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other issues?

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7 years 8 months ago #55192 by KaylaDru
other issues? was created by KaylaDru
I was diagnosed the summer after my 8th grade year. Im now going to be a senior. Ever since I was diagnosed, my "issue book" as I like to call it has gotten longer and I've developed so many different issues that are proving difficult to diagnose. Has anyone else experienced the type of experience?

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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7 years 8 months ago #55193 by Sandi
Replied by Sandi on topic other issues?
Kayla:

What kind of issues?
The following user(s) said Thank You: KaylaDru

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7 years 8 months ago #55199 by KaylaDru
Replied by KaylaDru on topic other issues?
Hearing fluctuations, hip problems in both sides that is proving difficult to diagnose, a feeling of extreme disconnect to my body and my emotions, problems that present as cholecystitis (gallbladder problems) but when further looked into every test came back clean. I had 0 problems with anything before I was hospitalized the first time with ITP, other than the bruising. Im just curious if anyone else has experienced something similar not necessarily with the same problems.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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7 years 8 months ago #55206 by Sandi
Replied by Sandi on topic other issues?
Those sound like steroid side effects. Have you been on them recently?

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7 years 8 months ago #55207 by KaylaDru
Replied by KaylaDru on topic other issues?
I actually haven't been on them since the summer I was diagnosed. My doctor thought that the hip problems were related to a degeneration of blood vessels in the ball of my hip as a result of the high dose of steroids and the lengthy time I took them. Tests just keep coming back clean.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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7 years 8 months ago #55215 by Sandi
Replied by Sandi on topic other issues?
Kayla:

Sometimes, other autoimmune problems can go along with ITP. Some people are prone to more than one. It's possible that you have another one developing and it can often take years to develop enough to be diagnosed. All you can do is make sure you keep track of the things you are experiencing and keep getting monitored by your doctors.

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7 years 5 months ago #56609 by anamika
Replied by anamika on topic other issues?
hey there.how r u.i m 14.2 monthns ago I was also hospitalized the first time with ITP.my platelet count was 10k but when we reached hospital has reached down to 6k.i was giving IVIG n i am taking steroids.i am really hating its side effects.i took dapzone along with it for a month n now i am having jaundice because it is the sideffects of dapzone.my dr. has stopped dapzone.now i am taking a homeopathic medicine along with steroids

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