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Octagam Side Effects

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1 month 2 weeks ago #73575 by Sinfoniarc
Octagam Side Effects was created by Sinfoniarc
I started Octagam (again) back in December 2023 and since then have experienced bouts of diplacusis, which is a variance of pitch (and sometimes echoing) in the ears. I know this is a long shot but has anybody else experienced this as a result of IVIG treatment?

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1 month 2 weeks ago #73576 by MelA
Replied by MelA on topic Octagam Side Effects
Never heard of Octagam - I'm assuming it is a brand of IVIg? Was this your 1st line of treatment? What is your count doing?
I've never heard of anyone saying IVIg caused a hearing problem. We feel my ITP was triggered by a gamma globulin injection
that was required by my husband's company before we could move to Tokyo.

Keep us posted as to what you find out! Good luck!

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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1 month 2 weeks ago - 1 month 2 weeks ago #73577 by mrsb04
Replied by mrsb04 on topic Octagam Side Effects
I've had IVIg twice..a complete waste of both donation and  money as did nothing either time... I was consented both times after  long discussions  re side effects, diplacusis was not mentioned either time. Have checked the UK emc and it isn't mentioned there either

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