Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Antiphospholipid Syndrome

Low Platelets - Next Steps

More
9 years 6 months ago #44482 by BadBlood
Replied by BadBlood on topic Low Platelets - Next Steps
Just a quick update.

Started Rituxan treatment earlier in the week with no serious issues. Platelets tested prior to treatment continue to look good around 70k so they have finally started a very slow taper off prednisone after 7 weeks at 60 mg. I'm thankful steroids work so well for me, but can't wait to get dosage way down or get off completely.

Sandi - I believe the changes are being made due to requirements of PPACA. Good luck with your insurance coverage next year, I know it can be really tough to find a good plan.

Uchallas - I believe Promacta is one of the drugs my hemo said we will not use as it can produce too many platelets which greatly increases risk of clots with APS. But I'm no expert and glad it worked for your wife :)

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
9 years 6 months ago #44489 by Sandi
Replied by Sandi on topic Low Platelets - Next Steps
That's good! I'm glad things are going better for you, I hope it continues. Thanks for the update!
The following user(s) said Thank You: BadBlood

Please Log in or Create an account to join the conversation.

More
9 years 2 months ago #46387 by BadBlood
Replied by BadBlood on topic Low Platelets - Next Steps
Hello All,

Sorry for the delay in updates, things have been challenging to say the least. I'll provide a more detailed update in a few days, a lot has happened, but just wanted to say I'm still around.

Mike

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
9 years 2 months ago #46392 by Sandi
Replied by Sandi on topic Low Platelets - Next Steps
Mike - thanks for checking in. I've been worried about you. Sent you an e-mail or two. I hope you're doing ok.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
9 years 3 days ago #48059 by Sandi
Replied by Sandi on topic Low Platelets - Next Steps
Hey Mike. I have not forgotten about you. I hope you are okay.

Please Log in or Create an account to join the conversation.