Hi, my name is Abi. I was diagnosed with epilepsy five years ago now, and only a couple of weeks ago I was just diagnosed with ITP. Though I have a pretty great support system here at home, I don't really know other people with invisible and/or chronic illnesses, so it feels very alone. If anyone in the forum is still active, I'd love to hear from you! It makes it easier to know other people are feeling the same things.
Hello, i was recently diagnosed with ITP, My platelet count went to 10K only and WBC counts are also higher than normal. If anyone in the forum is still active please reply as soon as possible, I need many suggestions. Thank you.
Hey I’m Kevin i’m a 17 year old kid from the Bay Area lol! I’ve been living with ITP for about 3 years now. And I would love to talk to you about things lol. For I still have my own difficult challenges I need to face in life and maybe we can talk about em together? txt me at 510-709-9148
Thank you for the response friends... I want to know the treatments that you had taken and their response.. I was diagnosed 2 months ago.. I'm currently on revolade (eltrombopag) 50mg ..I had taken revolade 25mg along with rituximab injections (which were given weekly) for a month which boosted my platelets up to 150K on the third week..But on fourth week it again dropped down to 30K...I had also taken IVIG and Prednisone which didn't work.
Is there any harmful side effect of revolade ?
What are the other treatments which doctor can give me...If the 50 mg revolade also didn't worked?
As described in my ITP table notes, staying away from things one is allergic to, and/or, avoiding gluten if one is Celiac, are two precautions. These seem to be the most common things reported here on PDSA forum.
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