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TOPIC: Beads of Courage for Hematology

Beads of Courage for Hematology 8 years 3 months ago #9865

  • tacmom
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Just wanted to let you know that if your hospital is doing this for their cancer patients, they are opening this up for hematology effective Dec. 1st!! :) GREAT program...take advantage of it if your hospital has it! It is one of the most cherished things I have of Caitlin's journey with ITP!
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...

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Re:Beads of Courage for Hematology 8 years 3 months ago #9917

  • jaycharness
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My daughter was the first Hematology patient at Children's Denver to be included in this program a couple years ago. She is up to (3) full strands of beads (which is 6 years worth of ITP). It is an amazing program where kids get to actually visually see the treatments, blood draws and Dr.'s appointments that she has been through. I would highly recommend it to anyone!

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Re: Beads of Courage for Hematology 7 years 10 months ago #14890

  • tacmom
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Hope this works...here is a pic of Caitlin at a recent competition with her beads. She doesn't have a whole lot because we don't get them for every blood draw. Plus she just started this last year.

Attachment Caitlin BOC.JPG not found

Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
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Re: Beads of Courage for Hematology 7 years 2 months ago #21560

  • mparshall
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:dry: I would love to do this for my son but his hospital doesn't participate in the program...yet. Will they provide the beads for individual children?

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Re: Beads of Courage for Hematology 7 years 1 month ago #21614

  • jkfrye1982
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My daughter just got her beads on Thursday! She is so excited about them. I guess if gives her something to look forward to, despite getting poked!

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Re: Beads of Courage for Hematology 7 years 1 month ago #21650

  • jlollman
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They have a " beads from a distance program" for kiddos not in participating hospital area. We have been doing the beads and love the program!
Mom to 7yr old Samuel with Chronic ITP. Diagnosed age 3

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Re: Beads of Courage for Hematology 7 years 1 month ago #21672

  • mparshall
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Thanks! I sent them an email and we are getting him started as we speak. I am super excited about it!

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Re: Beads of Courage for Hematology 5 years 9 months ago #32946

  • Radioflyer02
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How so you sign up for this? My 4 year old daughter is terrified of her blood draws and it is really hard to get her to calm down.

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