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TOPIC: Just diagnosed

Just diagnosed 7 years 10 months ago #18831

  • Alex
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Hey, my names Alex and I have just been diagnosed with ITP. My platelet count is under 10k. i've only had it for about two weeks. I have petechiae bruising mostly on my legs. I can't do basketball or any of the sports I usually play. Any one with similar problems?

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Re: Just diagnosed 7 years 10 months ago #18853

  • Ann
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Not many teens here but hopefully someone will appear soon. Welcome anyway. I'm an adult with ITP.

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Re: Just diagnosed 7 years 10 months ago #18854

  • Alex
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Thankyou and i hope so I had a neighbor with TTP but he was the only person i knew with something close to ITP

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Re: Just diagnosed 7 years 10 months ago #18876

  • Ann
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Wow TTP is rare too but so much worse I think. I'd rather have ITP I think.

Are you having treatment or are you on the watch and wait regime?

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Re: Just diagnosed 7 years 10 months ago #18891

  • Alex
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Yeah TTP is where he also has red blood cout too. Its a lot worse but hes fine now. And im not cyrrently doing any treatment but if my count doesnt go anywhere by next week im getting IVIG

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Re: Just diagnosed 7 years 10 months ago #18907

  • shannon17
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Sorry to hear, I found out I had ITP back in June. Spent the first long weekend of the summer in hospital. Now I'm just crossing my fingers that it was a one time thing. If not I won't be able to play rugby this year. Which really bites cause I was looking forward to it not to all the running and crazy drills my coach thinks up but the whole hitting people is a major stress reliever. lol

By the way I hope you don't have to find out for yourself but the IVIG isn't too bad. Just make sure you have a lot of fluids and something to eat before you have the treatment otherwise... well weird stuff happens. The headaches can be terrible if your lucky you won't get any but if not I'd ask for anti-nausea medicine as soon as possible. And how do you react to morphine?

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Re: Just diagnosed 7 years 10 months ago #18977

  • Alex
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Ive never had morphine but im sure im fine an thanks for the advice i like lacrosse to cause hittin people does relieve a lot of stress and my patechiae is gone so i hope im getting better hope hope you get to play rugby

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Re: Just diagnosed 7 years 10 months ago #18992

  • mtbailey
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hey alex
my name is madison
I'm also a teen who was diagnosed recently (a month)
i play 3 sports and right now can only play one..
lacrosse is my favorite and since I'm a goalie i am allowed to play...
it gets better!

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Re: Just diagnosed 7 years 10 months ago #19045

  • Alex
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Good news!! I got my blood checked amd my platelets are at 201k!!! I dont have it anymore but i will be praying for all of you:)

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Re: Just diagnosed 7 years 8 months ago #20066

  • ilovelucy407
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  • it has been 3 years alreay since my knowledge of my ITP. it took a year but everything is back to normal and on 10-29-12 i gave blood so that i can help somone in the same condition i was in or worse. it is just a good deed that paid off in the short run.
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my name is Rebekah and i was diagnsised on June 15th 2009 with ITP it lasted for around 2 months and after i got 3 treatments and an bone marrow aspiration I have not had another relapse since. I was pronounced cured June of this year and i still get the blood spots along with bruiing. The good neews is though my platelets are staying up.:cheer:

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