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ITP Conference 2019: Program


FRIDAY, JULY 26 (PATIENT-FOCUSED DRUG DEVELOPMENT MEETING)

9:00 - 11:00 AM: Registration


11:00 - 11:10 AM: Welcome, Introductions & Opening Remarks


11:10 - 11:30 AM: Background on Immune Thrombocytopenia (ITP)


TOPIC 1: Effects of ITP that Matter Most to Patients and Caregivers

11:30 - 12:00 PM: Panel Discussion on Topic 1 where a panel of patients and caregivers will provide comments

12:00 - 1:00 PM: Facilitated Group discussion by patients and patient representatives from the audience will be invited to contribute to the discussion


1:00 - 1:45 PM: Lunch


TOPIC 2: Patient Perspectives on Current Approaches to Treatments

1:45 - 2:15 PM: Panel discussion on Topic 2 where a panel of patients and caregivers will provide comments on Topic 2

2:15 - 3:15 PM: Facilitated Group discussion by patients and patient representatives from the audience will be invited to contribute to the discussion


3:15 - 3:45 PM: Open Public Comments


3:15 - 3:45 PM: Closing Remarks


4:00 - 5:00 PM: Patient Mixer

 



SATURDAY, JULY 27

8:00 - 9:00 AM: Registration, Continental Breakfast, Exhibits open


9:00 - 10:15 AM: ITP Treatment Guidelines Update


10:15 - 10:30 AM: Break


10:30 - 11:30 AM: Inquire & Inspire: patients ask the experts & share personal journeys (small group sessions)


11:30 - 11:45 AM: Break


11:45 AM - 12:45 PM: Breakout Sessions

  • Canadian Patients & Caregivers
  • Children with ITP: treatments, school & sports 
  • ITP in Adults


12:45 - 1:45 PM: Lunch Break with PDSA Medical Advisors


1:45 - 2:45 PM: Clinical Trials: why participate?


2:45 - 3:00 PM: Break


3:00 - 4:00 PM: Breakout Sessions

  • Inquire & Inspire: patients ask the experts & share personal journeys (small group sessions)
  • Women & Girls: the unique challenges of living with a bleeding disorder


4:00 - 4:15 PM: Break


4:15 - 5:15 PM: PDSA Patient-Centered Research (two recipients of PDSA research awards will present their research)


5:15 - 5:30 PM: Announcements


5:30 - 7:00 PM: Break


7:00 - 8:00 PM: Dinner Program


8:00 - 10:00 PM: Saturday Evening Family Fun Event

 



SUNDAY, JULY 28

9:00 - 10:30 AM: Continental Breakfast

  • Support Group Facilitators’ Breakfast (pre-registration requested)


10:30 - 11:30 AM: Keynote - TBA


11:30 - 11:45 AM: Break


11:45AM - 12:45 PM: Communicating with your Doctor


12:45 - 1:00 PM: Closing Remarks


Download Program


*A separate track for teens and young adults will run Friday & Saturday
**Agenda and speakers subject to change