Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1

TOPIC: I'm new here and newly diagnosed

I'm new here and newly diagnosed 3 months 1 week ago #65763

  • lovethatgrey
  • Offline
  • Posts: 3
  • Thank you received: 0
Hello all,
My name is Karen. I live in Houston, TX. I have been married to my husband David for 30 years and have two beautiful adult daughters, two cats, an African Grey parrot and a Doberman.
I have been recently diagnosed with ITP and it has just sent me into a tailspin. I only started going for annual physicals in the last 3 years because I have always been very healthy, so I thought. My low platelet count was discovered during a routine annual physical a year ago. Not sure how long my count has been low and for all I know they have been low for years and I just never knew it. I may have a beer every two weeks and I take absolutely no medications. Is low platelets a common thing?

So a year ago my platelet count was 80,000. When tested again a couple months later it was up to 100,000 but then dropped back down to 80,000. Just had a blood draw today and I am at 70,000. My hematologist has been monitoring my platelet count and does not recommend treatment unless my platelets drop to 30,000 God forbid. I feel great. No bleeding, bruising, or rashes, etc, etc.

I am curious to hear from others with similar platelet counts.

I am so worried about my count dropping to the point I need treatment. The treatment option scare the bejesus out of me. What treatment are you on, are the treatments working, how do you feel, any side effects, how long is your recommended treatment.

Any advice would be very much appreciated.

Please Log in or Create an account to join the conversation.

I'm new here and newly diagnosed 3 months 1 week ago #65765

  • Sandi
  • Away
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12447
  • Karma: 11
  • Thank you received: 2328
Hello. There are some people who have counts in your range and they never need treatment. It's just the norm for them. Your doctor is doing the right thing. Please try not to worry about having to treat; we've all been there and have managed. It's not always pleasant, but life can still be normal.
If you read through the posts, you will see the different treatments used, the responses and reported side effects.

Please Log in or Create an account to join the conversation.

I'm new here and newly diagnosed 3 months 1 week ago #65770

  • lovethatgrey
  • Offline
  • Posts: 3
  • Thank you received: 0

Sandi wrote: Hello. There are some people who have counts in your range and they never need treatment. It's just the norm for them. Your doctor is doing the right thing. Please try not to worry about having to treat; we've all been there and have managed. It's not always pleasant, but life can still be normal.
If you read through the posts, you will see the different treatments used, the responses and reported side effects.


Thank you Sandi,
I will for sure be doing some browsing around. Thanks again

Please Log in or Create an account to join the conversation.

I'm new here and newly diagnosed 3 months 1 week ago #65776

  • Hal9000
  • Offline
  • Give me all your platelets and nobody gets hurt
  • Posts: 1278
  • Karma: 10
  • Thank you received: 162
Karen, once upon a time there was a guy on here named 'weirdjack'. In one post he described the psychology of ITP with amazing clarity.
pdsa.org/discussion-group/6-general-itp-discussion/28044-does-stress-effect-your-itp.html#40943

Please Log in or Create an account to join the conversation.

I'm new here and newly diagnosed 3 months 1 week ago #65779

  • lovethatgrey
  • Offline
  • Posts: 3
  • Thank you received: 0

Hal9000 wrote: Karen, once upon a time there was a guy on here named 'weirdjack'. In one post he described the psychology of ITP with amazing clarity.
pdsa.org/discussion-group/6-general-itp-discussion/28044-does-stress-effect-your-itp.html#40943


That's pretty funny and unfortunately probably very true. I guess stress can wreak havoc in so many ways. I tell myself not to stress and I have calmed down since my diagnosis.

Please Log in or Create an account to join the conversation.

I'm new here and newly diagnosed 3 months 1 week ago #65787

  • Sandi
  • Away
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12447
  • Karma: 11
  • Thank you received: 2328
It can take some time to get used to it and to feel comfortable with it, but you will eventually if it becomes long-term.

Please Log in or Create an account to join the conversation.

  • Page:
  • 1

BBB Cleveland logo GuideStar Seal NORD Member Badge 2018THSNA logo