I have never posted on this site before, but have always loved reading the various messages. I was diagnosed with ITP three years ago. My platelet counts would drop to 2,000 or so and then go up a little and drop again. I tried multiple therapies including steroids, IVIG, dapsone, all without luck. I then tried winrho and it has seemed to do the trick for me and for the last few months my counts have been great. My main question is how you guys have learned to deal with fear associated with ITP, I know most high school kids often feel invincible or so I hear; having ITP that is not something I could even imagine feeling. I keep the fact I have ITP a secret and it is then hard to come up with an excuse as to why I don't play contact sports or why I choose to miss out on things even though people have heard that I love them. For those who do know me well, I sometimes have a hard time not becoming frustrated when I have to deal with not so fun things or miss out on things I had always looked forward to. I was just curious as to how you guys have handled certain situations as well as when platelet counts are high not being terrified of life.
I was diagnosed with ITP when I was 7 years old and this year I'm 14…
There were times I stayed in the hospital for months.. When I was younger i believed it was only me. I was never allowed to play with my friends and I was bullied on end because of my bruises and scars on my legs. I wondered why i always had to sit out why i was bullied.. Why i wasn't allowed to go on field trips. My life has changed since I've learned to live with it. Its apart of me and i need to think that it might not go till I age more..
Im so happy I found this site, I don't feel alone anymore which is SUPER.. I finally know that Im not just the freak in the class with some weird disorder. Im tired of being looked at differently…Im grateful to know Im not alone.
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