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ITP Conference 2009

Conference Homepage

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The Platelet Disorder Support Association’s 2009 ITP Conference was held June 26-28 at the Wyndham Orlando Resort in Florida. The beautifully landscaped hotel was ideally located to many Orlando theme parks and attractions. Over 200 people attended the conference and found it amazing and wonderful! 

The conference began Friday night with a mixer led by Peter Pruitt, Board Chairman, after which  Dr. James Bussel presented on the latest developments in ITP.  The evening ended with a delicious topping of an ice cream social. 

Saturday was full of information shared by medical researchers and clinicians, renowned authors and other professionals with strong interests in helping ITP patients improve their health.  Presentations included the pros and cons of ITP treatment options with a panel of noted hematologists, as well as different sessions for adults with ITP with Dr. Howard Liebman, children and ITP with Dr. Bussel, and psychologist Dr. Robert Phillips teaching everyone how to cope with a chronic illness.  Two new exciting sessions were added this year – specific issues relating to women with ITP with Dr. Andra James and the challenges of ITP particular for teens (no adults allowed!) with Dr. Michael Tarantino.

In addition to the conference agenda, two complimentary educational programs were offered.  Baxter presented a lunchtime Enlighten Program, “Sharing Support, Hope, and Awareness within the ITP Community” and Amgen offered a dinner program, “Nplate® (romiplostim) Clinical Overview and Patient Assistance Programs”.

Saturday ended with an enjoyable evening poolside pavilion party featuring the authentic, award-winning Caribbean Crew Steel Band.  Everyone enjoyed refreshments, limbo and hula hoop contests, dancing the conga line, and raffle drawings for prizes.

Sunday began with a breakfast for current and potential local support group facilitators where ideas were shared and discussed on how to reach ITP patients, run meetings and raise funds for PDSA and ITP. The weekend concluded with Pamir Kiciman giving a background on Reiki, Dr. Lisa Nagy educating about using environmental medicine to improve one’s health, and Barbara Pruitt and Joan Young sharing their experiences living with ITP.

Another informative, valuable and very successful conference!

Here is what others have said about our conferences:

  • “Thank you for the wonderful and uplifting conference.”
  • “Having access to specialists was wonderful, they were able to answer a lot of my questions.”
  • “This is my first conference.  I wish I had come before.  I have had ITP for 6 years and now I know more about it and feel 'better' about having it, knowing others have been dealing with ITP as long and longer than I have.”
  • “Gaining a better understanding of ITP and treatments and meeting others with ITP”
  • "The hotel and food were great"

We thank our conference sponsors: