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need urgent help plz 4 years 5 months ago #56712

  • anamika
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my platelets have reached 12k.plz tell me what do.i dont want to take ivig again.please help!!!!!!

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need urgent help plz 4 years 5 months ago #56714

  • Sandy Too
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Hi ana, my platelets like 12 too. :(
Have they discovered what is causing your low platelets?
How long has it been going on?
Who cares for you? A general practitioner or specialist?
Sandy Too

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need urgent help plz 4 years 5 months ago #56715

  • anamika
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actually its both.general practitioner as well as specialist

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need urgent help plz 4 years 5 months ago #56718

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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You should speak to your doctor and tell him how you feel. There are other treatment options.

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need urgent help plz 4 years 5 months ago #56723

  • anamika
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i took a blood test again half an hour ago.platelets r now 40k.but i took 30 mg omnacortil.it was 7.5 mg before.i was already worried abt its side effects n now i m more worried.i just want the side effects to go as soon as possible.btw thanks for all the support :)

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need urgent help plz 4 years 5 months ago #56724

  • mrsb04
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  • Diagnosis of ITP in 2014. Retired (Nov 2019) renal specialist nurse, 46 years on the NHS front line. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use
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www.ebmt.org/Contents/Resources/Library/Resourcesfornurses/Documents/ITP%20Handbook.PDF

Anamika have a look at this. It's written by European nurses for nurses who have no knowledge of ITP e.g.me when I was first diagnosed. It's not too technical and explains about the various treatments. The drug names might be different in some countries but if you google them you will be able to find the equivalent names.

Anne
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