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Watch and wait

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4 months 6 days ago #73578 by Lul92
Watch and wait was created by Lul92
Hello everyone 
My 6 year old son is newly diagnosed with ITP (15/5/2024). He had many bruises and petechia all over his body. He has been suffering with nasal bleeding the past 10 months. Pediatrician think it’s acute ITP and we are doing watch and wait. 
When he was diagnosed his count was 15. A week later it was 51 (spontaneously/no treatment received). All his bruises and petechia disappeared within a week. 
We have an other appointment on Wednesday and here he will have a new blood draw. 

But…yesterday he got one new bruise on his leg and today he has one single blood blister in his mouth (wet purpura) - never had this before.
Im worried that his count is getting low again.

Has anyone experienced a spontaneous raise in platelets and sudden fall afterwards? 
 

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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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4 months 5 days ago #73579 by mrsb04
Replied by mrsb04 on topic Watch and wait
Par for the course with ITP I'm afraid, counts can fluctuate
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4 months 5 days ago #73580 by Lul92
Replied by Lul92 on topic Watch and wait
Is it possible that a very low count only causes a single small wet purpura in oral mucosa - but no petechia at all on the body and only a single small (1 cm ) bruise on one leg??
I’m really afraid of what tomorrow is hiding, when he will have blood work done

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  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
4 months 4 days ago - 4 months 4 days ago #73581 by mrsb04
Replied by mrsb04 on topic Watch and wait
All of us are different. I only ever get one or two wet purpura blisters orally and never with a count in double figures.
As for Petechia, I have had ITP for 10 years and never had it despite  many  counts  in single figures.  I can be covered in bruises even with a count above 30. 

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4 months 4 days ago #73582 by Lul92
Replied by Lul92 on topic Watch and wait
Thanks for replying. His count is 46 today (51 last week).
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