Platelet Disorder Support Association

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need urgent help plz

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7 years 10 months ago #56712 by anamika
need urgent help plz was created by anamika
my platelets have reached 12k.plz tell me what do.i dont want to take ivig again.please help!!!!!!

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7 years 10 months ago #56714 by Sandy Too
Replied by Sandy Too on topic need urgent help plz
Hi ana, my platelets like 12 too. :(
Have they discovered what is causing your low platelets?
How long has it been going on?
Who cares for you? A general practitioner or specialist?
Sandy Too

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7 years 10 months ago - 7 years 10 months ago #56715 by anamika
Replied by anamika on topic need urgent help plz
actually its both.general practitioner as well as specialist

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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7 years 10 months ago #56718 by Sandi
Replied by Sandi on topic need urgent help plz
You should speak to your doctor and tell him how you feel. There are other treatment options.

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7 years 10 months ago - 7 years 10 months ago #56723 by anamika
Replied by anamika on topic need urgent help plz
i took a blood test again half an hour ago.platelets r now 40k.but i took 30 mg omnacortil.it was 7.5 mg before.i was already worried abt its side effects n now i m more worried.i just want the side effects to go as soon as possible.btw thanks for all the support :)

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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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7 years 10 months ago #56724 by mrsb04
Replied by mrsb04 on topic need urgent help plz
www.ebmt.org/Contents/Resources/Library/Resourcesfornurses/Documents/ITP%20Handbook.PDF

Anamika have a look at this. It's written by European nurses for nurses who have no knowledge of ITP e.g.me when I was first diagnosed. It's not too technical and explains about the various treatments. The drug names might be different in some countries but if you google them you will be able to find the equivalent names.

Anne
The following user(s) said Thank You: anamika

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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