Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1

TOPIC: Where to post my recovery from ITP?

Where to post my recovery from ITP? 1 year 5 months ago #61073

  • Fender
  • Offline
  • Posts: 8
  • Thank you received: 0
Hi, when I was first diagnosed with ITP back in January 2017, I gleamed some great information from searching these PDSA discussion forums. Now that I've been clear of ITP for a few months, and the meds, I'd like to provide my medical history for others to possibly use for the management of their ITP situation. Any suggestions as to which topic and thread to post in, and what information not to post? Cheers

Please Log in or Create an account to join the conversation.

Where to post my recovery from ITP? 1 year 5 months ago #61074

  • CindyL
  • Offline
  • Posts: 1103
  • Karma: 1
  • Thank you received: 116
I think you could post under either the general itp thread or under the treatment section.

Please Log in or Create an account to join the conversation.

Where to post my recovery from ITP? 1 year 5 months ago #61094

  • Fender
  • Offline
  • Posts: 8
  • Thank you received: 0
I put it in
Category: General ITP Discussion
Thread: Good Result/Success/Restored/Remission/Recovery/Cured
pdsa.org/discussion-group/6-general-itp-discussion/29839-good-result-success-restored-remission-recovery-cured.html
Cheers

Please Log in or Create an account to join the conversation.

Where to post my recovery from ITP? 1 year 5 months ago #61123

  • waterbug
  • Offline
  • Posts: 28
  • Thank you received: 0
hi there. I hope you are in recovery!!!!
I started in July 2017 with count at 16. I was in the hospital and had transfusions, and other stuff.
Then they went up to 330. I could not take prednisone, it made me crazy!!!
I have been on promacta for almost 2 mths and my count is now 73!! I go back to dr Nov. 6.
He said maybe we could do the medication every other day. Do not know what you have been on, but this med makes my body ache. Kinda sleepy during the day, and having a difficult time sleeping at night. Most for sure I wake up early due to being in pain. Once I am up and around the pain goes away, somewhat. I have a bad back which catches once in while. I also had some dental work done, and one of the reactions from the medicine is "tooth aches"? My White blood count has gone done to 3.3. which dr. does not seem to be concerned with, so ?
I am hoping to be clear of this stuff as well and get off the meds all together!!!!
keep me posted on your condition!

Please Log in or Create an account to join the conversation.

Where to post my recovery from ITP? 1 year 5 months ago #61147

  • Fender
  • Offline
  • Posts: 8
  • Thank you received: 0
Thanks Waterbug, keep that good energy flowing mate! I've update my post here:

pdsa.org/discussion-group/6-general-itp-discussion/29839-good-result-success-restored-remission-recovery-cured.html

Please Log in or Create an account to join the conversation.

  • Page:
  • 1

BBB Cleveland logo GuideStar Seal NORD Member Badge 2018THSNA logo