ITP Conference 2019 - Frequently Asked Questions

Who should plan to attend ITP Conference 2019?

The annual update on immune thrombocytopenia (ITP) is for patients, caregivers, clinicians, researchers and industry.

What are the dates and times for the conference?

The 19th annual ITP Conference will take place in Washington, D.C. from July 26-28, 2019 at the Fairmont Washington, D.C., Georgetown. The three-day conference begins with registration on Friday, July 26 at 9am, sessions start at 11am and the day will end at 5pm. Saturday, July 27 will begin with breakfast at 8am and sessions beginning at 9am and running until 5:30pm. A family fun event will take place on Saturday evening from 8pm to 10pm. Sunday’s session will begin with breakfast at 9am and wrapping up the day by 1pm.

How much is registration?

There are various registration levels based on membership, age, days attending, etc. Anyone planning to attend sessions and/or meals needs to be registered for the conference. All registration rates can be found here.

Do I have to stay at the conference hotel?

While not required, it does make it convenient to stay at the conference hotel. If you plan to stay at the Fairmont Washington, D.C., Georgetown, please reserve your room as soon as possible to receive our special conference rate of $149.00 a night (king or queen/queen), plus tax. This rate is for 2 adults or a family of 4 with children under age 18. Triple and quad occupancy rate is $179.00 per night. This special PDSA rate is also available for conference attendees three days before and three days after the conference. This special rate applies to reservations that are made by July 3, 2019, as long as rooms at the hotel are available. We encourage you to make your hotel reservation early to ensure room availability. Reservations can be made online here, or by calling 800-441-1414 and referencing the group code Platelet Disorder Support Association.

Are there scholarships available to attend the conference?

Yes! Partial scholarships cover conference registration for two people and your hotel room for 2 nights (Friday and Saturday). The registration form (hyperlink to paper form) must be completed along with a letter describing your diagnosis, your financial need and the benefit you hope to derive from attending the conference. All materials are returned to Brenda Foster by email at or via mail to PDSA, 8751 Brecksville Road, Suite 150, Cleveland, OH 44141. The deadline to apply for a partial scholarship is June 28, 2019. Please note that travel costs are not included in the partial scholarship. Due to the limited number of scholarships available, they will be awarded on a first come, first serve basis and preference is given to first-time attendees. You MUST be a PDSA member to be eligible for a scholarship. Scholarships are only awarded for full, 3-day conference registrations.

Do I need a ticket for admission into sessions and meals?

Upon registration at the conference, all attendees will receive a personalized name badge. These name badges must be worn at all times during the conference sessions and conference meals. Admission to these activities is restricted to badge holders only.

What is the dress code?

All sessions are casual attire and will be held in the hotel meeting rooms which are air-conditioned. However, please remember, everyone has their own personal preferences for temperature and it is often difficult to control temperatures in a hotel setting. It is recommended to bring along a light jacket or sweater to the session rooms. Dress for the Saturday evening family fun event is casual.

What is the program for the weekend?

Details about the program can be found here.

Who will be presenting information at the conference?

A full list of all the speakers can be found here.

What is the PFDD Meeting?

On the first day of the conference, Friday, July 26, PDSA is organizing an externally-led patient-focused drug development meeting (EL-PFDD). As North America’s leading organization dedicated to empowering ITP patients, PDSA has been approved by the U.S. Food and Drug Administration (FDA) to lead this workshop to enhance the understanding of ITP and the patient experience by regulators, researchers, clinicians and industry. More details about this important meeting can be found here.

Will there be anything on Saturday after the last session?

A complementary one-hour dinner program will take place on Saturday evening at 7pm, sponsored by Amgen. While this dinner is free for all attendees, a separate registration is required to attend the dinner. You will receive an email with information on how to register for the dinner prior to the start of the conference. On-site registration for the dinner may be available on a very limited basis.

What is the Saturday Night Family Fun Event?

We encourage all attendees and their families to join us on Saturday evening from 8pm to 10pm as we have a relaxed, fun event in the conference space. There will be a cash bar available to adult attendees.

I have registered children for the conference. Do they have planned activities?

PDSA offers Kids Kamp for all registered conference attendees ages 5-12. Kamp will take place during all sessions of the conference on Friday, Saturday and Sunday. Children will go to meals and breaks with families. Healthy snacks and water will be provided during Kamp as well. If you have a child interested in attending Kamp, you will need to fill out a waiver prior to them participating.

I have a teen attending the conference. Will there be sessions for them?

Yes! We have a special teen track on Friday and Saturday, which is facilitated by our Medical Advisor and Pediatric Hematologist, Dr. Michael Tarantino and staff from his office. Any teen and young adult registered for the conference is welcome to participate in this track.

Will meals be provided?

As part of your conference registration, lunch on Friday and Saturday, breakfast on Saturday and Sunday, a patient mixer on Friday and the Saturday evening family-fun event are all included in your registration fees.

I have special dietary needs. Can those be accommodated?

While we try to offer a variety of food options at each meal, we cannot specifically cater to each dietary need. Please feel free to ask the hotel staff serving the meals for assistance in identifying options that are available for your special needs.

Will I be able to talk with the doctors and/or industry professionals in attendance?

We do make every opportunity available for you to talk with the various experts presenting at the conference, although one-on-one scheduled meetings cannot be accommodated. During session breaks, you are encouraged to talk with the exhibitors in the exhibit hall and with the professionals and presenters, based on availability. There will be 2 small group sessions on Saturday with a hematologist where questions can be addressed as well.

Will industry exhibitors be at the conference?

Some of our sponsors will exhibit products and services directly related to ITP. Only vendors who have permission from PDSA will be allowed to distribute materials. You will have time between sessions and on breaks to speak with the exhibitors and industry representatives.

I made all my reservations but I still have questions. Who do I contact?

We are happy to answer any questions you might have about the conference. Please contact Jody Shy, Programs and Events Manager, at the PDSA office at 877-528-3538 or via email at As always, check our website for the most up-to-date information about ITP Conference 2019.



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