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IVIG
- nb9094
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- eklein
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Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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- ilovelucy407
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- it has been 3 years alreay since my knowledge of my ITP. it took a year but everything is back to normal and on 10-29-12 i gave blood so that i can help somone in the same condition i was in or worse. it is just a good deed that paid off in the short run.
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- Brandi
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He had his 5th round last Friday, June 8th. He usually lasts 4 weeks, although this time it was closer to 6 weeks. His counts are high for the first week (120,00+) and drop to the 30's or 40's the next week and then slowly decline after that.
- Brandi
Mom of 3 amazing boys (ages 10, 5/dx ITP 01/2012, and 9 months old)
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- dawn1979
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- nb9094
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Thank you.
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- dawn1979
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- Brandi
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- Brandi
Mom of 3 amazing boys (ages 10, 5/dx ITP 01/2012, and 9 months old)
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- nb9094
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Brandi, did you mean 5 day's of IVIG, or 5 different sessions of IVIG? Wonder why my Doc. sounds like that's it.
Did the Rx help? I havent even looked that up. Tired of spending my time looking this stuff up.
Thank you,
Neil
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- Brandi
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nb9094 wrote: Brandi, did you mean 5 day's of IVIG, or 5 different sessions of IVIG? Wonder why my Doc. sounds like that's it.
Did the Rx help? I havent even looked that up. Tired of spending my time looking this stuff up.
Thank you,
Neil
He has had 5 different IVIG sessions over the course of 21 weeks. He has formed a pattern where he needs it every 4 or so weeks. The first 2 weeks his platelets are high, in the low 100,000's. But then week number 3 they drop to the 30's and continue to decline. His last treatment was almost 2 weeks ago, so right now he's being a normal crazy 4 year old!
They only do a treatment when his platelets drop below 20,000. For others, they only treat when platelets are below 10,000. And some choose to not treat at all unless there are actual bleeding symptoms. My son is so active, and only 4 yrs old, so we follow the hematologist's advise and treat when he goes below 20,000. To be honest though, I may request that we wait a little longer before the next treatment. We usually end up waiting a week after the bad results before getting treatment (thank you, insurance company) and we do just fine. I might even wait until school starts again before doing another treatment.
The IVIG is definitely a band aide, and from what I've read (and from my son's case) it is normally for the numbers to drop again... and again... and again.
That being said, our cousin also had ITP when he was 4 yrs old (this was a few yrs ago). He had one IVIG treatment and that was all he needed! So every case is different.
- Brandi
Mom of 3 amazing boys (ages 10, 5/dx ITP 01/2012, and 9 months old)
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- nb9094
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Thank you very much
Neil
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