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Hematologist Recommendation

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2 years 5 months ago #71903 by jeffmiller
Hematologist Recommendation was created by jeffmiller
Good Morning,
Wondering if there are any hematologist recommendations for the northern Virginia/DC area.  Our son was diagnosed with ITP at 4 and is now 11.  We have been on Promacta for a number of years and and our counts are generally stable (on the lower end), but can fluctuate.  Seeking a Hematologist who really understands ITP, the whole body challenges that it presents, and has experience with Promacta.

Thank you in advance.

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2 years 5 months ago #71904 by MelA
Replied by MelA on topic Hematologist Recommendation
Hi Jeff,

I don't live anywhere near you - and I'm an adult with ITP.  However if there is a teaching hospital/university hospital near you I would check there. 

Also feel free to post this up in the adult section - seems like not many come to the children's section right now.

Sorry your son is still dealing with ITP 7 years later!!

Melinda

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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2 years 5 months ago #71905 by jeffmiller
Replied by jeffmiller on topic Hematologist Recommendation
Thank you for taking the time to reply.  Much appreciated!
The following user(s) said Thank You: MelA

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1 month 4 weeks ago #73482 by hinaullah
Replied by hinaullah on topic Hematologist Recommendation
Hello. My son was diagnosed last year and we are also in northern VA area. Have you found a hematologist that specializes yet? We currently go to INOVA, but looking for others to get a second opinion. 

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1 month 4 weeks ago #73483 by jeffmiller
Replied by jeffmiller on topic Hematologist Recommendation
Good afternoon.  Thank you for reaching out.  I'm sorry to hear about your son.  Unfortunately, no.  We were at Georgetown for the majority of his care, but there were some changes and it no longer became the ideal place for us to go.  Long story short, we now receive our care from Dr. Lambert at CHOP.  She is amazing!  She has a dedicated team to support platelet disorders, is an expert in the field of ITP, is on the board of medical advisors for PDSA, and has a unique understanding of the primary and secondary effects of ITP on children.  The arrangement works for us given our son's relative stability with his medication (Promacta for ~7 years).  We do have some bumps in road every now and then, but generally we maintain a fairly consistent, safe, platelet count.

It's a lot to wrap your arms around in the beginning.  If you have any other questions, please do not hesitate to reach out.      
  

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