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TOPIC: Was it even something not serious?

Was it even something not serious? 1 year 4 months ago #62967

  • Jenn1469
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Hello everyone, this is my first post and I hadn't expected to hear the news yesterday that my platelet count was 45 (45,000) I went to the doctor for something completely unrelated and he said let's do a blood sample and urinalysis. All he told me is that he sent a referral over to a hematologist and I should be expecting a call beginning of this coming week. Naturally I turned to Google and frightened myself and then ended up here after several hours and self diagnosis.

I have not felt well for a while, bad headaches, always tired and in pain but I was told in my 20s I likely had fibromyalgia and I have been under enormous stress this past 7 or so months.

Is there ever a reason that this could happen and I could get better? Or is this always one of those life long things?

I am sure there is tons of test to be run next week and I will have more answers after that but right now I'm feeling pretty scared and alone.

Just wondering if anyone knew what caused their platelets to drop? I'm just getting over a stomach bug and just had a period. I don't bleed easily but I have noticed that I bruise more easily the past year and I also noticed I was getting petechiae the end of last summer but not in crazy amounts, I had maybe a total of 15 sporadically on my body and most seem to have cleared.

I take a lot of ibuprofen, I read that's bad. Is there anything I should tell my hematologist or anything I can expect at the appt?

Thank you all so much.

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Was it even something not serious? 1 year 4 months ago #62968

  • mrsb04
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Jenn

Try not to worry. It's scary to start with but that won't last long.
There are many resources available on this site which can be accessed from the menus above the discussion group.
Quite often the cause isn't found at all, however Ibuprofen is on the list of drugs that can cause it.
You really need to stop taking it now and take something that is not a non steroidal anti inflammatory product for your pain.

If your haemo is thorough you will be asked lots of questions about your health and have blood taken to test you for loads of things.
Make sure you tell the hemo you've been taking a lot of Ibuprofen..
Mine was put down to a very nasty bout of sinusitis after every test came back completely clear.

Anne
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Was it even something not serious? 1 year 4 months ago #62970

  • Sandi
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Jen, very few people ever really know what triggered ITP. Usually, it is triggered by an illness, a medication (such as an antibiotic, a vaccine, stress, etc. It can be one ting or a combination of things.

Your counts are not too bad, still above treatment level. That's a good thing. Treating ITP can be worse than the ITP itself.

It does seem scary at first but the more you read and learn, you'll start to calm down.
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Was it even something not serious? 1 year 4 months ago #62971

  • Jenn1469
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Thank you. I read on one page that my life expectancy would be 20 years shorter and I'm already 32. It made me feel like I wouldn't be here to see my son's get married or have children. My husband and I were talking about having another baby in like a year. It's just very new to me, I'm still trying to understand it all.

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Was it even something not serious? 1 year 4 months ago #62972

  • Sandi
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Jen:

Life expectancy is not decreased with ITP. Please be careful what you read. There are people here who have been living with ITP for more than 30 years and are going strong. The only risk is bleeding if counts get really low, but that's where the treatments come in. Otherwise, people with ITP are perfectly healthy and death from ITP is extremely rare. Treatments may shorten life expectancy at times (constant immunosuppressants), but just be careful about what you choose and how often you choose to treat. There are doctors that throw the kitchen sink at patients and it's not always necessary. Also, remissions do happen. I was diagnosed in 1998 and went into remission in 2006. Sometimes ITP is acute and resolves on its own. We are a VERY experienced group here, so please join us and learn. Try not to worry for now.
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Was it even something not serious? 1 year 4 months ago #62973

  • Jenn1469
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Is there anything I can take for my headache? I have had it since yesterday and it's just getting worse and worse. It's not a migraine, I took 10 mg of rizatriptan but it is still hurting bad. I have fioricet but it has Tylenol in it. :( I don't know what to do.

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Was it even something not serious? 1 year 4 months ago #62974

  • Jenn1469
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It's NOW* a migraine

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Was it even something not serious? 1 year 4 months ago #62975

  • Sandi
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Tylenol is the only OTC drug that is suggested for pain when one has ITP. You could probably take the Fioricet. I used to take that but got switched to Flexeril.

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Was it even something not serious? 1 year 4 months ago #62976

  • Jenn1469
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Fioricet doesn't work for me :(
I can take 2 of those and 4 ibuprofen and still have a headache. I know that it's bad but I have 3 kids (13, 11, 5) and custody of my nephew (8) and my husband works 2 jobs so I don't have help with the kids and can't function because I always have headaches. That rizatriptan worked though! I have flexeril but asked for something else because it makes me feel out of it so my doctor gave me tizanidine but I haven't tried it yet. I haven't taken any otc since I found out about my platelet count.

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Was it even something not serious? 1 year 4 months ago #62978

  • Sandi
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Jen - the truth is that ANY drug has the potential to trigger ITP, not just OTC's. Sometimes when you have more than one illness to juggle, you have to weigh the benefit against the risk. Taking a pill does not mean that something horrible will happen. You mostly want to stay away from anything that is known to thin the blood, like aspirin. Other than that, moderation is the key.

I live life with headaches too, mostly due to cervical disk problems. I've had stenosis. I know how it is when pills do not work and you have to function.

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Was it even something not serious? 1 year 4 months ago #62981

  • Jenn1469
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Yeah the combination of the fibromyalgia, chronic fatigue and stress has had me a mess lately. I've lost 11lbs in the past 7 weeks, 5 of those in the past week and a half. I'm just so tired but the doctor said I am not anemic, my red blood cell count, I think it's hemoglobin? Was 2 points higher than normal. My white count was a little low but my blood sugar and whatever else they tested was normal. I just want to feel normal and have energy again.

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Was it even something not serious? 1 year 4 months ago #62983

  • Sandi
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Ask to have vitamin levels checked. Many of us have chronically low levels.

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Was it even something not serious? 1 year 4 months ago #62985

  • PurdueRose
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did your DR do an Iron panel? they can also test for indicators that the body is struggling for Iron. I don't get super low and can feel the affects. the rest of the iron numbers tend to be way off before I test Anemic.

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Was it even something not serious? 1 year 4 months ago #62991

  • midwest6708
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My random thoughts...
No one has yet said you have ITP, right? Your low platelet count may only be fleeting, having to do with the stomach bug you just had. Temporary illness frequently causes low counts in otherwise healthy people.

Also, ITP doesn't usually cause pain or feelings of illness. Extremely low counts can cause profound fatigue, but generally not headaches, body aches, or the like. That's why I have to wonder whether it's too soon to be calling this ITP. Try not to worry until you get the official word from the hematologist.

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Was it even something not serious? 1 year 4 months ago #62996

  • Jenn1469
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Thank you, the pain and fatigue are from fibromyalgia. I have no idea what the blood count is from and my doctor told me it could be many things, I have bad anxiety so not knowing has just been hard and I was hoping to hear others stories. I'm glad to hear that illness can cause temporary drops. Hopefully the hematologist calls soon. Thank you all for being so nice and reassuring. It has helped a lot.

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Was it even something not serious? 1 year 4 months ago #63001

  • Sandi
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Jen - as hard as it might be to not know, look at it this way. Until you are given a diagnosis, there isn't anything really wrong. I had symptoms of Lupus a year and a half before I was diagnosed. Every time I saw the Rheumatologist (every three months), he told me that I didn't have Lupus because the blood work just didn't support the diagnosis. I was happy to leave his office knowing that. One day my labs did support the diagnosis and he gave it to me. I didn't want it and that was the day that my life turned upside down because I knew what I was in for.

This could be a temporary thing like Janet said. Even my Hemo had platelets drop once after an illness. If it's not temporary, you will get through it. We're all here for you. ITP is usually manageable and most live perfectly normal lives.

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Was it even something not serious? 1 year 4 months ago #63018

  • dru
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Hi Jenn
I can relate to you because I have fibromyalgia, anxiety, and trouble with stress. Try not to read too much online because you can get much misinformation like lowered life expectancy. You could just have low platelets from a virus. Wait until you see the hematologist and then you can get a diagnosis or more information. Meantime try to do something that decreases your stress.

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