I was actually diagnosed around a year ago....I found out I had ITP as a result of a blood test to determine why my blood pressure had gone up....I do not have issues with bruising, no petechia, I feel fine, but my blood platelets were low....I was taking prednisone every couple of months that would bring my blood platelet numbers up, but apparently that's not working anymore, and my doctor left me a message that I need to come in and go over options for what treatment I need to do next .... I really appreciate this website, I've printed up a whole list of questions to ask my doctor (he's a hematologist) .. one question I did have is what could have brought this condition on...... and the answer confused me ... my doctor told me I've more than likely had this all my life.... it was just never diagnosed.... I am 52 years old..... I have had numerous blood tests done throughout my life ... I've given blood periodically through my life ... is it true I could have had this all that time ?? My platelet level, so far the lowest it's gotten is 21 ... but I just had a course of prednisone and it only went up to 39 ... and the last time I had a prednisone treatment it went all the way up to 139..... I will admit I'm both confused and a bit scared with my last blood platelet level....I'm so glad I found this forum....knowing I'm not alone and having all this information available to me is very comforting....
Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006.
Last Count - 344k - 6-9-18
Thank you received: 2328
Hello. I'm glad you found us. If you've had periodic CBC's throughout your life, it's unlikely that you've had ITP your whole life. It would have been discovered on the CBC's. They check that also when you give blood and would have alerted you if counts were low. ITP is very easy to diagnose because it's based on a simple CBC. How odd that he would have said that, doesn't make sense. It doesn't really matter how long you've had it. People can go through life with lower than normal counts and never know it unless they have symptoms (bruises, petechiae, bleeding) or have a CBC. Since you had no symptoms, your counts were either in a safe range or your body was handling low counts well.
ITP can be triggered by many things. Medications, (including antibiotics), an illness, a supplement, a vaccine or any other toxin that you could have come in contact with. Some people never find the 'cause'.
There are quite a few other treatment options to try. It would be helpful for you to read the posts here to try to become familiar with the treatments before your appointment. Ask questions here if you need to. You can advocate for yourself and suggest treatments to your doctor; it's not a one-sided thing. 21k is a low count, but if your symptoms are minimal, your body is handling it.
Thank you so much for your response......I appreciate the info, and I will be going through posts to become familiar with treatments... I definitely want to be prepared for the next meeting with my doctor..... and I am pretty confident I have not had this condition all my life.... I appreciate you clarifying that there's a good chance I haven't ... again, thank you so much .....
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