i was diagnosed with ITP 4 years ago (Im 15 years old) and had many problems ever since, and only vigam works but i get really bad side effects... I didnt have a choice wether to have the operation or not because my gynocologist has put me on strong medication to stop me bleeding for six months and without this medication (with ITP) i would have to go in the hospital to have blood transfusions every month, so my hematologist and my mum are kinda like the only thing that might help is this operation. Im really tired of going to hospitals and everything, so i just want this operation to work... Im going to have a splenectomy and gall bladder removal (I have a gall stone which causes pain) on this coming thursday and im really scared... can anyone tell me your personal experience when you had your splenectomy because i dont know what to expect and im scared of the pain when i wake up...
I'm sorry, I can't tell you anything about the surgery since I haven't had it. I just wanted to wish you luck and I hope everything goes smoothly for you! On a side note, I take Depo shots (birth control) and I don't bleed at all, even though I used to really badly. I also heard if you take the pill or patch, by taking it four weeks a month instead of three, you can stop your period that way as well.
Oh I know some people are against birth control at 15, my mother was. I only mentioned it because even though my mother didn't like it when I was that young, it meant my periods weren't wreaking havok on my life.
Had my splenectomy but at a much older age (48). I didn't really have a bad recovery and I had the "open" version (big cut) vs the laproscopic (3 small incisions). Took me a couple of months to really get back on my feet. Probably regardless of the incision type keep a pillow nearby. Use it to apply mild pressure to your incision site when you need to cough or move around - it helps reduce the pain. I showed near immediate positive results post surgery going from 0 to 400 and within two weeks settled into 320's.
Post surgery I had access to self medicated pain medicine via the pump. While I could have it every x hours it was up to me to initiate it via an attached switch but it wouldn't administer if the time since the last dose wasn't > x (I forget the numbers). I used it steadily for the first few days and it made the pain very manageable.
I pray for a positive response to your ITP and to a manageable pain protocol and a speedy recovery.
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Love to share with the hurting
don't worry baby, my son had the surgery 6 months ago, the surgery was fine, my son was happy doing the surgery, only the first day you will have some pain but you will have pain re leave , my son back to school after one week , we left the hospital second day, honey you will be fine, thank God that the operation can be done labor scoop
now , i will pray for you , just update us ,
What we have is now & right now we have each other
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I haven't had a splenectomy yet, but had an appendectomy last friday and can honestly say i am still in pain just under a week later. I had to go the doctor today to get some stronger pain killers and he gave me tramadol cause my pain was about a 9 out of 10 this morning. I am expecting to go back to work on monday though. The doctor today told me that there was probally internal bruising and possibly some minor internal bleeding as well as the external bruisng which could cause some issues as well.
I had key hole surgery and he said because they had instruments and the camera in there, they is probally some trauma from that as well. My Aunties friend had his appendix taken out a couple of months ago and she said it took him a good month for the pain to really go away. I know a appendectomy is not the same as what your having, but they do it the same way which is why i thought i'd let you know my experience. I usually have a really high pain threshold, so for me to say the pain was 9 today and crying cause of the pain, then thats saying something for me.
I don't want to scare you and everyone reacts to pain differently, but i thought i'd let you know how i am feeling, so your not gonna go in with any false pretense that your not gonna be in much pain cause you might. Like i said you might not have the same experience as me and might have very little pain, but i thought i'd prepare you anyway and your having two seperate things done as well in the one surgery, so u might be in a bit more pain maybe??
This may be a bit gross sounding, but i wasn't made aware of it at the hospital and didn't know i would have issues till i got home the day after surgery, but i also had trouble with constipation and my doctor today said the anesthetic has a paralyzing agent in it which makes your bowels paralyzed and then with all the pain killing drugs they give you also has agents that can make u constipated and then to top it all, whenever u try to go to the toliet, you natually want to push out with your stomach to find it is the most unbearable pain ever cause you have just had surgery there.
Also if they do key hole surgery, they inflat your stomach with carbon dioxide so they can see everything with the camera more clearly so there might be some left over gas that they don't fully get out, so make sure you ask for help with the consipation if you need it. I had to take metamucil and increase my fiber in my diet plus get something from the pharmacy to help with the constipation.
Like i said before, I hope this hasn't grossed anyone out, but like i said nobody at the hospital made me aware of the side effects from the general anesthetic and the possible problems it could have on your bowels and it is something i think everyone should know when undergoing any type of sugery and it would have been good to know that information before hand or even to make sure i knew before i went home so i could combat the problem before it got unbearable. Most of my pain earlier in the week i think i can attribute to that issue and now i have that problem solved, i am concentrating on getting rid of the pain from where the surgery was done.
Good Luck with it all and I hope i have given you some helpful information so you can prepare for your surgery better, let us know how it all goes, i'll be thinking and praying for you xoxo
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damn doctor just told me today i need spleen removed. i had an emergency appendectomy about 7 years ago. It hurt, it hurt alot i think possibly because they cut through my stomach lining. And i'm sure the slenoctomy will hurt like hell too. In my experience the appendix being removed fixed the problem, lets just hope the removal of the spleen also fixes the problem. damn.
I had a laparoscopic splenectomy 3-1/2 years ago. The recovery went very well.
I had the surgery on a Thursday. Thursday night I was in significant, but not awful pain. I went home Friday morning. I started walking around the neighborhood on Friday since the surgeon said this would displace the gas bubbles in my shoulders which develop as a result of the CO2 they inflate you with during the surgery. I stopped taking the pain killer (lortab/vicodin) Friday evening. By Monday, I was able to walk in to work (about a mile), although I did it slowly; things still hurt a bit.
The next Saturday, I was able to join a church group for a light-duty 3-mile hike. It went OK, except for the bouncing going downhill, which still hurt.
I had sporadic mild stinging pain and numbness around the incision for a month or two, but not really problem.
My platelets are still great, and I hope you get the same outcome!
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