A few months ago one of the mom's here commented on her child recieving a "bead' at one of the Canadian hospitals. Since they are headquartered here in Arizona, I've attended one of their events and am impressed with the caring hearts that make up this organization that shares with children.
I'm also incrediably impressed with how creative they are in coming up with fund raisers and educational awareness. For example, they recently held a contest with bead makers for 6 oz of beads that got to travel on the space shuttle.
They are currently attempting to get a grant from Pepsi. All it takes is people voting for their cause. You can vote daily at:
I will definitely vote too since Caitlin is on this program! I love it!
Just to clarify, I am not in the Canadian area. I am in Texas (I was the one who posted about this.). Our hospital is very active in it because I see alot of children on the CCBD (Center for Cancer and Blood Disorders) wing with these necklaces and you can see what it means to them. I saw one little girl, probably no older than two, immediately put her hand out for a bead once she got her blood drawn. It is almost like a reward for the children but a diary for the parents!
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)
Current count (Feb 2011): 138
Current dose: 1 mcg/kg
Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
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