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Beads of Courage for Hematology

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13 years 4 months ago #9865 by tacmom
Beads of Courage for Hematology was created by tacmom
Just wanted to let you know that if your hospital is doing this for their cancer patients, they are opening this up for hematology effective Dec. 1st!! :) GREAT program...take advantage of it if your hospital has it! It is one of the most cherished things I have of Caitlin's journey with ITP!

Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...

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13 years 4 months ago #9917 by jaycharness
Replied by jaycharness on topic Re:Beads of Courage for Hematology
My daughter was the first Hematology patient at Children's Denver to be included in this program a couple years ago. She is up to (3) full strands of beads (which is 6 years worth of ITP). It is an amazing program where kids get to actually visually see the treatments, blood draws and Dr.'s appointments that she has been through. I would highly recommend it to anyone!

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12 years 11 months ago #14890 by tacmom
Replied by tacmom on topic Re: Beads of Courage for Hematology
Hope this works...here is a pic of Caitlin at a recent competition with her beads. She doesn't have a whole lot because we don't get them for every blood draw. Plus she just started this last year.

Attachment Caitlin BOC.JPG not found


Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
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12 years 3 months ago #21560 by mparshall
Replied by mparshall on topic Re: Beads of Courage for Hematology
:dry: I would love to do this for my son but his hospital doesn't participate in the program...yet. Will they provide the beads for individual children?

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12 years 2 months ago #21614 by jkfrye1982
Replied by jkfrye1982 on topic Re: Beads of Courage for Hematology
My daughter just got her beads on Thursday! She is so excited about them. I guess if gives her something to look forward to, despite getting poked!

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12 years 2 months ago #21650 by jlollman
Replied by jlollman on topic Re: Beads of Courage for Hematology
They have a " beads from a distance program" for kiddos not in participating hospital area. We have been doing the beads and love the program!

Mom to 7yr old Samuel with Chronic ITP. Diagnosed age 3

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12 years 2 months ago #21672 by mparshall
Replied by mparshall on topic Re: Beads of Courage for Hematology
Thanks! I sent them an email and we are getting him started as we speak. I am super excited about it!

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10 years 10 months ago #32946 by Radioflyer02
Replied by Radioflyer02 on topic Re: Beads of Courage for Hematology
How so you sign up for this? My 4 year old daughter is terrified of her blood draws and it is really hard to get her to calm down.

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