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PDSA E-News: December 30, 2014

  • News from the American Society of Hematology (ASH) Annual Meeting
  • ITP Diagnosis Harder in Patients with Moderate Counts and Low Treatment Response
  • Bleeding Episodes and Treatments Need to be Tracked
  • Screen for Hepatitis B Before Getting Rituxan®
  • Dexamethasone Better than Prednisone in Newly Diagnosed
  • Switching TPOs May Help
  • Better Response to TPOs If Patient Doesn't Have Anti-GP1b Antibodies
  • Lower Quality of Life Reported in Younger ITP Kids and Those With More Side Effects
  • Eltrombopag® Effective in Raising Platelet Counts in Children with ITP
  • Higher Counts After Splenectomy Signal Higher Success Rate
  • Splenectomy Increases Risk of Infection and Cardiovascular Problems

View E-News

PDSA E-News: November 30, 2014

  • Great Ways to SHOP, SAVE & GIVE This Holiday Season
  • Research Finds Predictors of Chronic Childhood ITP
  • Bridging ITP Study
  • Medications Are Leading Cause of Allergic Deaths in the US
  • Cranberries Help the Immune System Fight Colds and Flu

View E-News

PDSA E-News: October 28, 2014

  • ITP Conference 2015: Save the Date
  • After Ebola Concerns PPTA Assures Safety Procedures for Plasma Protein Therapies
  • Rigel Pharmaceuticals Initiates Phase 3 Studies of Fostamatinib in ITP Patients
  • New CDC Survey Findings on Young Women and Bleeding Disorders
  • A Green Apple a Day May Keep Obesity Away

View E-News

PDSA E-News: September 30, 2014

  • Sport Purple for Platelets Day™ photos
  • A Protein in Blood Helps Stop Bleeding and Also Prevents Life-Threatening Clots
  • Buzzy® Gets FDA Approval for Controlling Needle Pain
  • New Federal Law Gives Patients Direct Access to Test Results
  • Artificial Sweeteners Linked to Spikes in Blood Sugar Levels

View E-News

PDSA E-News: August 31, 2014

  • September is ITP Awareness Month - the PUSH is on!
  • Combined IVIg and Steroid Treatment Benefits Children with Primary ITP
  • Self-Administration of Nplate® Found Just As Effective and Safe as Administration by Healthcare Providers
  • Hospitals Cut Costs by Finding Ways to Save Money on Blood Storage and Usage
  • Celery - Not Just For Dieters Anymore

View E-News

PDSA E-News: July 28, 2014

  • ITP CONFERENCE 2014 - a huge success
  • FDA Approves New IVIg Treatment for Chronic ITP Patients
  • NovoSeven® RT for Treatment of Patients with Glanzmann's Thrombasthenia (GT) is FDA Approved
  • New Simple Breath Tests Spot Disease
  • Don't Let Bug Bites Ruin Your Summer

View E-News

PDSA E-News: June 30, 2014

  • ITP CONFERENCE 2014 is right around the corner
  • Positive Results for Pediatric Study of Eltrombopag in Children with Chronic ITP
  • High-Dose Dexamethasone and Eltrombopag Combo Raised Platelets in Adults with ITP
  • Emergency Rooms More Crowded Since the Affordable Care Act Took Effect in January 2014
  • Experts Urge Changes in Lifestyle Behaviors to Prevent Cancer

View E-News

PDSA E-News: May 31, 2014

  • ITP CONFERENCE 2014 Keynote Speaker
  • Researchers Find Impaired Proplatelet Formation Contributes to Decreased Platelets in ITP
  • Novel Treatments Being Developed for Immune Thrombocytopenia
  • New Injectable Bandages Stop Heavy Bleeding in Just 15 Seconds
  • Consumer Group Urges Caution in Use of Artificial Sweetener Sucralose
  • HELPFUL MATERIALS: All FREE from PDSA!
  • Living with ITP: Emily A.'s Story

View E-News

PDSA E-News: April 30, 2014

  • ITP CONFERENCE 2014
  • Steroid Treatment Changes Platelet Activation
  • Rituximab Treatment Impairs Vaccine Response and Raises Infection Risk
  • New Optical Device Rapidly Measures Blood Clotting Properties
  • BPA Replacement in Paper Receipts Can Alter Hormones
  • HELPFUL MATERIALS: All FREE from PDSA!
  • Living with ITP: Dale's Story

View E-News

PDSA E-News: March 31, 2014

  • The Audi Gerstein Platelet Disorder Scholarship for Undergraduate/Graduate Students with Platelet Disorders
  • New Study Aims to Develop Improved Artificial Platelets
  • Eltrombopag Increased Platelet Counts in Chronic ITP Patients Prior to Surgery
  • Is Your Hospital Safe?
  • New Studies Show How Dark Chocolate Helps the Cardiovascular System
  • ITP CONFERENCE 2014: Register Today!
  • LIVING WITH ITP: Joan Young's story

View E-News

PDSA E-News: February 28, 2014

  • NEW MEMBERS GET OUR NEW DVD: Living with ITP: Patients Share their Stories
  • TPO Levels Help with ITP Diagnosis and Predicting Response to TPO Treatments
  • ITP Patients Treated with Anti-Rh(D) Most Likely to Have Longer Remission
  • Newly Discovered Mutation of "Fc receptor" Immune Protein May Help Scientists Develop Better Treatment for Autoimmune Diseases
  • Acid-Suppressing Medications Reduce B-12 and Raise Risk of Bone Fractures
  • ITP CONFERENCE 2014: Register Today!
  • PRINT MEDIA: Mystery Solved!
  • The Audi Gerstein Platelet Disorder Scholarship for Undergraduate/Graduate Students with Platelet Disorders

View E-News

PDSA E-News: January 31, 2014

  • Announcing ITP Conference 2014
  • Switching TPOs Found Helpful for Chronic ITP Patients
  • Romiplostim Raises Platelets for Half of Chronic ITP Children
  • FDA Asks Doctors to Limit Combination Prescription Pain Killers
  • Meditation Changes Gene Expression in Humans
  • TV & VIDEO: ITP Patient Meets Peyton Manning
  • PRINT MEDIA: Bone Marrow Transplant

View E-News

In your darkest moments you may think there is nothing else you can do to improve your health. Not true. We believe there is always something else you can do…or think…or feel…that can raise your platelet odds.

Here’s a list of suggestions that are cheap, won’t keep you up at night and just might unlock your healing response.

Our readers report and we concur…good health is often the result of many small changes that sum to a large impact. Just read our letters and stories.

This is quite a long list. Just pick a few of your favorite ideas and try them. You can add more later. Get your family and friends to join you. Everyone can benefit.

Now begin to:

  1. Breathe – Take 20 minutes a day to just breathe slowly and deeply, raising and lowering your abdomen. Breathing slowly reduces stress and activates neurotransmitters found in the lungs.
  2. Avoid Toxins – Use natural cleaning products, natural pesticides, low volatile paints, organic fertilizers, etc. Avoid perfumes and scented products. Chemicals and pesticides have been shown to interfere with the immune system and create unhealthy free radicals in the body.
  3. Avoid Plastic Containers – Store food in ceramic or glass dishes and containers. The chemicals in plastics have been shown to interfere with cell development.
  4. Reduce Stress – Look at the people and situations that create stress in your life and try to find ways to reduce the stress. Yoga and meditation often help. Stress has been shown to aggravate many diseases.
  5. Think Positive – Imagine yourself well. Replace any negative thoughts with positive ones. Think of positive things you want to happen in the future. According to many research studies positive thinking can enhance your chances of feeling better.
  6. Connect to a Higher Power – Pray or seek other spiritual guidance consistent with your beliefs. Research has shown that this type of connection can assist in improving health.
  7. Consider Energy Therapy – Reiki, Qi-gong, and other subtle energy therapies can activate a healing response. You can learn some of these and do them yourself or you can seek a qualified practitioner.
  8. Exercise – Find an exercise program you like and that fits your health situation. It could be walking, yoga, dancing. Use your imagination.
  9. Breathe Clean Air – Avoid smoky (and smoking), musty, dank, dusty environments. Particulates and mold can cause or exacerbate autoimmune diseases.
  10. Avoid Mercury – If you need a tooth filled, avoid mercury fillings. Avoid eating fish that is high in mercury. Dispose of mercury thermometers. Mercury has been shown to exacerbate autoimmune disease.
  11. Listen to your body – Stay in touch with your inner self and follow your body’s suggestions if they are health oriented. Sleep when you need rest. Eat when you’re hungry. Stay in the sun when your body wants the warmth.
  12. Be with People who Enliven You – Sometimes you feel better after being with someone. Other times you may feel deadened and drained. Choose to be with people who brighten your spirits.
  13. Take Time for your Favorite Things – Bring as much joy into your life as possible. Listen to music. Grow flowers. Watch the birds and rabbits. Sing. Make your own list.
  14. Reduce Negative Input – Reduce the amount of time you spend watching the news, reading scary stories and watching TV shows with violent themes. These have been shown to promote stress reactions.
  15. Live in a Positive Space – Remove clutter from your environment. Organize your things. Fix anything that’s broken. Clean things that are dirty. Surround yourself with items that help you smile and feel good. Read a Feng Shui book for more suggestions.
  16. Get the Right Amount of Sleep – Attempt to sleep from seven to nine hours per night. Research has shown that both too little and too much sleep can aggravate health problems. Ayurvedic medicine recommends that you go to bed before 10:00 PM and arise around 6:00 AM for optimal health.
  17. Avoid Allergic Triggers – Find out if you are allergic to any food and other things around you then eliminate or avoid them, if possible. For example: use a hepa filter vacuum and/or air cleaner and dust protector pillow cases if you are allergic to dust. Allergic reactions are another sign of an overactive and misguided immune system.
  18. Do Fun Things – Create opportunities to smile and laugh. Know what brightens your spirits and puts a grin on your face, then find time to do these things. Norman Cousins set the standard with his book, “Anatomy of an Illness” when he described how watching Marx Brother’s films helped him heal.
  19. Avoid Drugs That Can Interfere with Platelets - The medical literature is filled with accounts of prescription products that can reduce platelet counts or inhibit their action. While some of these are allergic reactions and will not apply to everyone, it is good to know the possibilities.
  20. Get Help and Hugs - Find others who will listen. Talk about your feelings. Ask for help when you need it and accept the help that’s offered. Bask in hugs and warmth.

Many journal articles have been published about ITP. Most are written for medical professionals. If you can get past the vocabulary, they often contain helpful information. You can search medical journals and get copies at the National Medical Library and PubMed of the National Institutes of Health, your hematologist, or local medical library. You can enter a selection profile on the Medfetch site and new journal articles will be sent to your e-mail address.

Some of the most popular journals are the New England Journal of Medicine, the British Medical Journal, and Blood (American Hematology Association)

Because there are so many articles, The New England Journal of Medicine provides collections.  Here's their collection on thrombocytopenia.

See the Treatment Guidelines page for links to comprehensive treatment articles specific to ITP.

Each month we send a FREE online E-newsletter to those people who provide us with their e-mail address. If you would like to receive our monthly E-news and periodic mailings from PDSA, please register on our Web site:
Register

Most Recent Issues of the PDSA E-News:

Click on the link below to view our latest E-News issues. Use the links to the right to view previous issues or use our Web site Search feature to help find articles.
2015 E-NEWS

For More News:

For the latest medical news check the health listings at:


The Platelet News

The Platelet News is a 28-page quarterly newsletter published by the Platelet Disorder Support Association. It is sent only to PDSA members via US mail or optionally e-mailed in .pdf version (e-mail only outside US and Canada in text format or .pdf).

If you would like to become a new member, need to renew your annual membership, or are unsure if your membership has expired, please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it. or call toll free at (877) 528-3538 and we will assist you with your membership needs. You can also sign up online:
Become a PDSA Member



The Platelet News is the newsletter of the Platelet Disorder Support Association.  It is published quarterly and sent to the members of PDSA via US mail or optionally e-mailed in .pdf version (send by e-mail only outside US and Canada in text format or .pdf). Its pages are filled with helpful articles, news, book reviews, and interviews written by physicians, nurses, and people like you who have learned much from their disease . The reports are in. Our members can't wait for the next issue.Get Adobe Reader

BECOME A MEMBER AND RECEIVE YOUR SUBSCRIPTION


Order Back Issues by Mail - Mail a check to PDSA (US check from US bank), 8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141 with a note indicating the issues you would like us to send you.

Call Toll Free
: 1-87-Platelet (1-877-528-3538)

 

CLICK HERE FOR ADDITIONAL PUBLICATIONS



Diet Information

In our Survey of Non-Traditional Treatments in ITP about 40% of the responders reported some improvement in their bleeding symptoms and their platelet count with either the macrobiotic diet or the diet recommended in Eat Right for Your Type by Dr. Peter J. D’Adamo. Less success was reported for the Atkins and Zone diets, high protein, low carbohydrate diets.

The recommendations listed in this article are based on principals from the macrobiotic and “Eat Right” diet, general nutritional research and research linking the impact of diet changes on other diseases that have common features with ITP.

If you would like to implement some of the diet changes listed in this article, please make the changes slowly so your body can adjust. Sometimes diet changes can cause withdrawal and detoxification symptoms as your body adjusts to the new foods and eliminates the old.

These suggestions are guidelines only. Be sure to discuss any diet changes with your physician.

  1. Eat a wide variety of fresh food
    Maximize the value of each bite. Eat food from as close to the source as possible and as soon as possible. Avoid canned and frozen foods and leftovers. The nutritional value of food deteriorates with time. A wide variety of food assures your body gets the variety of nutrients it needs.
  2. Eat whole foods
    Eat whole grain cereals, brown rice, and whole wheat products. Reduce the amount of white flour, white rice and processed foods. Processed grains are stripped of their natural nutrient-rich coating.
  3. Eat organic foods
    Eat un-sprayed foods grown using natural fertilizers. Some pesticides and herbicides have been shown to exacerbate autoimmune diseases and lower platelets. Additives and preservatives can increase the disease-causing free radicals in your body.
  4. Reduce sugar
    Reduce the amount of white refined sugar as well as fructose, corn syrup, honey and other sweeteners. Limit fruit and fruit juice. Sugar contributes to an acidic disease-promoting body condition.
  5. Reduce dairy products
    Reduce or eliminate milk, cheese, ice cream, and yogurt from your diet based on your reaction to these foods and other dietary needs. Dairy foods have been shown to contribute to mucus formation and exacerbate some autoimmune diseases.
  6. Eat healthy fats
    Use cold pressed oils such as olive or canola in cooking and baking. Avoid hydrogenated, partially hydrogenated or trans-fats. These contribute to free radical damage. Reduce the amount of deep fried food which also adds to the free radical load.
  7. Eat green
    Eat as many leafy greens as possible, especially kale and collards. Add sea vegetables (sea weed) to your diet. These choices contain large amounts of calcium, minerals, and vitamin K to help clotting.
  8. Limit meat
    Rely on lean, white fish, whole grains and beans and some nuts for protein. Meat is often laced with residual antibiotics, hormones, and saturated fat.
  9. Avoid problem foods
    Avoid alcoholic beverages which can damage bone marrow. Reduce the amount of blueberries, red/purple grape products, garlic, onions, ginger, ginseng, and tomatoes. These foods can interfere with blood clotting. Avoid food and drinks containing quinine. These can lower platelets.
  10. Avoid allergic foods
    Many people have delayed food allergies that produce vague and difficult-to-diagnose symptoms. If you don’t feel well, consider having a food allergy test.
  11. Chew your food well
    Chewing each bite until it is liquid can aid digestion, aid the passage of nutrients into your blood stream, and promotes healthy alkaline blood chemistry.
  12. Drink pure warm water
    Drink plenty of filtered or bottled water at room temperature or above. Taking periodic sips of hot water can cleanse impurities from the body. Ice water can slow and hinder the digestive process. Tap water may contain small amounts of chemicals that are harmful.

Lifestyle Information

Twenty Steps to Better Health

In your darkest moments you may think there is nothing else you can do to improve your health. Not true. We believe there is always something else you can do…or think…or feel…that can raise your platelet odds.

Here’s a list of suggestions that are cheap, won’t keep you up at night and just might unlock your healing response.

Our readers report and we concur…good health is often the result of many small changes that sum to a large impact. Just read our letters and stories.

This is quite a long list. Just pick a few of your favorite ideas and try them. You can add more later. Get your family and friends to join you. Everyone can benefit.

Now begin to:

  1. Breathe
    Take 20 minutes a day to just breathe slowly and deeply, raising and lowering your abdomen. Breathing slowly reduces stress and activates neurotransmitters found in the lungs.
  2. Avoid Toxins
    Use natural cleaning products, natural pesticides, low volatile paints, organic fertilizers, etc. Avoid perfumes and scented products. Chemicals and pesticides have been shown to interfere with the immune system and create unhealthy free radicals in the body.
  3. Avoid Plastic Containers
    Store food in ceramic or glass dishes and containers. The chemicals in plastics have been shown to interfere with cell development.
  4. Reduce Stress
    Look at the people and situations that create stress in your life and try to find ways to reduce the stress. Yoga and meditation often help. Stress has been shown to aggravate many diseases.
  5. Think Positive
    Imagine yourself well. Replace any negative thoughts with positive ones. Think of positive things you want to happen in the future. According to many research studies positive thinking can enhance your chances of feeling better.
  6. Connect to a Higher Power
    Pray or seek other spiritual guidance consistent with your beliefs. Research has shown that this type of connection can assist in improving health.
  7. Consider Energy Therapy
    Reiki, Qi-gong, and other subtle energy therapies can activate a healing response. You can learn some of these and do them yourself or you can seek a qualified practitioner.
  8. Exercise
    Find an exercise program you like and that fits your health situation. It could be walking, yoga, dancing. Use your imagination.
  9. Breathe Clean Air
    Avoid smoky (and smoking), musty, dank, dusty environments. Particulates and mold can cause or exacerbate autoimmune diseases.
  10. Avoid Mercury
    If you need a tooth filled, avoid mercury fillings. Avoid eating fish that is high in mercury. Dispose of mercury thermometers. Mercury has been shown to exacerbate autoimmune disease.
  11. Listen to your body
    Stay in touch with your inner self and follow your body’s suggestions if they are health oriented. Sleep when you need rest. Eat when you’re hungry. Stay in the sun when your body wants the warmth.
  12. Be with People who Enliven You
    Sometimes you feel better after being with someone. Other times you may feel deadened and drained. Choose to be with people who brighten your spirits.
  13. Take Time for your Favorite Things
    Bring as much joy into your life as possible. Listen to music. Grow flowers. Watch the birds and rabbits. Sing. Make your own list.
  14. Reduce Negative Input
    Reduce the amount of time you spend watching the news, reading scary stories and watching TV shows with violent themes. These have been shown to promote stress reactions.
  15. Live in a Positive Space
    Remove clutter from your environment. Organize your things. Fix anything that’s broken. Clean things that are dirty. Surround yourself with items that help you smile and feel good. Read a Feng Shui book for more suggestions.
  16. Get the Right Amount of Sleep
    Attempt to sleep from seven to nine hours per night. Research has shown that both too little and too much sleep can aggravate health problems. Ayurvedic medicine recommends that you go to bed before 10:00 PM and arise around 6:00 AM for optimal health.
  17. Avoid Allergic Triggers
    Find out if you are allergic to any food and other things around you then eliminate or avoid them, if possible. For example: use a hepa filter vacuum and/or air cleaner and dust protector pillow cases if you are allergic to dust. Allergic reactions are another sign of an overactive and misguided immune system.
  18. Do Fun Things
    Create opportunities to smile and laugh. Know what brightens your spirits and puts a grin on your face, then find time to do these things. Norman Cousins set the standard with his book, “Anatomy of an Illness” when he described how watching Marx Brother’s films helped him heal.
  19. Avoid Drugs That Can Interfere with Platelets
    The medical literature is filled with accounts of prescription products that can reduce platelet counts or inhibit their action. While some of these are allergic reactions and will not apply to everyone, it is good to know the possibilities.
  20. Get Help and Hugs
    Find others who will listen. Talk about your feelings. Ask for help when you need it and accept the help that’s offered. Bask in hugs and warmth.



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ITP Conference DVD

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Free Materials

Diet & Lifestyle Information

Research linking the impact of diet changes on other diseases that have common features with ITP.
DIET & LIFESTYLE INFO

PDSA Newsletters

Twenty-plus pages of informative articles, sent quarterly to our members. Become a member.
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NEWSLETTERS

Journal Articles & Journal Abstacts

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