Login  |  Logout  |  Register  |  Search PDSA.org  |  Help  |  Contact Us
Education.  Advocacy.  Research.  Support.
Connect with PDSA on FacebookFollow PDSA on TwitterPDSA's YouTube ChannelPDSA's LinkedIn Profile

Products & Publications (28)

Children categories

  • Sport Purple for Platelets Day™ photos
  • A Protein in Blood Helps Stop Bleeding and Also Prevents Life-Threatening Clots
  • Buzzy® Gets FDA Approval for Controlling Needle Pain
  • New Federal Law Gives Patients Direct Access to Test Results
  • Artificial Sweeteners Linked to Spikes in Blood Sugar Levels

View E-News

  • September is ITP Awareness Month - the PUSH is on!
  • Combined IVIg and Steroid Treatment Benefits Children with Primary ITP
  • Self-Administration of Nplate® Found Just As Effective and Safe as Administration by Healthcare Providers
  • Hospitals Cut Costs by Finding Ways to Save Money on Blood Storage and Usage
  • Celery - Not Just For Dieters Anymore

View E-News

  • ITP CONFERENCE 2014 - a huge success
  • FDA Approves New IVIg Treatment for Chronic ITP Patients
  • NovoSeven® RT for Treatment of Patients with Glanzmann's Thrombasthenia (GT) is FDA Approved
  • New Simple Breath Tests Spot Disease
  • Don't Let Bug Bites Ruin Your Summer

View E-News

  • ITP CONFERENCE 2014 is right around the corner
  • Positive Results for Pediatric Study of Eltrombopag in Children with Chronic ITP
  • High-Dose Dexamethasone and Eltrombopag Combo Raised Platelets in Adults with ITP
  • Emergency Rooms More Crowded Since the Affordable Care Act Took Effect in January 2014
  • Experts Urge Changes in Lifestyle Behaviors to Prevent Cancer

View E-News

  • ITP CONFERENCE 2014 Keynote Speaker
  • Researchers Find Impaired Proplatelet Formation Contributes to Decreased Platelets in ITP
  • Novel Treatments Being Developed for Immune Thrombocytopenia
  • New Injectable Bandages Stop Heavy Bleeding in Just 15 Seconds
  • Consumer Group Urges Caution in Use of Artificial Sweetener Sucralose
  • HELPFUL MATERIALS: All FREE from PDSA!
  • Living with ITP: Emily A.'s Story

View E-News

  • ITP CONFERENCE 2014
  • Steroid Treatment Changes Platelet Activation
  • Rituximab Treatment Impairs Vaccine Response and Raises Infection Risk
  • New Optical Device Rapidly Measures Blood Clotting Properties
  • BPA Replacement in Paper Receipts Can Alter Hormones
  • HELPFUL MATERIALS: All FREE from PDSA!
  • Living with ITP: Dale's Story

View E-News

  • The Audi Gerstein Platelet Disorder Scholarship for Undergraduate/Graduate Students with Platelet Disorders
  • New Study Aims to Develop Improved Artificial Platelets
  • Eltrombopag Increased Platelet Counts in Chronic ITP Patients Prior to Surgery
  • Is Your Hospital Safe?
  • New Studies Show How Dark Chocolate Helps the Cardiovascular System
  • ITP CONFERENCE 2014: Register Today!
  • LIVING WITH ITP: Joan Young's story

View E-News

  • NEW MEMBERS GET OUR NEW DVD: Living with ITP: Patients Share their Stories
  • TPO Levels Help with ITP Diagnosis and Predicting Response to TPO Treatments
  • ITP Patients Treated with Anti-Rh(D) Most Likely to Have Longer Remission
  • Newly Discovered Mutation of "Fc receptor" Immune Protein May Help Scientists Develop Better Treatment for Autoimmune Diseases
  • Acid-Suppressing Medications Reduce B-12 and Raise Risk of Bone Fractures
  • ITP CONFERENCE 2014: Register Today!
  • PRINT MEDIA: Mystery Solved!
  • The Audi Gerstein Platelet Disorder Scholarship for Undergraduate/Graduate Students with Platelet Disorders

View E-News

  • Announcing ITP Conference 2014
  • Switching TPOs Found Helpful for Chronic ITP Patients
  • Romiplostim Raises Platelets for Half of Chronic ITP Children
  • FDA Asks Doctors to Limit Combination Prescription Pain Killers
  • Meditation Changes Gene Expression in Humans
  • TV & VIDEO: ITP Patient Meets Peyton Manning
  • PRINT MEDIA: Bone Marrow Transplant

View E-News

In your darkest moments you may think there is nothing else you can do to improve your health. Not true. We believe there is always something else you can do…or think…or feel…that can raise your platelet odds.

Here’s a list of suggestions that are cheap, won’t keep you up at night and just might unlock your healing response.

Our readers report and we concur…good health is often the result of many small changes that sum to a large impact. Just read our letters and stories.

This is quite a long list. Just pick a few of your favorite ideas and try them. You can add more later. Get your family and friends to join you. Everyone can benefit.

Now begin to:

  1. Breathe – Take 20 minutes a day to just breathe slowly and deeply, raising and lowering your abdomen. Breathing slowly reduces stress and activates neurotransmitters found in the lungs.
  2. Avoid Toxins – Use natural cleaning products, natural pesticides, low volatile paints, organic fertilizers, etc. Avoid perfumes and scented products. Chemicals and pesticides have been shown to interfere with the immune system and create unhealthy free radicals in the body.
  3. Avoid Plastic Containers – Store food in ceramic or glass dishes and containers. The chemicals in plastics have been shown to interfere with cell development.
  4. Reduce Stress – Look at the people and situations that create stress in your life and try to find ways to reduce the stress. Yoga and meditation often help. Stress has been shown to aggravate many diseases.
  5. Think Positive – Imagine yourself well. Replace any negative thoughts with positive ones. Think of positive things you want to happen in the future. According to many research studies positive thinking can enhance your chances of feeling better.
  6. Connect to a Higher Power – Pray or seek other spiritual guidance consistent with your beliefs. Research has shown that this type of connection can assist in improving health.
  7. Consider Energy Therapy – Reiki, Qi-gong, and other subtle energy therapies can activate a healing response. You can learn some of these and do them yourself or you can seek a qualified practitioner.
  8. Exercise – Find an exercise program you like and that fits your health situation. It could be walking, yoga, dancing. Use your imagination.
  9. Breathe Clean Air – Avoid smoky (and smoking), musty, dank, dusty environments. Particulates and mold can cause or exacerbate autoimmune diseases.
  10. Avoid Mercury – If you need a tooth filled, avoid mercury fillings. Avoid eating fish that is high in mercury. Dispose of mercury thermometers. Mercury has been shown to exacerbate autoimmune disease.
  11. Listen to your body – Stay in touch with your inner self and follow your body’s suggestions if they are health oriented. Sleep when you need rest. Eat when you’re hungry. Stay in the sun when your body wants the warmth.
  12. Be with People who Enliven You – Sometimes you feel better after being with someone. Other times you may feel deadened and drained. Choose to be with people who brighten your spirits.
  13. Take Time for your Favorite Things – Bring as much joy into your life as possible. Listen to music. Grow flowers. Watch the birds and rabbits. Sing. Make your own list.
  14. Reduce Negative Input – Reduce the amount of time you spend watching the news, reading scary stories and watching TV shows with violent themes. These have been shown to promote stress reactions.
  15. Live in a Positive Space – Remove clutter from your environment. Organize your things. Fix anything that’s broken. Clean things that are dirty. Surround yourself with items that help you smile and feel good. Read a Feng Shui book for more suggestions.
  16. Get the Right Amount of Sleep – Attempt to sleep from seven to nine hours per night. Research has shown that both too little and too much sleep can aggravate health problems. Ayurvedic medicine recommends that you go to bed before 10:00 PM and arise around 6:00 AM for optimal health.
  17. Avoid Allergic Triggers – Find out if you are allergic to any food and other things around you then eliminate or avoid them, if possible. For example: use a hepa filter vacuum and/or air cleaner and dust protector pillow cases if you are allergic to dust. Allergic reactions are another sign of an overactive and misguided immune system.
  18. Do Fun Things – Create opportunities to smile and laugh. Know what brightens your spirits and puts a grin on your face, then find time to do these things. Norman Cousins set the standard with his book, “Anatomy of an Illness” when he described how watching Marx Brother’s films helped him heal.
  19. Avoid Drugs That Can Interfere with Platelets - The medical literature is filled with accounts of prescription products that can reduce platelet counts or inhibit their action. While some of these are allergic reactions and will not apply to everyone, it is good to know the possibilities.
  20. Get Help and Hugs - Find others who will listen. Talk about your feelings. Ask for help when you need it and accept the help that’s offered. Bask in hugs and warmth.

Many journal articles have been published about ITP. Most are written for medical professionals. If you can get past the vocabulary, they often contain helpful information. You can search medical journals and get copies at the National Medical Library and PubMed of the National Institutes of Health, your hematologist, or local medical library. You can enter a selection profile on the Medfetch site and new journal articles will be sent to your e-mail address.

Some of the most popular journals are the New England Journal of Medicine, the British Medical Journal, and Blood (American Hematology Association)

Because there are so many articles, The New England Journal of Medicine provides collections.  Here's their collection on thrombocytopenia.

See the Treatment Guidelines page for links to comprehensive treatment articles specific to ITP.

Each month we send a FREE online E-newsletter to those people who provide us with their e-mail address. If you would like to receive our monthly E-news and periodic mailings from PDSA, please register on our Web site:
Register

Most Recent Issues of the PDSA E-News:

Click on the link below to view our latest E-News issues. Use the links to the right to view previous issues or use our Web site Search feature to help find articles.
2014 E-News

For More News:

For the latest medical news check the health listings at:


The Platelet News

The Platelet News is a 28-page quarterly newsletter published by the Platelet Disorder Support Association. It is sent only to PDSA members via US mail or optionally e-mailed in .pdf version (e-mail only outside US and Canada in text format or .pdf).

If you would like to become a new member, need to renew your annual membership, or are unsure if your membership has expired, please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it. or call toll free at (877) 528-3538 and we will assist you with your membership needs. You can also sign up online:
Become a PDSA Member



The Platelet News is the newsletter of the Platelet Disorder Support Association.  It is published quarterly and sent to the members of PDSA via US mail or optionally e-mailed in .pdf version (send by e-mail only outside US and Canada in text format or .pdf). Its pages are filled with helpful articles, news, book reviews, and interviews written by physicians, nurses, and people like you who have learned much from their disease . The reports are in. Our members can't wait for the next issue.Get Adobe Reader

BECOME A MEMBER AND RECEIVE YOUR SUBSCRIPTION


Order Back Issues by Mail - Mail a check to PDSA (US check from US bank), 133 Rollins Avenue, Suite 5, Rockville, MD 20852 with a note indicating the issues you would like us to send you.

Call Toll Free
: 1-87-Platelet (1-877-528-3538)


Newsletter Bundles

All prices are for paper copies and include shipping and handling (newsletters can also be downloaded).

  • Newsletter Collection: 2012 - The four 2012 newsletters for $14.00
  • Newsletter Collection: 2011 - The four 2011 newsletters for $14.00
  • Newsletter Collection: 2010 - The four 2010 newsletters for $14.00
  • Newsletter Collection: 2009 - The four 2009 newsletters for $14.00
  • Newsletter Collection: 2008 - The four 2008 newsletters for $14.00
  • Newsletter Collection: 2007 - The four 2007 newsletters for $14.00
  • Newsletter Collection: 2006 - The four 2006 newsletters for $14.00
  • Newsletter Collection: 2005 - The four 2005 newsletters for $14.00
  • Newsletter Collection: 2004 - The four 2004 newsletters for $14.00 - Sale $12.00
  • Newsletter Collection: 2003 - The four 2003 newsletters for $14.00 - Sale $12.00
  • Newsletter Collection: 2002 - The four 2002 newsletters for $14.00 - Sale $12.00
  • Newsletter Collection: 2001 - The four 2001 newsletters for $14.00 - Sale $12.00
  • First Newsletter Issues Six Pack - (Summer, 1999 - Fall, 2000) $15.00 - Sale $12.00


Single Issues

2012 Issues

  • The Spring 2012 issue of The Platelet News is 28 pages of the latest news and informative articles including: "Highlights of ASH 2011 Meeting: Part 2 ", "PDSA Hosts ITP Conference 2012 in Denver, CO", "KIDS KORNER: ITP Child Sophie Pritikin Hosted Her Girl Scout Troop to Learn about ITP", "Making a Difference: Sharon Putnam", "Dr. Bussel Wins Prestigious Medical Award", "New York Times Best- Selling Author Joel Fuhrman, M.D. to be Keynote Speaker at ITP Conference 2012", "ITP Conference 2012: Program", "News from Our Support Groups", "Walk/ Run News: Live from the Web…It’s www.ITPwalk.org!”, "Creating a Legacy for the ITP Community”, "BUZZY® Stops the Pain from Injections”, "Advocacy Alert: Congressional Briefing Draws National Attention to the Impact of Autoimmune Diseases”, "ITP Research Updates: News from the ASH Meeting: Part 2 (Abstracts)”, "Global View: Letters from Our International Friends", "Advocacy Alert: PDSA Attends NIH Rare Disease Day 2012”, "A Different View: Unusual Success Stories from Our Mailbox" and more. $5.00
  • The Summer 2012 issue of The Platelet News is now available with 28 pages filled with informative articles and the latest news including: “Join the Movement that’s Gone Global! September is ITP Awareness Month”, “On September 28th Get in the Game! Sport Purple for Platelets!”, “PDSA Hosts Extraordinary ITP Conference in Denver”, “Conference ‘Teens Only’ Session a Huge Success”, “ITP Conference 2012: Part 1” including: “ITP & Immune Deficiencies: What’s the Connection?”, “ITP and the Female Lifecycle”, “What’s On the Horizon? Future Developments in Novel Agents to Treat ITP”, “Know Your Rights in the Era of Healthcare Reform”, “Canadian ITP Patient Advocacy Meeting”, “KIDS KORNER: Fifth-grader with ITP Hosts School Event to Raise ITP Awareness”, “Making a Difference: The Bamesbergers”, “A Mile-High Platelet Party”, “ITP Friends, the Passion of a Personal Trainer and Ice Cream!”, “Rainbow Page: Lily Day”, “News from Our Support Groups", “Walk/Run News: Basking Ridge, NJ Event Spreads Awareness and Warms Hearts”, “Fall is Pledge Card Time – Please Consider PDSA”, “PDSA’s New Kids’ Program Takes the “Ouch” Out of Needlesticks”, “PDSA Fundraising News”, “2012 ITP Conference DVD/CD Sets Now Available, “PDSA Awards 4th Annual Audi Gerstein Scholarship and Three $100 Book Awards”, “Advocacy Alert: PDSA Takes Part in First Thrombosis & Hemostasis Summit in North America” and “PDSA Takes Part in National Heart, Lung, and Blood Institute Annual PIO Meeting”, “Be Notified of IVIg Recalls”, “Global View: Letters from Our International Friends" including “ITP Teen in UK Carries Olympic Torch” and “ITP Support International Meeting”, “What Our Friends Are Saying About the ITP Conference”. $5.00
  • The Fall 2012 issue of The Platelet News is 28 pages of the latest news and informative articles including: “Peak Performance 2012: ITP Awareness Initiative Continues”, “Purple Power Gains New Awareness for ITP!” “2012 ITP Conference: ITP Update - Part 2, including: --“ITP: Does It Run in the Family?” by Dr. Amy Geddis, --“Super Immunity, --“Using Nutritional Excellence to Prevent and Treat Autoimmune Diseases and Cancer,” by Dr. Joel Fuhrman, --“TPO Trials in Children,” by Drs. James Bussel and Michael Tarantino, --“ITP Myths and Misconceptions,” by Drs. Terry Gernsheimer and John Semple, --“Treatment Options That Can Reduce the Risk of Bleeding in ITP Patients,” by Drs. Andra James, Craig Kessler, and Michael Tarantino, --“ITP in Adults,” Q&A Session panel including: Drs. James Bussel, Terry Gernsheimer, Craig Kessler, Dave Kuter, Howard Liebman, and John Semple, --“Living with ITP: Patients Share Their Stories, “Pennies for Platelets” , “Making a Difference: Kristin Hunt and Melissa Hilsabeck”, “Walk/Run News: From Coast to Coast and North of the Border, ITP Advocates Pump It Up for Platelets! in the Third Annual National Walk/Run, “From the Executive Director”, “You’re Never Alone: ITP Conference 2012 Facilitator Workshop”, “KIDS KORNER: Eighth-grader with ITP Raises ITP Awareness and Funds for Sport Purple for Platelets Day”, “In Memoriam: Jennifer Jaff”, “PDSA Resources Support Parents of ITP Kids”, “What Our Friends Are Saying”, “Advocacy Alert: PDSA Joins A-PLUS Webinars on State Exchange Programs in the Affordable Care Act (ACA)”, “IVIg: An Insider’s Guide”, “Global View: Letters from Our International Friends" including “ICIS Meeting”, “What Our Friends Are Saying About the ITP Conference – Part 2”, “Support Groups List". $5.00
  • The Winter 2012-2013 issue of The Platelet News is 28 pages of the latest news and informative articles including: “PDSA 13th Annual ITP Conference in Bethesda, MD”, “ASH Meeting Presents Latest in ITP Research: Part 1”, “PDSA Medical Advisor James Bussel, MD Honored by the Children’s Cancer & Blood Foundation”, “ASH Friday Morning Symposium Offers Latest ITP Findings”, “Making a Difference” featuring three PDSA Medical Advisors, “ITP Support and Information Offered on Canadian Teleconference Call”, “ASH 2012 Abstracts Summary: Part 1”, “How One Woman’s ITP Experience Shaped an Organization that Supports Others with ITP”, “In Memory of Two PDSA Members with ITP”, “A Big Idea Becomes an Extraordinary Reality: WI Walk/Run Raises over $20K and ITP Awareness”, “Global View: Her Music Helps Danni Cope with ITP”, “Fundraising News: Devoted Wife Organizes Dinner/Auction that Raises $3,500 to Benefit PDSA & ITP Patients”, “News from our Support Groups”, “Advocacy Alert: PDSA Participates in NORD Rare Diseases Research Patient Panel”, “Rainbow Page: My ITP Roller Coaster Ride”, by Howard Rayfiel, “Kids Korner: My ITP Silver Lining” by 13-year-old ITP teen, Rachel Netz, “A Different View: Unusual Success Stories from Our Mailbox”, “What Our Friends Are Saying.” $5.00

2011 Issues

  • Spring 2011 The Spring 2011 issue of The Platelet News (24 pages) includes the following articles: “PDSA Hosts 11th ITP Conference in Boston, MA in 2011”, “ITP Conference 2011: Program”, “A Low Platelet Mystery. . . Solved”, “PDSA Attends ITP Support Association National Convention in the UK”, “Support National ITP Awareness Month in September and Sport Purple for Platelets!” “Walk / Run News: NYC Half Marathon Runner Raises Funds and Awareness for ITP”, “Making a Difference: Lib Elder”, “The ASH Abstract Chronicles - Part 2: Insights into ITP and Treatment with TPO Agents”, “Kruses Host Birthday Bash Fundraiser for PDSA”, “News from Our Support Groups”, “PDSA at SSA Compassionate Allowances Hearing”,“Rainbow Page: Another Low Platelet Mystery. . . Not Solved”, and more. $5.00
  • Summer 2011 The Summer 2011 issue of The Platelet News (28 pages) includes the following articles: ITP Conference 2011 Coverage: Part 1 - with the latest news and information on ITP diagnosis and treatment, ITP Awareness Month and upcoming Sport Purple for ITP Day on September 30th, “What the Recent ITP Guidelines Tell Us” by Dr. David Kuter, “Why We Become Immune Against Platelets” by Dr. John Semple, “Does It Run In the Family?” by Dr. Amy Geddis, “Treatment Options That Can Reduce the Risk of Bleeding” by Dr. Craig Kessler, “ITP Etiology Study Aims to Find Cause of ITP” by Valerie Arias, “Diagnosis and Standard Therapy for ITP” Part 1 by Dr. Terry Gernsheimer, “Living with ITP” by ITP patients who share their stories of hope and recovery, ‘PDSA Awards Third Annual Audi Gerstein Scholarship”, “The Power of Positivity and Determination: 14-Year-Old Chloe Lane’s Fundraising Journey for PDSA” by Hannah Winant, “PDSA Takes Part in NHLBI PIO Meeting”.  $5.00
  • Fall 2011 The Fall 2011 issue of The Platelet News (28 pages) includes the following articles: “The Darling of ITP: Awe-inspiring, 30-Hour Nonstop Peak Performance Workout Raises Awareness for ITP and Over $80,000 for PDSA”; “2011 ITP Conference: ITP Update Part 2”; “Walk/Run News: Pump It Up for Platelets! Locations Continue to Grow, Spread Awareness and Raise Funds for PDSA and ITP”; “Making a Difference: Erik Anderson & Melissa McGuirl”, “Other Platelet Disorders Web Page Gets Update”, “PDSA Welcomes Meagan Richards”; “News from our Support Groups”; “Purple Power: ITP Awareness Month and Sport Purple for Platelets Day Go Global”, “First Canadian ITP Patient Advocacy Meeting at this Year’s ITP Conference”; “Why Am I So Tired -- Panel Q&A”; “Diagnosis and Standard Therapy for ITP: Part 2”; “Patients Share Their Stories”; “What Our Friends Are Saying About the Conference: Part 2”; “For Teens Only”; “How Do We Know What Treatments Work: Clinical Trials and You”; “PDSA Fundraising News: No Dilly-Dallying”; “Jewelry Sale Raises Funds and Awareness for Sport Purple for Platelets Month”; “Highlights of ITP in Children -- Q&A: Part 1:”; Rainbow Page: Living with ITP—Not Letting ITP Own My life”; “Global View: Letters from Our International Friends”; and “A Different View: Unusual Success Stories from our Mailbox”. $5.00
  • Winter 2011-2012 The Winter 2011-2012 issue of The Platelet News (28 pages) includes the following articles: “ITP Research Update: News from the American Society of Hematology Meeting ”, “2012 Showcases PDSA 12th ITP Conference in Denver, CO”, “KIDS KORNER: Ayla Charness, ITP Patient and Children’s Miracle Network 2011 Colorado Champion”, “Making a Difference: Barbara Pruitt”, “PDSA Welcomes Two New Board Members – Brian Bamesberger and Jay Charness”, “ITP in Adults: Q & A with Dr. James Bussel”, “Highlights of ITP in Children – Q & A: Part 2”, “Introducing the Circle of Hope”, “Walk/Run News: Pump It Up For Platelets! Locations Continue to Grow, Spread Awareness, and Raise Funds For PDSA and ITP”, “FDA Eases Rules for Nplate and Promacta”, “News from Our Support Groups”, “Global View: Letters from Our International Friends”, “A Different View: Unusual Success Stories from Our Mailbox”, and more. $5.00

2010 Issues

  • Winter, 2010-2011 - 24 pages. “ASH 2010: Stimulating ITP Research”, “1st Canadian Walk/Run Raised $2000 and Awareness for ITP”, “Global View: Letters from Our International Friends”, “The ASH Abstract Chronicles, Part 1: Insights into ITP and Treatment with TPO Agents”, “2011 Showcases PDSA 11th ITP Conference in Boston, MA”, “Sarah’s Walk Joins Forces with PDSA’s Pump It Up for Platelets!~for a world free of ITP”, “Making a Difference: Arlene Laut and Sarah Eggleston”, “Applications Opening Soon for the 2011 Audi Gerstein Platelet Disorder Scholarship”, “Rainbow Page: Patient’s ITP in Remission after Rituxan® and H. pylori Treatment”, and more. $5.00
  • Fall, 2010 - 24 pages. “Wisconsin ITP Support Group Walk/Run a Huge Success!”, “2010 ITP Conference: Update on ITP, Part 2”, “Central/North Jersey ITP Support Group Walk/Run a Winner!”, “Making a Difference: Jay and Ayla Charness”, “Q & A for Adults with ITP”, “Women’s Lifecycles and ITP”, “The Pro’s and Con’s of Dietary Supplements: Recommendations for ITPers”, “’Of Science and the Soul: A Search for Healing”, “News from Our Support Groups”, “ITP Conference 2010: The Patients Speak”, “Save the Date: ITP Conference”, “European Symposium on Platelet and Granulocyte Immunobiology”, “Autoimmune Specialists, Researchers, and Patient Advocates Meet at United Nations”, and more. $5.00
  • Summer, 2010 - 24 pages. “What Our Friends Are Saying About the Conference”, “PDSA Involved in Blood Safety Meeting”, “What History Has Taught Us About ITP”, “Old Agents, New Agents”, “Do I Have the Right Diagnosis?”, “Managing the Stress of a Chronic Illness”, “ITP and Children: Q & A with Dr. Tarantino”, “Why Am I So Tired?”, “’Teens Only’ Session at ITP Conference”, “News from Our Support Groups”, “Facilitators’ Workshop Well Received”, “PDSA Awards Second Audi Gerstein Scholarships”, “Platelet Birth to Platelet Dust”, “Making a Difference: Kim Everett and Trudy Sensat”, “Spring Fundraiser Benefits PDSA and ITP Patients”, and more. $5.00
  • Spring, 2010 - 24 pages. "PDSA Hosts Tenth ITP Conference in Las Vegas”, “PDSA Supports Autoimmune Diseases Summit”, "Highlights of the 2009 ASH Meeting, Part 2", "Making a Difference – Creta DeVault-Ford", "A Different View – Unusual Success Stories From Our Mailbox", "Rainbow Page – Healthy Patient Surprised by Case of ITP”, "ITP, Public Health and the Centers for Disease Control", “News from our Support Groups”, "Kids Korner", and more. $5.00

2009 Issues

  • Spring, 2009 - 24 pages. "PDSA Hosts ITP Conference in Orlando, FL", "Part 2: Highlights of ASH '08", "Meet John Schwartzman", "Meet PDSA Staff Member Judi Marx", "Members Share Views in Survey", "New ITP Parent Support Group Forming Via Teleconference", "Making a Difference - Danielle Schmidt", "Rainbow Page - Living with Not-So-Typical Episodes of Acute ITP", "News From Our Support Groups", "A Different View", and more. $5.00
  • Summer, 2009 – 24 pages.  “2009 ITP Conference: Update on ITP, Part 1”, “What We Used to Know About ITP and What We Know Now”, “PDSA Awards First Scholarship and Offers Book Awards at ITP Meeting”, “Adults with ITP”, “ITP in Women”, “President’s Circle Challenge Members Lead the Way in Fundraising for PDSA”, “Coping with a Chronic Illness”, “ITP Conference Teen Session: A Success”, “Making a Difference – Liz and Ron Strom”, “Rainbow Page – My Case of Sudden ITP”, “Support Group Facilitators’ Workshop a Success”, “News from Our Support Groups”, and more. $5.00
  • Fall, 2009 – 28 pages.  "Cytopenia and Hemostasis 2009, the latest ITP Information”, “2009 ITP Conference, Update, Part 2”, “Making  A Difference – Mat Heyman”, “The Small, Small World of ITP”, “Living with ITP, Patient Success Stories”, “Rainbow Page – From Bone Marrow Donor to ITP Patient”, “Memoriam for Joseph Stirrup”, “Successful Launch for Enlighten Program”, “Medical Students Learn About ITP Through PDSA Support Group”, “Student With ITP Donates Her Art to PDSA”, “A Different View”, and more. $5.00
  • Winter, 2009-2010 – 24 pages.  "Highlights of the 2009 ASH Meeting, New Orleans”, “Research News from the Cytopenias and Hemostasis 2009 Meeting - Part 2”, "New Director of Marketing, Nancy Potthast", "Treatment News from ASH Abstracts", "2010 Showcases PDSA's 10th ITP Conference in Las Vegas", “Making  A Difference – Barbara and Ralph Hise”,  "News From Our Support Groups",  "Twenty-two Experts Agree on ITP Treatments", “A Different View - Unusual Success Stories From Our Mailbox”, "What Our Friends Are Saying", and more. $5.00

2008 Issues

  • Spring, 2008 - 20 pages. "ITP Research Highlights of 49th Annual ASH Meeting: Part 2", "FDA Panel Moves Forward on NPLate", "Being There: The FDA Advisory Committee Meeting on NPlate", "PDSA Welcomes Two New Medical Advisors: Howard Liebman, M.D. and Andra James M.D.", "PDSA Welcomes New Board Member: Jamie Harwell", "An ITP Poem", "PDSA Survey Results", "New Clinical Trial for PRTX-100 for Chronic ITP", "ITP Featured on News Program", and more. $5.00
  • Summer 2008 - 24 pages. "2008 Conference Salutes PDSA's Past, Future", "CME Sessions: Managing ITP", "PDSA Welcome Craig Conway as Executive Director", "Productive 2008 Workshop for Support Group Facilitators", "Anniversary Party Celebrates 10 Years of ITP Support", "President's Circle Meets for VIP Breakfast at Conference", "Promacta Approval: The Saga", "New College Scholarship", and more. $5.00
  • Fall 2008 - 24 pages. "FDA Approvals Expand Treatment for Adult ITP", "CME Sessions: Managing ITP, Part 2", "Ask the Experts", "Rainbow Page", "A Different View - Unusual Success Stories From our Mailbox", "Making a Difference - Keeth Smart", "What Our Friends Are Saying", and more. $5.00
  • Winter 2008-09 - 24 pages. "Part 1 - Highlights of ASH '08 Meeting Abstracts", "New ITP Guidelines Coming Soon", "PDSA Welcomes New Board Chair Peter Pruitt", "PDSA Welcome A New Executive Director", "PDSA Welcomes New Board Members", "2009 ITP Conference Information", "ITP Study Group", "Rainbow Page", "Local Support Groups", "Is 'Onyalai' a Type of ITP", "Making a Difference", and more. $5.00

2007 Issues

  • Spring, 2007 - 20 pages. "Diagnosing ITP - Important Information for Patients", "New Genetic Tests for Inherited Thrombocytopenia", "Louise's 12 Commandments or How to Love Yourself", "An American Perspective:  ITP and Cure", "10 Ways to Avoid Medication Errors", "Inhale Beauty, Exhale Surrender", "Rainbow Page - Success with Vitamin D", " A Different View - Unusual Success Stories From Our Mailbox", and more. $5.00
  • Summer 2007 - 24 pages. "ITP Conference 2007:  Something for Everyone"; " Q & A:  Question for our Medical Advisor"; "CDC Releases New International Travel Guide"; "Joan Recommends - Kale";  "Greens, Glorious Greens:  Focus on Kale"; "PDSA Welcomes Carol Hoxie"; "A Different View:  Unusual Success Stories From Our Mailbox"; and more. $5.00
  • Fall 2007 - 24 pages.  "Lessons from the Epidemiology of ITP" by Dr. Patrick Fogarty; "ITP Conference 2007:  Program for Doctors"; "The Application of Chinese Herbal Medicine in the Treatment of ITP"; "Coping with ITP:  An Individual Approach";  "PDSA Welcomes Marjorie Ligelis as our New Financial Officer"; "A Different View:  Unusual Success Stories From Our Mailbox";  PDSA Fundraisers and more. $5.00
  • Winter 2007-2008 - 24 pages. "ITP Research Findings Attract Huge Crowds at Annual Hematology Meeting", "ITP Research Highlights of 49th Annual ASH Meeting 2007 - Part 1", "PDSA - Healing/Curing and Energy Therapy", "Local Support Groups", "Highlights of Cytopenias in 2007 - Emphasis on ITP Meeting in San Diego", "Joan Young Featured in New DISH Network Series, The Incurables", "President's Circle Reception and Lecture at Harvard Club", Rainbow Page", "What Our Friends Are Saying", "A Different View", "Kid's Korner", and more. $5.00

2006 Issues

  • Spring, 2006 - 24-pages.  “Possible Underlying Factors of ITP”, “Clinical Trials”, “Are Platelets Released in Your Lungs?”, “Essay: Help Prevent ITP”, “Environmental Triggers of ITP (Letters)”, “Indoor Pollution”, “Treating Refractory Chronic ITP in Children with Rituximab”, “A Different View - Unusual Success Stories From our Mailbox” and more. $5.00
  • Summer, 2006 - 28-pages.  “Report from PDSA ITP Conference 2006”, “Praise for our Conference”, “Patient Stories from our Conference”, “News for ITP’ers”, “Rainbow Page: I Saw Her Improve, I Became a Believer’, “Rainbow Page: Without Drugs or Surgery”, “The Environment and You: An Update”, “A Different View - Unusual Success Stories From our Mailbox”, “PDSA Outreach: Updates on Local Support Groups”, “Kids Korner: Prize Winners of Platelet Pal Art Contest:, and more. $5.00
  • Fall, 2006 - 24-pages.  “Findings from Web-based Online Survey”, “Understanding the ITP Patient Perspective”, “A Different View - Unusual Success Stories From our Mailbox”, “The Environment and You: Third Installment”, “New Treatments in Development”, “Childhood ITP: Special Issue of “Pediatric Blood and Cancer”, “What our Friends are Saying”, “PDSA Outreach: Updates on Local Support Groups”, “PDSA ITP Conference 2007: Meadowlands, New Jersey” and more. $5.00
  • Winter, 2006-2007 - 24-pages.  "Research Highlights from ASH Annual Meeting", "ITP Sessions Pull in Crowds at Hematology Meeting (ASH)", "What Our Friends Are Saying", "President's Circle Challenge", "PDSA Outreach", "Rainbow Page - ITP and the MMR Vaccine", " A Different View - Unusual Success Stories From Our Mailbox", and more. $5.00

2005 Issues

  • Spring, 2005 - 20 pages.  "Taking Good Care of Your Liver", "Clinical Trial Update", "Minding your Bedside Manners", "How to Survive your doctor's Care" and more. $5.00
  • Summer, 2005 - 20 pages.  "ITP Conference Highlights", "Healthy Websites", "ITP Conference Q & A part 1", UK Schools go Organic" and more. $5.00
  • Fall, 2005 - 24 pages.  "ITP Conference 2005 Q&A part 2", "8-part Plan for Worrywarts", "How I Treat ITP", and more. $5.00
  • Winter, 2005-2006 - 24 pages.  "ASH ITP Research Highlights", "When the Body Betrays", "Keep you Nose Clean" and more. $5.00

2004 Issues

  • Spring, 2004- 24 pages.  “Health Related Quality of Life in Patients with ITP”, “American Society of Hematology Meeting, 2003 - ITP Research Highlights Part 1”, “Inflammation and Autoimmune Disease”, “Your Questions Answered – Dr. James Bussel”, “A Christmas Poem”. $5.00
  • Summer, 2004 - 24 pages.  “Not All IGIV Preparations Are Created Equal”, “Splenectomy: Predicting Success”, “Where’s the Evidence?”, “Your Questions Answered”, “House Resolution 610”. $5.00
  • Fall, 2004 - 20 pages.  The Fall issue contains "ITP Conference 2004 - The Report", "Questions From the Conference", "My Experience With Energy Therapy", Essay: More Evidence", "Abstracts of Interest", and more. $5.00
  • Winter, 2004-2005 - 20 pages.  "ASH Meeting December 4 - 7, 2004: ITP Research Highlights", "Surviving Colds and Flus", "Essay: My Hero", and more. $5.00


2003 Issues

  • Spring, 2003 - 20 pages. “Clinical Trials & You: What Every Patient Should Know”, “Autoimmune Disorders and Contributing Factors - Part 2”, “Report from the American Society of Hematology Meeting: Part 1”, more. $5.00
  • Summer, 2003 - 20 pages.  "Twenty Steps to Better Health", "Making the Most of Your Office Visit", "PDSA On the Road", "ITP - The Official Patient's Sourcebook- Book Review" more.. $5.00
  • Fall, 2003 - 20 pages. "Use of Steroids in Persons with ITP: A Boon or a Bane", "ITP - An Ayurvedic Perspective", "Report from the American Society of Hematology Meeting - Part 2", "ITP - Age at Diagnosis".  $5.00
  • Winter, 2003-2004 - 20 pages - “Autoimmune Thrombocytopenia Purpura and Pregnancy”, “Environmental Triggers of Autoimmune Disease: Summary of a New Report from AARDA”, “The Case for an Orthomolecular Approach to the Treatment of ITP”, “DRAFT: ITP Research Agenda – An ITP Patient Perspective”, “Traveling with the NIH”. $5.00


2002 Issues

  • Winter, 2002 - 20 pages . "Hepatitis C Infection Related Thrombocytopenia Might Masquerade as ITP, "Report from the Hematology Conference,"Your Questions Answered," Medicines, Foods, and Herbal Remedies that Can Cause a Low Platelet Count…".  $5.00
  • Spring, 2002 - 20 pages. "Coping with Corticosteroids by Dr. Andrew Weil," "Report from the ASH Hematology Meeting," "Is ITP Treatment Different in the US and UK?" "The Child with ITP, "Research Watch", and more. $5.00
  • Summer/Fall, 2002 - 20 pages.  "Survey of Non-traditional treatments of ITP - Preliminary Results", "Having Trouble Paying for Treatment? - Seven Helpful Tips," Your Questions Answers", "ITP Conference 2002 - A Report", "New Registry for Children with ITP", "Comint to Terms with ITP." $5.00
  • Winter, 2002-2003 - 20 pages. "A low platelet count must be ITP, right?", Autoimmune Disorders and Contributing Factors - Part 1","A Journey Through Time: A Brief History of Immune Thrombocytopenic Purpura", "ITP Diet Recommendations". $5.00

 

2001 Issues

  • Winter, 2001 - 12 pages.  "Helicobacter pylori eradication can induce platelet recovery in idiopathic thrombocytopenic purpura" by Giovanni Emilia,MD et. al, "American Society of Hematology Meeting Highlights" by Joan Young, "New ITP Treatments - The Latest Word", "Thrombosis and ITP", "Splenectomies and Heart Attacks - An Interesting Link", "Splenectomies - An Update", "In the News". $5.00
  • Spring, 2001 - 12 pages.  "ITP: To treat or not to treat, is the question" from Hem/Onc Today, "Infections and ITP", "ITP Herbal Formula",  "The Brain in Your Gut", "In the News". $5.00
  • Summer, 2001 - 12 pages. "ITP Conference 2001 - Highlights Part 1", "A Different View", "NewClinical Trail", Lara’s Story: Using Traditional Chinese Medicine to Treat ITP",  "Your Questions Answered", "In the News", "Abstracts of Interest". $5.00
  • Fall, 2001 -  16 pages. "ITP Conference 2001 - Highlights Part 2", "A Different View", Lara’s Story: Part 2",  "Your Questions Answered", "In the News", "Abstracts of Interest”, “Help Prevent Cold”. $5.00

 

1999-2000

  • Summer, 1999 - 8 pages. "Natural Alternatives to Prednisone" by Andrew Weil, MD, "Breathing Lessons", Coping with Prednisone book review, "Zen and the Art of Surviving", and "Form of Chinese Herb Found to Temper Immune System and Kill Cancer Cells". $5.00
  • Fall, 1999 -  8 pages. "ITP and Depression", "Natural Supplements for Management of Chronic ITP", "A Bloody Story - or What is Eating our Platelets", "Talking to Your Doctor", and "Keep Your Nose Clean". $5.00
  • Winter, 2000 - 8 pages. "Report from the Hematology Convention" (1999 American Society of Hematology meeting), "Zen and the Art of Helping", "Chew Your Food",  plus updates on the new pregnancy portion of the site, and a helpful tip from the Platelet Buddy. $5.00
  • Spring, 2000 - 8 pages. "Focus on a New Treatment…Rituxan", "Book Review: Bitter Pills: Inside the Hazardous World of Legal Drugs by Stephen Fried", "Your Immune System and ITP", "B's for Lunch: Atale of three foods that boost your energy and are platelet friendly", "An ITP Mystery: Is the environment a factor?"  $5.00
  • Summer, 2000 - 12 pages. "The Spleen: A Synopsis by Phillis Payne","More Spleen Facts", "Food Allergies and ITP", "Food Allergies: A Personal Account", "Inherited Thrombocytopenia". $5.00
  • Fall, 2000 - 12 pages. "WinRho - A Novel and Physiologic Treatment for ITP", "ITP - A Doctor’s Perspective", "ITP in the News", "Seven Steps to an Easier IV", "Breathe Easy". $5.00

 

Click Here for Additional Publications



Diet Information

In our Survey of Non-Traditional Treatments in ITP about 40% of the responders reported some improvement in their bleeding symptoms and their platelet count with either the macrobiotic diet or the diet recommended in Eat Right for Your Type by Dr. Peter J. D’Adamo. Less success was reported for the Atkins and Zone diets, high protein, low carbohydrate diets.

The recommendations listed in this article are based on principals from the macrobiotic and “Eat Right” diet, general nutritional research and research linking the impact of diet changes on other diseases that have common features with ITP.

If you would like to implement some of the diet changes listed in this article, please make the changes slowly so your body can adjust. Sometimes diet changes can cause withdrawal and detoxification symptoms as your body adjusts to the new foods and eliminates the old.

These suggestions are guidelines only. Be sure to discuss any diet changes with your physician.

  1. Eat a wide variety of fresh food
    Maximize the value of each bite. Eat food from as close to the source as possible and as soon as possible. Avoid canned and frozen foods and leftovers. The nutritional value of food deteriorates with time. A wide variety of food assures your body gets the variety of nutrients it needs.
  2. Eat whole foods
    Eat whole grain cereals, brown rice, and whole wheat products. Reduce the amount of white flour, white rice and processed foods. Processed grains are stripped of their natural nutrient-rich coating.
  3. Eat organic foods
    Eat un-sprayed foods grown using natural fertilizers. Some pesticides and herbicides have been shown to exacerbate autoimmune diseases and lower platelets. Additives and preservatives can increase the disease-causing free radicals in your body.
  4. Reduce sugar
    Reduce the amount of white refined sugar as well as fructose, corn syrup, honey and other sweeteners. Limit fruit and fruit juice. Sugar contributes to an acidic disease-promoting body condition.
  5. Reduce dairy products
    Reduce or eliminate milk, cheese, ice cream, and yogurt from your diet based on your reaction to these foods and other dietary needs. Dairy foods have been shown to contribute to mucus formation and exacerbate some autoimmune diseases.
  6. Eat healthy fats
    Use cold pressed oils such as olive or canola in cooking and baking. Avoid hydrogenated, partially hydrogenated or trans-fats. These contribute to free radical damage. Reduce the amount of deep fried food which also adds to the free radical load.
  7. Eat green
    Eat as many leafy greens as possible, especially kale and collards. Add sea vegetables (sea weed) to your diet. These choices contain large amounts of calcium, minerals, and vitamin K to help clotting.
  8. Limit meat
    Rely on lean, white fish, whole grains and beans and some nuts for protein. Meat is often laced with residual antibiotics, hormones, and saturated fat.
  9. Avoid problem foods
    Avoid alcoholic beverages which can damage bone marrow. Reduce the amount of blueberries, red/purple grape products, garlic, onions, ginger, ginseng, and tomatoes. These foods can interfere with blood clotting. Avoid food and drinks containing quinine. These can lower platelets.
  10. Avoid allergic foods
    Many people have delayed food allergies that produce vague and difficult-to-diagnose symptoms. If you don’t feel well, consider having a food allergy test.
  11. Chew your food well
    Chewing each bite until it is liquid can aid digestion, aid the passage of nutrients into your blood stream, and promotes healthy alkaline blood chemistry.
  12. Drink pure warm water
    Drink plenty of filtered or bottled water at room temperature or above. Taking periodic sips of hot water can cleanse impurities from the body. Ice water can slow and hinder the digestive process. Tap water may contain small amounts of chemicals that are harmful.

Lifestyle Information

Twenty Steps to Better Health

In your darkest moments you may think there is nothing else you can do to improve your health. Not true. We believe there is always something else you can do…or think…or feel…that can raise your platelet odds.

Here’s a list of suggestions that are cheap, won’t keep you up at night and just might unlock your healing response.

Our readers report and we concur…good health is often the result of many small changes that sum to a large impact. Just read our letters and stories.

This is quite a long list. Just pick a few of your favorite ideas and try them. You can add more later. Get your family and friends to join you. Everyone can benefit.

Now begin to:

  1. Breathe
    Take 20 minutes a day to just breathe slowly and deeply, raising and lowering your abdomen. Breathing slowly reduces stress and activates neurotransmitters found in the lungs.
  2. Avoid Toxins
    Use natural cleaning products, natural pesticides, low volatile paints, organic fertilizers, etc. Avoid perfumes and scented products. Chemicals and pesticides have been shown to interfere with the immune system and create unhealthy free radicals in the body.
  3. Avoid Plastic Containers
    Store food in ceramic or glass dishes and containers. The chemicals in plastics have been shown to interfere with cell development.
  4. Reduce Stress
    Look at the people and situations that create stress in your life and try to find ways to reduce the stress. Yoga and meditation often help. Stress has been shown to aggravate many diseases.
  5. Think Positive
    Imagine yourself well. Replace any negative thoughts with positive ones. Think of positive things you want to happen in the future. According to many research studies positive thinking can enhance your chances of feeling better.
  6. Connect to a Higher Power
    Pray or seek other spiritual guidance consistent with your beliefs. Research has shown that this type of connection can assist in improving health.
  7. Consider Energy Therapy
    Reiki, Qi-gong, and other subtle energy therapies can activate a healing response. You can learn some of these and do them yourself or you can seek a qualified practitioner.
  8. Exercise
    Find an exercise program you like and that fits your health situation. It could be walking, yoga, dancing. Use your imagination.
  9. Breathe Clean Air
    Avoid smoky (and smoking), musty, dank, dusty environments. Particulates and mold can cause or exacerbate autoimmune diseases.
  10. Avoid Mercury
    If you need a tooth filled, avoid mercury fillings. Avoid eating fish that is high in mercury. Dispose of mercury thermometers. Mercury has been shown to exacerbate autoimmune disease.
  11. Listen to your body
    Stay in touch with your inner self and follow your body’s suggestions if they are health oriented. Sleep when you need rest. Eat when you’re hungry. Stay in the sun when your body wants the warmth.
  12. Be with People who Enliven You
    Sometimes you feel better after being with someone. Other times you may feel deadened and drained. Choose to be with people who brighten your spirits.
  13. Take Time for your Favorite Things
    Bring as much joy into your life as possible. Listen to music. Grow flowers. Watch the birds and rabbits. Sing. Make your own list.
  14. Reduce Negative Input
    Reduce the amount of time you spend watching the news, reading scary stories and watching TV shows with violent themes. These have been shown to promote stress reactions.
  15. Live in a Positive Space
    Remove clutter from your environment. Organize your things. Fix anything that’s broken. Clean things that are dirty. Surround yourself with items that help you smile and feel good. Read a Feng Shui book for more suggestions.
  16. Get the Right Amount of Sleep
    Attempt to sleep from seven to nine hours per night. Research has shown that both too little and too much sleep can aggravate health problems. Ayurvedic medicine recommends that you go to bed before 10:00 PM and arise around 6:00 AM for optimal health.
  17. Avoid Allergic Triggers
    Find out if you are allergic to any food and other things around you then eliminate or avoid them, if possible. For example: use a hepa filter vacuum and/or air cleaner and dust protector pillow cases if you are allergic to dust. Allergic reactions are another sign of an overactive and misguided immune system.
  18. Do Fun Things
    Create opportunities to smile and laugh. Know what brightens your spirits and puts a grin on your face, then find time to do these things. Norman Cousins set the standard with his book, “Anatomy of an Illness” when he described how watching Marx Brother’s films helped him heal.
  19. Avoid Drugs That Can Interfere with Platelets
    The medical literature is filled with accounts of prescription products that can reduce platelet counts or inhibit their action. While some of these are allergic reactions and will not apply to everyone, it is good to know the possibilities.
  20. Get Help and Hugs
    Find others who will listen. Talk about your feelings. Ask for help when you need it and accept the help that’s offered. Bask in hugs and warmth.



Tell Your Doctor

ITP Conference DVD

See and hear the conference at home.
ITP Conference DVDs

Free Booklets and Pamphlets

Download FREE or contact us and we will send them to you.
Free Materials

Diet & Lifestyle Information

Research linking the impact of diet changes on other diseases that have common features with ITP.
Diet & Lifestyle Info

PDSA Newsletters

Twenty-plus pages of informative articles, sent quarterly to our members. Become a member.
Prior copies are available for sale.
Newsletters

Journal Articles & Journal Abstacts

Purchase booklets containing recent ITP articles.
Journals

E-News

FREE to everyone who Registers on our Web site.
Filled with recent news and interesting information. Sent monthly.
E-News