There is no cure for ITP. Although more is known about the disease each year and new treatments have recently become available, there are many unanswered questions.
The Platelet Disorder Support Association has established a research fund to support initiatives that lead to better outcomes for the people we serve.
Research Fund Donation
You can contribute to our research fund on-line or send a check or credit card number to:
133 Rollins Avenue
Rockville, MD 20852
(All contributions to our research fund are tax deductible.)
In 2001 PDSA worked with Dr. James Bussel of the Weill Medical Center of Cornell University to develop a survey of non-traditional treatments of ITP. Almost 1,000 people responded. You can view the results here.
Quality of LIfe
In 2006 PDSA partnered with Amgen to design and administer a survey assessing the treatment experience and life impact of ITP. This research study led to three journal articles and a poster session at the 2008 meeting of the International Society for Pharmacoeconomics and Outcomes Research (ISPOR).
PDSA meets regularly with directors of the National Heart Lung and Blood Institute and the Office of Rare Diseases at the National Institutes of Health and the American Society of Hematology to monitor the research progress on relevant studies and initiatives.
PDSA tracks and lists the latest Clinical Trials on ITP to assure that those who want to participate are aware of these opportunities.