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TOPIC: Signs of remission

Signs of remission 2 years 1 month ago #64227

  • nellj21
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Hi All,

My daughter is about to turn 10 and is on 8 months of her ITP diagnosis. As you all know and experienced, it's been a rollercoaster ride. I am wondering what is everyone's experience in acute ITP and it's remission. If you've experienced this, what were your physical symptoms before you were considered in remission? I am looking or literature that describe this, and have not found any. Thank you for your time

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Signs of remission 2 years 1 month ago #64232

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Nell - a person is considered to be in remission when they can maintain a normal count without treatment. Symptoms don't have anything to do with it. A person can also have a partial remission, which is when counts stay above treatment range without treatment (50k or so).

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Signs of remission 2 years 1 month ago #64244

  • mrsb04
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  • Diagnosis of ITP in 2014. Ex renal specialist nurse. I retired in Nov 2019 after 46 years on the front line. I firmly believe in empowering patients to be involved as much as possible in their care; always question medics about the evidence base they use.
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As a nurse I would describe complete remission as when the count is normal without any treatment and partial remission as a count remaining stable whilst taking a 'maintenance' therapy.
e.g. If I manage to get completely off steroids stay on 50mg of Eltrombopag daily and maintain my current count.

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Signs of remission 2 years 1 month ago #64246

  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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mrsb, is that the way they define partial remissions for kidney issues / kidney transplants, or ?

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Signs of remission 2 years 1 month ago #64250

  • mrsb04
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  • Diagnosis of ITP in 2014. Ex renal specialist nurse. I retired in Nov 2019 after 46 years on the front line. I firmly believe in empowering patients to be involved as much as possible in their care; always question medics about the evidence base they use.
  • Posts: 1617
  • Karma: 7
  • Thank you received: 424
It's my understanding of the terms and applies to any medical condition

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