Welcome, Guest
Username: Password: Remember me

TOPIC: March 2015, life changed.

March 2015, life changed. 2 years 5 months ago #56662

  • mrsb04
  • Offline
  • Diagnosed in 2014. I'm also a renal specialist nurse
  • Posts: 1145
  • Karma: 7
  • Thank you received: 259
Great video Rhoda

Please Log in or Create an account to join the conversation.

March 2015, life changed. 2 years 1 month ago #58393

  • rhoda
  • Offline
  • Posts: 47
  • Thank you received: 5
here we go again. round #?
7

when dana called me with the results, i started laughing, i don't suppose i can bargain my way out of this one?
she laughed, dr says absolutely not.

i was hoping to bargain to only go up to 20 mg pred. not a chance, 60 mg.
actually, he said 60 - 100 mg, and of course i opted for the lower dose. i'm guessing he knows enough to give me a choice, so that i'll pick the one that he truly wants.

and then of course i started grumping to my coworkers. 60 mg. that'll take forever to taper down to 5 mg. i don't want to start all over again.
(i still think 20 mg would do the trick. it would give it a gentler rise. my opinion)

Please Log in or Create an account to join the conversation.

March 2015, life changed. 2 years 1 month ago #58394

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12444
  • Karma: 11
  • Thank you received: 2325
Rhoda:
You do not have to do it. I got to that point too...I was sick of the 60 mg's and starting over all the time. I finally spoke up and said that I wasn't going to do it and I told him that I would do 20 mg's. I wanted to see what that would do since I was pretty responsive to Prednisone. It got my counts into a safer range, but not as high as the 60 and it didn't last long. I tried that a few times until I got sick of steroids altogether and moved on to another treatment.

Please Log in or Create an account to join the conversation.

March 2015, life changed. 2 years 1 month ago #58395

  • rhoda
  • Offline
  • Posts: 47
  • Thank you received: 5
we've had our battles. i prefer to call them bargaining.
last week was 27. he wanted me to go up then. i told him no, i want to stay on the 5 mg.
ok, well, then, redraw in a week.

and now, 7 today.
so, i'll listen to him. this time.

Please Log in or Create an account to join the conversation.

March 2015, life changed. 2 years 1 month ago #58398

  • mrsb04
  • Offline
  • Diagnosed in 2014. I'm also a renal specialist nurse
  • Posts: 1145
  • Karma: 7
  • Thank you received: 259
I'm with Sandi on this one 20mg is as high as I will go. I'm sick and tired of Pred increases and subsequent tapers.

Please Log in or Create an account to join the conversation.

March 2015, life changed. 2 years 1 month ago #58406

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12444
  • Karma: 11
  • Thank you received: 2325
You can only do that for so long. It's too hard on the body and the mind.
My office contact's name was Dana too. I loved her!

Please Log in or Create an account to join the conversation.

March 2015, life changed. 2 years 1 month ago #58412

  • rhoda
  • Offline
  • Posts: 47
  • Thank you received: 5
my dana's great too!!

i sent you a pm.

Please Log in or Create an account to join the conversation.

March 2015, life changed. 2 years 20 hours ago #58805

  • rhoda
  • Offline
  • Posts: 47
  • Thank you received: 5
mom's been making dandelion salad the past several weeks. lots of it. so today, my numbers came back wnl. whooohoooo!!! whether it was the dandelion or not, i don't know. but... i ate dandelion leaves on my cheeseburger this evening. how bout that?

Please Log in or Create an account to join the conversation.

BBB Cleveland logo GuideStar Seal NORD Member Badge 2018THSNA logo