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thoughts about rituxan
- dawn1979
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We were to she Brianna's hemo doc on friday. she has been going on a count of 2 for months. So he said he wanted to try her on rituxan. If your child has tried it how was it. side effects how long did it work or not work just wondering. we have done ivig she has all the side effects but doesn't work for her any more.
thanks
Dawn
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- alisonp
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- ddinap@aol.com
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i also went gluten free during that initial time. not sure if you have considered diet changes either. they say less gluten and dairy helps reduce the body's inflammatory responses.
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- jselle
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- firkins
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It did not, however, give her permanent remission -- and we are back again in the single digits. With some concern, we are going to have a 3rd go at Rituxan in a month or so. My daughter has worked it out with her doctor to actually try and time it so she can have a summer out of the country again.
We are forever grateful for the reprieve Rituxan gave our daughter. I know it's a big leap. We went through a long discernment process and then, one day, we just knew we were ready. Good luck to you, whatever you decide. xoxo
Firkins (mom of Zoe (15) and Mia (13). Mia has ITP. Diagnosed 3/2012.
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- AmberLynn
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“Life is a theatre set in which there are but few practicable entrances.”
― Victor Hugo, Les Misérables
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- dawn1979
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- Sandi
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- Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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- athos45
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Hang in there. We parents here in PDSA know how you feel. I hope things get better for you.dawn1979 wrote: so 3 months ago brianna stated rituxan. after the frist wk counts went to 11. then after the second one they went back down to 2 and have been there every since. now her docs are wanting to take out her spleen. i feel like this is a very bad dream and i just need to wake up
Father of Tonio, 8 yrs old w Chronic ITP
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- firkins
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Sending lots of love and prayers. Firkins
Firkins (mom of Zoe (15) and Mia (13). Mia has ITP. Diagnosed 3/2012.
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