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TOPIC: New Kid Seeking Friends and Guidance

New Kid Seeking Friends and Guidance 2 months 5 days ago #65571

  • MelA
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Agree with Sandi [surprised you didn't I Sandi ;) ] - your spleen didn't break. Wasn't it doing what it was meant to do, clean your blood?
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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New Kid Seeking Friends and Guidance 2 months 5 days ago #65577

  • Oliver091117
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Wow Hal, you're not kidding-- you've been busy! Interesting about the NAC possibly lowering Promacta effectiveness. What's next for you?

Tomorrow is actually my last NPlate injection, and I'm SOOOO excited! It seems like it cut out at 2mcg/kg, and I'm doing really well symptom-wise-- once I leveled out, no bruising and minor petechiae. Not to mention my energy level is way up and I'm no longer having any nausea! I've cut back my work week to 32 hours instead of 40, and that's also helped a ton. Going to take it slowly and see how it goes, but I'm hoping to stay off pharmaceuticals.

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New Kid Seeking Friends and Guidance 2 months 5 days ago #65578

  • Oliver091117
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Tim wrote: Oliver -- It has been a while since I have posted, but I read your note and all I can say is "Good For You"! Tim

Thank you, Tim!

Tim wrote: ...Because everything else would fail, not because of the medication efficacy, but because my spleen "broke" according to my hemo and surgeon. Yes...broke. Tim

I am curious what you mean by "everything else would fail", and "your spleen broke"... would you mind elaborating?

Tim wrote: Be happy, be safe, be you.Tim

Well said, and again-- thank you!!!

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New Kid Seeking Friends and Guidance 2 months 4 days ago #65583

  • Hal9000
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Ah, ok. I had forgotten nausea was big a problem.
Going all the way to zero, heh? That scares many - I guess it depends on symptoms. Be careful. Going from some to none may be like a switch for ITP symptoms.

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New Kid Seeking Friends and Guidance 1 month 3 weeks ago #65607

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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MelA wrote: Agree with Sandi [surprised you didn't I Sandi ;) ] - your spleen didn't break. Wasn't it doing what it was meant to do, clean your blood?


:) We don't always disagree! B)

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