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TOPIC: Splenectomy

Splenectomy 7 months 3 weeks ago #68160

  • Gkm1
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My sister was diagnosed with ITP early this year. She's 18.she has been on prednisone and cyclosporine. If she stops the drugs her platelets drops so fast. Haematologist is suggesting we do splenectomy. We aren't comfortable with it. Kindly seeking second opinion. Thank you

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Splenectomy 7 months 3 weeks ago #68169

  • mrsb04
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  • Diagnosis of ITP in 2014. Ex renal specialist nurse. I retired in Nov 2019 after 46 years on the front line. I firmly believe in empowering patients to be involved as much as possible in their care; always question medics about the evidence base they use.
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I would not entertain a splenectomy at my age let alone at 18. There is absolutely no guarantee it will work and the op is not without risks. There are many more medical treatments to try. Has haemo mentioned Promacta?

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Splenectomy 7 months 3 weeks ago #68171

  • Gkm1
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Thanks for the opinion.
We haven't tried promacta.

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Splenectomy 7 months 3 weeks ago #68179

  • Gkm1
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Mrs bo4
Kindly would wish to discuss something via WhatsApp. Is it possible. My WhatsApp contact +254720259763.

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Splenectomy 7 months 3 weeks ago #68183

  • mrsb04
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  • Diagnosis of ITP in 2014. Ex renal specialist nurse. I retired in Nov 2019 after 46 years on the front line. I firmly believe in empowering patients to be involved as much as possible in their care; always question medics about the evidence base they use.
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I don't have whats app. Send me a private message. Should be on the top right if you are logged in.

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Splenectomy 7 months 2 weeks ago #68190

  • JJ
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Read the latest treatment guidelines to see what is available before splenectomy.

ashpublications.org/bloodadvances/article/3/22/3780/428877/Updated-international-consensus-report-on-the

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Splenectomy 7 months 2 weeks ago #68198

  • MelA
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Gkm what is your sister's platelet count?
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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Splenectomy 7 months 1 week ago #68212

  • Gkm1
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JJ many thanks

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Splenectomy 7 months 1 week ago #68213

  • Gkm1
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MelA my sister's current platelets is 130

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Splenectomy 7 months 4 days ago #68265

  • MelA
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That is a good count Gkm - hope it stays up there for her!
Since your sister is 18 years old why not post your questions etc in the adult section, the General ITP Discussion - you may get more responses there.

Keep us posted!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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Splenectomy 7 months 3 days ago #68266

  • Gkm1
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MelA : Many thanks for the advice.

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