Just wanted to let you know that if your hospital is doing this for their cancer patients, they are opening this up for hematology effective Dec. 1st!! GREAT program...take advantage of it if your hospital has it! It is one of the most cherished things I have of Caitlin's journey with ITP!
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)
Current count (Feb 2011): 138
Current dose: 1 mcg/kg
Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
My daughter was the first Hematology patient at Children's Denver to be included in this program a couple years ago. She is up to (3) full strands of beads (which is 6 years worth of ITP). It is an amazing program where kids get to actually visually see the treatments, blood draws and Dr.'s appointments that she has been through. I would highly recommend it to anyone!
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Platelet Disorder Support Association 8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141 Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003 Fax: 844-270-1277 E-mail: firstname.lastname@example.org