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splenectomy questions

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10 years 8 months ago #37744 by Sg24
splenectomy questions was created by Sg24
I have had itp for going on 4 years we have tried n-plate injections for 3 years but they stopped working the way they should they now want to remove my spleen. I do not agree with what the doctor wants to do. Has anyone refused?

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10 years 8 months ago #37756 by Rob16
Replied by Rob16 on topic splenectomy questions
I don't know about teens, but plenty of adults on this site have refused splenectomy, as well as a wide variety of other extreme treatments. Read everything you can on this website, so that you can demonstrate the strength of your convictions. Make sure you have a second opinion from a hematologist who specializes in ITP. Splenectomy is forever!

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10 years 8 months ago #37765 by Sg24
Replied by Sg24 on topic splenectomy questions
thanks for the information and if its not to much to ask what treatments have worked for you

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 8 months ago #37766 by Sandi
Replied by Sandi on topic splenectomy questions
What are your counts and what treatments have you tried?

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10 years 8 months ago #37771 by Sg24
Replied by Sg24 on topic splenectomy questions
steroids and n-plate injections and they stay around the 50's

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 8 months ago #37789 by Sandi
Replied by Sandi on topic splenectomy questions
Counts in the 50's are perfect while using N-Plate. The drug isn't meant to induce normal counts and if it does, the dose should be lowered.

If your goal is remission, there are other options to try, such as Rituxan.

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10 years 8 months ago #37807 by Sg24
Replied by Sg24 on topic splenectomy questions
Rituxan is what we are getting ready to start im hoping it works

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 8 months ago #37809 by Sandi
Replied by Sandi on topic splenectomy questions
Good luck! I hope it works for you too.

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