Is it just me or do you wish you could be normal? I mean I hate having to sit out of EVERYTHING because of ITP and the worst thing is there isn't anything I can do about it!!! Are any of you having the same experience?
Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006.
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There are not many teens who post here, so I'll give a bit of advice if you don't mind.
ITP can be a crappy diagnosis. It can change your life as you know it. It can change your goals, your plans and your activities, BUT! Perspective is everything, and you CAN change how you feel about it. You can still see yourself as 'normal', you are, you just have low platelets. You are still you. Many teens have found that they cannot participate in sports for the time being, but they have found other things that they can do and sometimes, they find a talent that they didn't know they had. They redirected their energy to focus on what they can do. You can put a positive spin on it and use it to your advantage if you choose to do so.
You can take a look around and see that some people are far worse off. Some people your age will be in a wheel chair for life, some people will never see or hear, and some are fighting for their lives. ITP isn't always easy, but it will not take your abilities away and most people do lead normal lives in spite of it. It's okay to feel bad about what you can't do, but you can turn that around and find the positive.
Good luck to you. I hope it gets better for you soon.
The following user(s) said Thank You: Tcammauf, elliejye
Yes! I agree so much! I'm now 21 I found out when I was 12 everything was crap watching everyone do all the fun good stuff and you just have to sit back and watch it's painful.. I totally agree with you and completely understand.
Life can be so unfair!
I got diagnosed when I was about 12 years old and going into high school was not to far away, being a teenager was hard enough and then not really being able to do anything was even harder. It really did suck and i felt like it was unfair. I've had ITP for 12 years and its been truly a blessing. I has helped shaped me to be who I am today, you may not see that now but maybe one day you will.
Feel free to message me if you want to talk about it, whenever you're having a bad day. I've been through plenty.
Im 13 and i got diagnosed wit ITP when i was 8 and yeh i see your frustration I love sports and i hate sitting out of everything and having to quit the sports that i was already doing was frustrating i know that people will say u are normal and stuff but i think that u have every right to get upset about it every once and a while but u just have to find other things that u like that u can do. Some of the sports that i got into are things like swimming and running and i now that if any doctor saw this they would probably advise not to do this but i think at the end of the day u cant be wrapped up in cotton wool for the rest of ur life so u just gotta take chances personal i started doing some pe at school again that are " contact sports " u just gotta know your boundaries and i try to stay back a little more but anyway thats just my advice im sorry if thus was a really crappy response :/
I feel you, its a little discouraging. I used to be a very school driven person. Then, I got ITP, and I had to leave almost everything. Eventually though, I found a great joy in going to church, and I focused my attention there, and now life is pretty good. Trust me, it gets better. You'll find that people are very supportive on these things.
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