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TOPIC: Options for very low platelet + enlarged spleen (splenomegaly) situation

Options for very low platelet + enlarged spleen (splenomegaly) situation 1 year 4 months ago #63011

  • GilbertPDSA
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Any experiences or thoughts for a friend of ours, she has very low platelets -- around 2,000 (per microliter) at the moment -- and also a very enlarged spleen. Her doctors would like to remove her spleen, as the platelet-gobbling culprit, but with such low platelets don't dare to try because of the bleeding problem.
p.s. She's age 50, is currently hospitalized, and has been trying out a number of medications: Rutaxin + Rituxan, a fungal medicine, and steroids.

Thanks! -The Gilberts

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Options for very low platelet + enlarged spleen (splenomegaly) situation 1 year 4 months ago #63012

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Hello Gilberts!

Has your friend been diagnosed with ITP? I'm asking because it's rare for the spleen to be enlarged with ITP. Usually, an enlarged spleen can indicate another problem. It's odd that they would be using Rituxan since it isn't known to work quickly. It can take 4 to 12 weeks to work, if it works at all. There are other treatments that kick in much faster. What is the fungal medication for?

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