITP. Do you think that is the cause of your ITp. Do you take valtrex every day now? When I discussed HSV and ITP link with his hematologist he blew it off.

Please Log in or Create an account to join the conversation.

More
2 years 11 months ago #71192 by Jhart17
Replied by Jhart17 on topic ITP & Herpes
Thank you for sharing. Did they ever figure out if the HSV was the link to your ItP. I think the same thing happened to my husband. His hematologist blew off the idea of valtrex as a treatment but it did make his platelet count go up. I hope you are doing well. Thank you for this post.

Please Log in or Create an account to join the conversation.

Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2024, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use