I am 15 years old and I was diagnosed with ITP a little over two months ago. It all started with me going in to see if I had broken my wrist, but when the nurse took a look at my heart rate it was at a 150 just sitting in the chair. I was then taken into a room and was hooked up to a heart monitor, I wasn't sure what was going on, but I just went with it. About 45 minutes later a doctor came in and told me I had pneumonia, when I heard that I was a little freaked out, and I did my best to hide my tears. They did some more tests, and they still couldn't figure out why my heart rate was so fast. My step father and I were told maybe an hour later that I was going to be admitted into the hospital, but I was going to be transferred to Emanuel Children's Hospital. I had a big problem with having to stay the night because the day I was admitted was the day of my 8th grade graduation, and I was supposed to be preforming a song in front of the school with my best friend, but I had to make some calls explaining why I wouldn't be able to make it. After my mom had left work and rushed to the hospital the ambulance arrived and loaded me up. My mom and step dad told me that they would meet me at the hospital, but I felt a lot better because I was texting my real dad the whole time. I'm not going to lie I was scared, I didn't know what was going on, or what was wrong with me. My dad keep telling me everything was going to be okay, and that he was going to find a way to come and visit me for a while. The next day is when I got more information on what was going on. They said that I had what they called Hyperthyroidism, and that was what was causing my rapid heart rate, but there was another disease. They called it ITP, of course since I was just leaving middle school I didn't understand any of the big words they were throwing at me, but my mom and dad did their best to explain it to me some more. While I was in the hospital the doctors gave me an IVIG. I was in the hospital for about a week before they let me out, when I got home that night I called my closest friends and talked to them for hours on end, some cried because they were happy that I was okay, and some screamed screams of joy that I was finally out. When I went to bed I wasn't feeling the best, I woke up in the middle of the night with a pounding headache and nausea. After a few weeks of going to doctors appointments I found out that the IVIG didn't work and that everything was only getting worse, and they really couldn't do anything about it. IT worried me for the longest time, and the only thing that could keep me from over reacting was the Weasley Twins from Harry Potter, and the Harry Potter movies themselves, they were like my antidepressant. In the month of July is when I got my first Bone Marrow Biopsy, and it came back with no cancer, my marrow was making platelets, just not enough. The next step was to, lets say, drug my immune system. It was a four week treatment, and I am glad to say that it is working. I started with below a five, then to a five, then 11, 21, 32, and the last it was checked it was a 41. It is slowly but surely going up. The Graves Disease, hyperthyroidism, is doing great too. Good thing because the last Harry Potter came out Friday, July 15th, three days before my bone marrow. The cool part about all of this is, it has put me through a lot, but I know that I can get through anything with a little hope, and I get get through it with the things and people I love. I just hope that others will get better, and I wont have to go through this some more, because I don't think I would be able to handle it.
P.S. I really hope that others with ITP, or Graves disease, or both get through it like I did.
The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.
Platelet Disorder Support Association 8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141 Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003 E-mail: firstname.lastname@example.org