when dana called me with the results, i started laughing, i don't suppose i can bargain my way out of this one?
she laughed, dr says absolutely not.
i was hoping to bargain to only go up to 20 mg pred. not a chance, 60 mg.
actually, he said 60 - 100 mg, and of course i opted for the lower dose. i'm guessing he knows enough to give me a choice, so that i'll pick the one that he truly wants.
and then of course i started grumping to my coworkers. 60 mg. that'll take forever to taper down to 5 mg. i don't want to start all over again.
(i still think 20 mg would do the trick. it would give it a gentler rise. my opinion)
Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006.
Last Count - 344k - 6-9-18
Thank you received: 2330
You do not have to do it. I got to that point too...I was sick of the 60 mg's and starting over all the time. I finally spoke up and said that I wasn't going to do it and I told him that I would do 20 mg's. I wanted to see what that would do since I was pretty responsive to Prednisone. It got my counts into a safer range, but not as high as the 60 and it didn't last long. I tried that a few times until I got sick of steroids altogether and moved on to another treatment.
mom's been making dandelion salad the past several weeks. lots of it. so today, my numbers came back wnl. whooohoooo!!! whether it was the dandelion or not, i don't know. but... i ate dandelion leaves on my cheeseburger this evening. how bout that?
The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.
Platelet Disorder Support Association 8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141 Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003 E-mail: firstname.lastname@example.org