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TOPIC: May have ITP?

May have ITP? 1 year 3 months ago #63363

  • Sara3502
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I went to the Doctor for unrelated things yesterday, and got a CBC. It was the first blood test I've ever had, and my platelets came back at 20. They redid the test a couple hours later and they were at 60. The doctor said he won't treat me and referred me to a hematologist. I've got an appointment set up for two weeks from now.
I'm in college right now, and even walking classes is getting me out of breath. Today my ankles are also killing me. Is this normal for low platelet counts?
I'll have to wait another two weeks for answers, and I'm already pretty spooked.

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May have ITP? 1 year 3 months ago #63367

  • momto3boys
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I have never heard of ankle symptoms with ITP. I would guess that it is something else unrelated. Getting out of breath while walking to class is also not a direct ITP symptom. That said, many people with ITP end up with anemia as well as a result of blood loss. If your counts dip down on occasion, it is possible that you have had more menstrual blood loss than you realize, and may be anemic. Anemia definitely causes shortness of breath, so you should have your doctor check your iron levels.

Following up with a hematologist is a good idea. They can monitor your platelets and determine if you require any treatment. As long as your platelets are above 30k, you should be fine with just checking in with lab work periodically and not need any additional treatment.

This site has lots of great information for people with ITP and you can read about what symptoms come along with ITP. Reading about something makes it a lot less scary. If you are really having trouble with breathlessness, you can always go to your regular doctor to ask about your iron levels if you don't want to wait to see the hematologist. Good luck!

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May have ITP? 1 year 3 months ago #63370

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Sometimes low platelet levels are temporary, like after an illness or infection. Try not to worry until you know more. The two different labs are weird! It's normal to have a slight difference but that is a big difference! Platelet counts do fluctuate but usually not that much in a few hours. Have you had any bruising or unusual bleeding? If not, that is a good sign.

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