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Long flight with ITP

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2 months 1 week ago #73553 by HP
Long flight with ITP was created by HP
My 21-month-old son was diagnosed with ITP 40 days ago, initially presenting with a platelet count of 10. Subsequently, his platelet count decreased to 7, then 4, and finally 3. On April 30, he received IVIG treatment, and his latest platelet count has improved to 57. We are planning to travel from Canada to Iran. Is it safe for him to travel at this time? What would be the best time for him to travel?

Thanks:)

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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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2 months 1 week ago #73556 by mrsb04
Replied by mrsb04 on topic Long flight with ITP
That really is up to his doctors I think.

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2 months 1 week ago #73557 by MelA
Replied by MelA on topic Long flight with ITP
mrsb is right HP - this is something that should be discussed with your son's hematologist! His count may have risen with IVIg however for how long? What if his count goes back down to 3 while you are in Iran, do you have a plan? Please do get with his hematologist, your son is so young and so new to ITP.

Please keep us posted!

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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2 months 6 days ago - 2 months 6 days ago #73558 by HP
Replied by HP on topic Long flight with ITP
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2 months 6 days ago #73559 by HP
Replied by HP on topic Long flight with ITP

mrsb is right HP - this is something that should be discussed with your son's hematologist! His count may have risen with IVIg however for how long? What if his count goes back down to 3 while you are in Iran, do you have a plan? Please do get with his hematologist, your son is so young and so new to ITP.

Please keep us posted!
Thank you for your response. I spoke with his hematologist in Iran, and she mentioned that 24 hours before the flight, the platelet count should be at least 70, with no bleeding at all. His hematologist in Canada said that the platelet count should be at least 40. Tomorrow, a week after receiving the IVIG injection, my son will have a blood test, and we hope that his count will be more than 70. Actually, in Iran, I have better access to specialists and even medications than here in Canada. I hope that everything goes well.

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2 months 6 days ago #73560 by HP
Replied by HP on topic Long flight with ITP

That really is up to his doctors I think.
 
Thank you for your response. I spoke with his hematologist in Iran, and she mentioned that 24 hours before the flight, the platelet count should be at least 70, with no bleeding at all. His hematologist in Canada said that the platelet count should be at least 40. Tomorrow, a week after receiving the IVIG injection, my son will have a blood test, and we hope that his count will be more than 70. 

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2 months 5 days ago #73566 by MelA
Replied by MelA on topic Long flight with ITP
I too hope your son's count will come up to 70,000+ !! It sounds like you are from Iran and I know it is important to be able to go see relatives - it is good you have a hematologist there who will be able to help if your son's count would decrease!! If you are able to go I would want a count maybe a couple days after arriving just to be on the safe side. It sounds like your hematologist is good.

We did move to Tokyo and then Hong Kong shortly after my diagnosis and I was on prednisone when we left for Tokyo - but I am an adult so that makes a big difference.

Please let us know how your son is doing - I wish for you the opportunity to take this trip and that your son will do fantastic!!

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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