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Where to post my recovery from ITP?

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6 years 6 months ago #61073 by Fender
Where to post my recovery from ITP? was created by Fender
Hi, when I was first diagnosed with ITP back in January 2017, I gleamed some great information from searching these PDSA discussion forums. Now that I've been clear of ITP for a few months, and the meds, I'd like to provide my medical history for others to possibly use for the management of their ITP situation. Any suggestions as to which topic and thread to post in, and what information not to post? Cheers

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6 years 6 months ago #61074 by CindyL
Replied by CindyL on topic Where to post my recovery from ITP?
I think you could post under either the general itp thread or under the treatment section.

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6 years 6 months ago - 6 years 6 months ago #61094 by Fender
Replied by Fender on topic Where to post my recovery from ITP?
I put it in
Category: General ITP Discussion
Thread: Good Result/Success/Restored/Remission/Recovery/Cured
pdsa.org/discussion-group/6-general-itp-discussion/29839-good-result-success-restored-remission-recovery-cured.html
Cheers

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6 years 6 months ago #61123 by waterbug
Replied by waterbug on topic Where to post my recovery from ITP?
hi there. I hope you are in recovery!!!!
I started in July 2017 with count at 16. I was in the hospital and had transfusions, and other stuff.
Then they went up to 330. I could not take prednisone, it made me crazy!!!
I have been on promacta for almost 2 mths and my count is now 73!! I go back to dr Nov. 6.
He said maybe we could do the medication every other day. Do not know what you have been on, but this med makes my body ache. Kinda sleepy during the day, and having a difficult time sleeping at night. Most for sure I wake up early due to being in pain. Once I am up and around the pain goes away, somewhat. I have a bad back which catches once in while. I also had some dental work done, and one of the reactions from the medicine is "tooth aches"? My White blood count has gone done to 3.3. which dr. does not seem to be concerned with, so ?
I am hoping to be clear of this stuff as well and get off the meds all together!!!!
keep me posted on your condition!

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6 years 6 months ago #61147 by Fender
Replied by Fender on topic Where to post my recovery from ITP?
Thanks Waterbug, keep that good energy flowing mate! I've update my post here:

pdsa.org/discussion-group/6-general-itp-discussion/29839-good-result-success-restored-remission-recovery-cured.html

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